front cover of Incurable and Intolerable
Incurable and Intolerable
Chronic Disease and Slow Death in Nineteenth-Century France
Jason Szabo
Rutgers University Press, 2009
Terminal illness and the pain and anguish it brings are experiences that have touched millions of people in the past and continue to shape our experience of the present. Hospital machines that artificially support life and monitor vital signs beg the question: Is there not anything that medical science can offer as solace?

Incurable and Intolerable looks at the history of incurable illness from a variety of perspectives, including those of doctors, patients, families, religious counsel, and policy makers. This compellingly documented and well-written history illuminates the physical, emotional, social, and existential consequences of chronic disease and terminal illness, and offers an original look at the world of palliative medicine, politics, religion, and charity. Revealing the ways in which history can shed new light on contemporary thinking, Jason Szabo encourages a more careful scrutiny of today's attitudes, policies, and practices surrounding "imminent death" and its effects on society.

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front cover of Making Health Care Whole
Making Health Care Whole
Integrating Spirituality into Patient Care
Christina Puchalski
Templeton Press, 2021

In the last fifteen years, the field of palliative care has experienced a surge in interest in spirituality as an important aspect of caring for seriously ill and dying patients. While spirituality has been generally recognized as an essential dimension of palliative care, uniformity of spiritual care practice has been lacking across health care settings due to factors like varying understandings and definitions of spirituality, lack of resources and practical tools, and limited professional education and training in spiritual care.

In order to address these shortcomings, more than forty spiritual and palliative care experts gathered for a national conference to discuss guidelines for incorporating spirituality into palliative care. Their consensus findings form the basis of Making Health Care Whole. This important new resource provides much-needed definitions and charts a common language for addressing spiritual care across the disciplines of medicine, nursing, social work, chaplaincy, psychology, and other groups. It presents models of spiritual care that are broad and inclusive, and provides tools for screening, assessment, care planning, and interventions. This book also advocates a team approach to spiritual care, and specifies the roles of each professional on the team.
 
Serving as both a scholarly review of the field as well as a practical resource with specific recommendations to improve spiritual care in clinical practice, Making Health Care Whole will benefit hospices and palliative care programs in hospitals, home care services, and long-term care services. It will also be a valuable addition to the curriculum at seminaries, schools of theology, and medical and nursing schools.
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front cover of Values at the End of Life
Values at the End of Life
The Logic of Palliative Care
Roi Livne
Harvard University Press, 2019

This insightful study examines the deeply personal and heart-wrenching tensions among financial considerations, emotional attachments, and moral arguments that motivate end-of-life decisions.

America’s health care system was built on the principle that life should be prolonged whenever possible, regardless of the costs. This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living.

Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient’s suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means.

Once defiant of death—or even in denial—many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.

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