A SCHOLARLY BOOK REPOSITORY11 start with S start with S
Contributors. Phoebe Kajubi, David Kyaddondo, Lotte Meinert, Hanne O. Mogensen, Godfrey Etyang Siu, Jenipher Twebaze, Michael A. Whyte, Susan Reynolds Whyte
For the first four years of his life, Prahlad didn’t speak. But his silence didn’t stop him from communicating—or communing—with the strange, numinous world he found around him. Ordinary household objects came to life; the spirits of long-dead slave children were his best friends. In his magical interior world, sensory experiences blurred, time disappeared, and memory was fluid. Ever so slowly, he emerged, learning to talk and evolving into an artist and educator. His journey takes readers across the United States during one of its most turbulent moments, and Prahlad experiences it all, from the heights of the Civil Rights Movement to West Coast hippie enclaves to a college town that continues to struggle with racism and its border state legacy.
Rooted in black folklore and cultural ambience, and offering new perspectives on autism and more, The Secret Life of a Black Aspie will inspire and delight readers and deepen our understanding of the marginal spaces of human existence.
Presley is no wheelchair hero, no inspiring figure preaching patience and gratitude. An army brat turned farm kid, newly arrived in a conservative rural community, he was immobilized before he could take the next step toward adulthood. Prevented, literally, from taking that next step, he became cranky and crabby, anxious and alienated, a rolling responsibility crippled not just by polio but by anger and depression, “a crip all over, starting with the brain.” Slowly, however, despite the limitations of navigating in a world before the Americans with Disabilities Act, he builds an independent life.
Now, almost fifty years later, having worn out wheelchair after wheelchair, survived post-polio syndrome, and married the woman of his dreams, Gary has redefined himself as Gimp, more ready to act out than to speak up, ironic, perceptive, still cranky and intolerant but more accepting, more able to find joy in his family and his newfound religion. Despite the fact that he detests pity, can spot condescension from miles away, and refuses to play the role of noble victim, he writes in a way that elicits sympathy and understanding and laughter. By giving his readers the unromantic truth about life in a wheelchair, he escapes stereotypes about people with disabilities and moves toward a place where every individual is irreplaceable.
In this psychological portrait of a family bound together by the uneasy permutations of love, Abramson relies not on sensationalist narrative but on a collection of the many small moments that glitter along the bumpy path of her life. Now and then she provides a broader, connecting perspective by stepping out of her story to reflect on the meaning of it all from the standpoint of the insightful, healed person she has managed—against all odds—to become.
Rich in metaphor and intimate detail, this is a lyrical story about moving from isolation toward connection, about seeing childhood not as a crippling refuge but as a point of departure, about discovering that it is possible to “have your shadows as well as your light.”
An acclaimed journalist and memoirist—and partner of the late neurologist Oliver Sacks—Hayes has been plagued by insomnia his entire life. The science and mythology of sleep and sleeplessness form the backbone to Hayes’s narrative of his personal battles with sleep and how they colored his waking life, as he threads stories of fugitive sleep through memories of growing up in the closet, coming out to his Irish Catholic family, watching his friends fall ill during the early years of the AIDS crisis in San Francisco, and finding a lover. An erudite blend of science and personal narrative, Sleep Demons offers a poignant introduction to the topics for which Hayes has since become famous, including art, eros, city life, the history of medical science, and queer identity.
Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.
Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.
The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.
A young woman suffers a stroke; she rebuilds her career and personal life, but not before her marriage falls apart. An eighty-year-old man dies unexpectedly of stroke, leaving his grown sons to wonder whether they are genetically predisposed to stroke. A recently retired woman confronts her future with a husband suddenly disabled by stroke. How can she help her husband? Will he ever recover? How will she cope with her own emotional stress?
In Stroke and the Family: A New Guide, Joel Stein shows the many faces of stroke and the people it strikes. To the family just beginning to cope with the aftermath of a stroke, the diagnostic tests, drug regimens, rehabilitation strategies, and varied prognoses can be completely bewildering. Because stroke can affect memory, speech, and movement, the impact on everyday routines and close relationships can be especially intense. Stein has produced a book that allows general readers and nonphysicians working with stroke survivors to make sense of the confusing variety of diagnoses and treatment options, and goes on to explore challenges the recovering stroke patient and the recovering family will face during a long recuperation with an uncertain outcome. Stroke and the Family offers up-to-date information and places the current research findings in context.
A Strong and Steady Pulse: Stories from a Cardiologist provides an insider’s perspective on the field of cardiovascular medicine told through vignettes and insights drawn from Gregory D. Chapman’s three decades as a cardiologist and professor of medicine. In twenty-six bite-sized chapters based on real-life patients and experiences, Chapman provides an overview of contemporary cardiovascular diseases and treatments, illuminating the art and science of medical practice for lay audiences and professionals alike.
With A Strong and Steady Pulse, Chapman provides medical students and general readers with a better understanding of cardiac disease and its contributing factors in modern life, and he also provides insights on the diagnostic process, medical decision making, and patient care. Each chapter presents a patient and their initial appearance, described in clear detail as Chapman gently walks us through his evaluation and the steps he and his associates take to determine the underlying problem. Chapman’s stories are about real people dealing with life and death situations—including the physicians, nurses, medical students, and other team members who try to save lives in emergent, confusing conditions.
The sometimes hard-won solutions to these medical challenges combine new technology and cutting-edge research together with insights drawn from Chapman’s past experiences as an intern and resident in Manhattan during the AIDS epidemic, as a postdoctoral fellow at Duke University in the 1990s, and in practice in Nashville, Tennessee, and Birmingham, Alabama. Conditions addressed include the recognition and management of heart attack, heart failure, arrhythmia, valvular heart disease, cardiac transplantation, broken heart syndrome, hypertension, and the depression some people experience after a heart attack, as well as related topics like statin drugs, the Apple Watch ECG feature, and oral anticoagulants. Finally, the emergence of the COVID-19 virus and its disruption of normal hospital routines as the pandemic unfolded is addressed in an epilogue.
The history of medicine is much more than the story of doctors, nurses, and hospitals. Seeking to understand the patient’s perspective, historians scour the archives, searching for rare personal accounts. Bringing together a trove of more than 400 family letters by Charles Dwight Willard, Suffering in the Land of Sunshine provides a unique window into the experience of sickness.
A Los Angeles civic leader at the turn of the twentieth century, Willard is well known to historians of the West, but exclusively for his public life as a booster and reformer. Willard’s evocative story offers fresh insights into several critical issues, including how concepts of gender, class, and race shape patients’ representations of their illness, how expectations of cure affect the illness experience, how different cultures constrain the coping strategies of the sick, and why robust health is such an exalted value in certain societies.
"No eyebrows. No eyelashes. When it rains the water will run straight down into my eyes," Catherine Lord wrote before her hair fell out during chemotherapy. Propelled into an involuntary performance piece occasioned by the diagnosis of breast cancer, Lord adopted the online persona of Her Baldness—an irascible, witty, polemical presence who speaks candidly about shame and fear to her listserv audience. While Lord suffers from unwanted isolation and loss of control as her treatment progresses, Her Baldness talks back to the society that stigmatizes bald women, not to mention middle-aged lesbians with a life-threatening disease.
In this irreverent and moving memoir, Lord draws on the e-mail correspondence of Her Baldness to offer an unconventional look at life with breast cancer and the societal space occupied by the seriously ill. She photographs herself and the rooms in which she negotiates her disease. She details the clash of personalities in support groups, her ambivalence about Western medicine, her struggles to maintain her relationship with her partner, and her bemusement when she is mistaken for a "sir." She uses these experiences—common to the one-in-eight women who will be diagnosed at some point with breast cancer—to illuminate larger issues of gender signifiers, sexuality, and the construction of community.
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