In 1917, Henri Gaillard led a delegation of deaf French men to the United States for the centennial celebration of the American School for the Deaf (ASD). The oldest school for deaf students in America, ASD had been cofounded by renowned deaf French teacher Laurent Clerc, thus inspiring Gaillard’s invitation. Gaillard visited deaf people everywhere he went and recorded his impressions in a detailed journal. His essays present a sharply focused portrait of the many facets of Deaf America during a pivotal year in its history.
Gaillard crossed the Atlantic only a few weeks after the United States entered World War I. In his writings, he reports the efforts of American deaf leaders to secure employment for deaf workers to support the war effort. He also witnesses spirited speeches at the National Association of the Deaf convention decrying the replacement of sign language by oral education. Gaillard also depicts the many local institutions established by deaf Americans, such as Philadelphia’s All Souls Church, founded in 1888 by the country’s first ordained deaf pastor, and the many deaf clubs established by the first wave of deaf college graduates in their communities. His journal stands as a unique chronicle of the American Deaf community during a remarkable era of transition.
Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability.
In essays devoted to historical perspective, Brian H. Greenwald comments upon the real “toll” taken by A. G. Bell’s insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman’s chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates.
Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis’s concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness.
In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.
Contributors. Arjun Appadurai, Jérome Bindé, Néstor García Canclini, Leo Ching, Steven Feld, Ralf D. Hotchkiss, Wu Hung, Andreas Huyssen, Boubacar Touré Mandémory, Achille Mbembe, Saskia Sassen, Fatu Kande Senghor, Seteney Shami, Anna Tsing, Zhang Zhen
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