Lucid and compellingly written, Patricia Siplon has immersed herself in the history and ongoing firestorms of how AIDS policies are influenced, fought over, and enacted in the United States. AIDS and the Policy Struggle in the United States is equally as engrossing and as revealing in its own way as And the Band Played On. With an initial chapter that clearly follows the tangled historical string from the first realizations of a medical emergency to today's overwhelming worldwide epidemical crisis, she goes on to look at how medical treatments have changed and grown; how blood policies were formed; how value-based debates raged and continue to rage over prevention; how communities developed to first respond to the crisis, and later organized to fight for health care; and finally-now that AIDS is recognized for the global crisis it is-how foreign policy is being shaped.
Invaluable for activists and anyone involved in fighting for the humane treatment of people with HIV/AIDS around the world, this is also an important and insightful guide to the how and what of public policy as it is fashioned out of the clay of U.S. democratic institutions.
Do patients have the right to know their physician's HIV status?
Can a dentist refuse treatment to an HIV-positive patient?
How do educators determine whether to allow an HIV-positive child to attend school, and if they do, should the parents of other children be informed?
Should a counselor break confidentiality by disclosing to a wife that her husband is infected with HIV?
This collection of original essays carefully examines the difficult moral choices the AIDS pandemic has presented for many professionals—physicians, nurses, dentists, teachers and school administrators, business managers, psychotherapists, lawyers, clergy, journalists, and politicians. In the workplace, problems posed by HIV and AIDS have led to a reexamination of traditional codes of ethics. Providing systematic and reasoned discussions, the authors explore the moral, legal, and ethical issues involved in the reconsideration of policies, standards of conduct, and the practicality of balancing personal and professional ethics.
Contributors: Albert Flores, Joan C. Callahan, Jill Powell, Kenneth Kipnis, Al Gini, Howard Cohen, Martin Gunderson, Joseph A. Edelheit, Michael Pritchard, Vincent J. Samar, Sohair ElBaz, William Pardue, and the editors.
The deluge of metaphors triggered in 1981 in France by the first public reports of what would turn out to be the AIDS epidemic spread with far greater speed and efficiency than the virus itself. To understand why it took France so long to react to the AIDS crisis, AIDS in French Culture analyzes the intersections of three discourses—the literary, the medical, and the political—and traces the origin of French attitudes about AIDS back to nineteenth-century anxieties about nationhood, masculinity, and sexuality.
In the ten years since the first cases of AIDS were reported, the disease has spread around the world. Every country has had to come up with policies suited to its own conditions, economy, culture, and institutions. The differences among their approaches are striking. This volume, the first international comprehensive comparison of responses to AIDS, is a unique guide to the world's most urgent public health crisis.
Sixteen leading experts in public health, social science, government, and public policy from USA, Canada, Germany, Australia, Spain, Britain, France, the Netherlands, Denmark, Sweden, and Japan candidly recount and analyze the responses of their own nations and comment on the lessons that can be drawn from each country's experience. For each country, they look critically at the tragic statistics of AIDS incidence; the circumstances of AIDS's first appearance; public health traditions of mandatory screening, contact tracing, and quarantine; attitudes toward drug abuse, homosexuality, sex education; publicity about AIDS; legal and customary protections of civil rights, minority groups, medical confidentiality; access to health care and insurance; and the interplay of formal and informal interest groups in shaping policy. The spectrum of AIDS policy ranges from severe "contain-and-control" programs to much more liberal plans based on education, cooperation, and inclusion.
No matter what policy a nation has constructed to deal with AIDS, the coming decade will test how well that policy conforms to democratic ideals. By scrutinizing the responses to AIDS so far, this book aims to give countries around the world a chance to learn from each others' mistakes and triumphs. It will be essential reading for all students and professionals in public health and public policy.
Every minute a Nigerian man, woman, or child becomes infected with HIV. Soon Nigeria will be home to more people living with HIV than any other country in Africa. With 5 percent of its inhabitants already infected, Nigeria has reached the critical threshold that can catapult rates to nearly 40 percent of a country's population. The full magnitude of Nigeria's epidemic will be determined by its response now.
AIDS in Nigeria helps guide that response. Written by dozens of the country's leading HIV experts, the book explores the dynamics of the epidemic, analyzes prevention efforts, identifies crucial gaps, and formulates effective strategies for controlling the epidemic. Complementing the experts' words are the dramatic portraits of people whose lives have been forever transformed by AIDS. Their stories reveal the human costs of the epidemic--and the courage required to overcome it.
The impact of the AIDS pandemic on health systems and entire societies in the 1990s will be much more severe than it was in the last decade; up-to-date information about the disease is now crucial. Yet even though readers are deluged by technical publications and popularizations, no single book tracks, on an annual basis, the evolution of the pandemic, its effects, and the worldwide response.
To fill this gap, Jonathan Mann, founding director of the World Health Organization's Global Progam on AIDS and currently director of the International AIDS Center at Harvard University, has assembled a team of experts to produce an unprecedented document for our time. AIDS in the World will synthesize the best possible information, data, and thinking about AIDS into a volume that is destined to become a landmark publication. AIDS in the World will provide a vital guide to rekindling the worldwide assault on AIDS. To ensure that AIDS in the World 1992 is both timely and authoritative, the editors have enlisted the support of an extensive team of researchers, specialists, scientists, writers, and experts to provide a solid basis for new and original thinking on a wide range of topics.
This book reviews the status of the disease, including numbers of AIDS cases and deaths; AIDS and HIV prevalence; mortality rates; links between other infections and HlV breakthroughs in biomedical, clinical, and behavioral areas; prevention and care; legislation and human rights issues; and economic and demographic aspects. AIDS in the World 1992 provides a global assessment for where we are now and where we are headed; it spotlights critical issues and highlights communities and countries that may be especially vulnerable to the dissemination of HIV. With publication scheduled before the VIIIth International Conference on AIDS in July 1992, this work will be indispensable for governments, policymakers, scientists, health care workers, and journalists around the world who will rely on this book to make the crucial decisions of this decade and the next.
In recent years, the economy of the Caribbean has become almost completely dependent on international tourism. And today one of the chief ways that foreign visitors there seek pleasure is through prostitution. While much has been written on the female sex workers who service these tourists, Caribbean Pleasure Industry shifts the focus onto the men. Drawing on his groundbreaking ethnographic research in the Dominican Republic, Mark Padilla discovers a complex world where the global political and economic impact of tourism has led to shifting sexual identities, growing economic pressures, and new challenges for HIV prevention. In fluid prose, Padilla analyzes men who have sex with male tourists, yet identify themselves as “normal” heterosexual men and struggle to maintain this status within their relationships with wives and girlfriends. Padilla’s exceptional ability to describe the experiences of these men will interest anthropologists, but his examination of bisexuality and tourism as much-neglected factors in the HIV/AIDS epidemic makes this book essential to anyone concerned with health and sexuality in the Caribbean or beyond.
Based on the idea that the meanings of sickness—and health—are contestable and subject to controversy, Disease in the History of Modern Latin America displays the richness of an interdisciplinary approach to social and cultural history. Examining diseases in Mexico, Brazil, Argentina, Colombia, Peru, and Bolivia, the contributors explore the production of scientific knowledge, literary metaphors for illness, domestic public health efforts, and initiatives shaped by the agendas of international agencies. They also analyze the connections between ideas of sexuality, disease, nation, and modernity; the instrumental role of certain illnesses in state-building processes; welfare efforts sponsored by the state and led by the medical professions; and the boundaries between individual and state responsibilities regarding sickness and health. Diego Armus’s introduction contextualizes the essays within the history of medicine, the history of public health, and the sociocultural history of disease.
Contributors. Diego Armus, Anne-Emanuelle Birn, Kathleen Elaine Bliss, Ann S. Blum, Marilia Coutinho, Marcus Cueto, Patrick Larvie, Gabriela Nouzeilles, Diana Obregón, Nancy Lays Stepan, Ann Zulawski
Heterosexual Africa? The History of an Idea from the Age of Exploration to the Age of AIDS builds from Marc Epprecht’s previous book, Hungochani (which focuses explicitly on same-sex desire in southern Africa), to explore the historical processes by which a singular, heterosexual identity for Africa was constructed—by anthropologists, ethnopsychologists, colonial officials, African elites, and most recently, health care workers seeking to address the HIV/AIDS pandemic. This is an eloquently written, accessible book, based on a rich and diverse range of sources, that will find enthusiastic audiences in classrooms and in the general public.
Epprecht argues that Africans, just like people all over the world, have always had a range of sexualities and sexual identities. Over the course of the last two centuries, however, African societies south of the Sahara have come to be viewed as singularly heterosexual. Epprecht carefully traces the many routes by which this singularity, this heteronormativity, became a dominant culture. In telling a fascinating story that will surely generate lively debate, Epprecht makes his project speak to a range of literatures—queer theory, the new imperial history, African social history, queer and women’s studies, and biomedical literature on the HIV/AIDS pandemic. He does this with a light enough hand that his story is not bogged down by endless references to particular debates.
Heterosexual Africa? aims to understand an enduring stereotype about Africa and Africans. It asks how Africa came to be defined as a “homosexual-free zone” during the colonial era, and how this idea not only survived the transition to independence but flourished under conditions of globalization and early panicky responses to HIV/AIDS.
David Gere, who came of age as a dance critic at the height of the AIDS epidemic, offers the first book to examine in depth the interplay of AIDS and choreography in the United States, specifically in relation to gay men. The time he writes about is one of extremes. A life-threatening medical syndrome is spreading, its transmission linked to sex. Blame is settling on gay men. What is possible in such a highly charged moment, when art and politics coincide?
Gere expands the definition of choreography to analyze not only theatrical dances but also the protests conceived by ACT-UP and the NAMES Project AIDS quilt. These exist on a continuum in which dance, protest, and wrenching emotional expression have become essentially indistinguishable. Gere offers a portrait of gay male choreographers struggling to cope with AIDS and its meanings.
The AIDS epidemic soured the memory of the sexual revolution and gay liberation of the 1970s, and prominent politicians, commentators, and academics instructed gay men to forget the sexual cultures of the 1970s in order to ensure a healthy future. But without memory there can be no future, argue Christopher Castiglia and Christopher Reed in this exploration of the struggle over gay memory that marked the decades following the onset of AIDS.
Challenging many of the assumptions behind first-wave queer theory, If Memory Serves offers a new perspective on the emergence of contemporary queer culture from the suppression and repression of gay memory. Drawing on a rich archive of videos, films, television shows, novels, monuments, paintings, and sculptures created in the wake of the epidemic, the authors reveal a resistance among critics to valuing—even recognizing—the inscription of gay memory in art, literature, popular culture, and the built environment. Castiglia and Reed explore such topics as the unacknowledged ways in which the popular sitcom Will and Grace circulated gay subcultural references to awaken a desire for belonging among young viewers; the post-traumatic (un)rememberings of queer theory; and the generation of “ideality politics” in the art of Félix González-Torres, the film Chuck & Buck, and the independent video Video Remains.
Inspired by Alasdair MacIntyre’s insight that “the possession of a historical identity and the possession of a social identity coincide,” Castiglia and Reed demonstrate that memory is crafted in response to inadequacies in the present—and therefore a constructive relation to the past is essential to the imagining of a new future.
What do ordinary women in an African city do in the face of “serious enough” infections in themselves and signs of acute illness in their young children? How do they manage? What does it take to get by? How do they maintain the wellbeing of the household in a setting without what would be considered as basic health provision in an American or European city?
Professor Wallman focuses on women in a densely-populated part of Kampala called Kamwokya. With the help of a team of Ugandans and non-Ugandans, a vivid picture emerges, enhanced by color photographs, sketches and maps.
Women are largely responsible for the management of illness in all members of the family. Young children are at particular risk and the women have to take the first crucial decisions about treatment. Formal health resources are scarce and so they most often resort to an extraordinary range of treatments provided in the informal economy. A holistic picture of all the options that local people recognize is drawn, and an enriched understanding of problems and opportunities for health care in tropical cities emerges.
Multidisciplinary work on sexually transmitted disease is rare, even in this time of AIDS, and the book effectively maps the social contexts of its perception and management. Moreover, it focuses on women as ordinary citizens, selected by residence and not by reference to known medical conditions or high risk behavior. It is important too that the field strategies have encouraged local informants to become active participants in the definition of local problems and their solutions.
In Paris in 1954, a young man named André Baudry founded Arcadie, an organization for “homophiles” that would become the largest of its kind that has ever existed in France, lasting nearly thirty years. In addition to acting as the only public voice for French gays prior to the explosion of radicalism of 1968, Arcadie—with its club and review—was a social and intellectual hub, attracting support from individuals as diverse as Jean Cocteau and Michel Foucault and offering support and solidarity to thousands of isolated individuals. Yet despite its huge importance, Arcadie has largely disappeared from the historical record.
The main cause of this neglect, Julian Jackson explains in Living in Arcadia, is that during the post-Stonewall era of queer activism, Baudry’s organization fell into disfavor, dismissed as conservative, conformist, and closeted. Through extensive archival research and numerous interviews with the reclusive Baudry, Jackson challenges this reductive view, uncovering Arcadie’s pioneering efforts to educate the European public about homosexuality in an era of renewed repression. In the course of relating this absorbing history, Jackson offers a startlingly original account of the history of homosexuality in modern France.
This landmark book is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. Loss within Loss stands as a powerful reminder of the devastating impact of the AIDS epidemic on the arts community and as the first real survey of that devastation. Though these accounts are often intensely sad, Loss within Loss is an invigorating, sometimes even exuberant, testimony to the sheer joy of being an artist . . . and being alive.
An updated edition of this essential work.
Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.
“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewWinner of the Gustavus Myers Prize for the Study of Human RightsISBN 0-8166-3024-0 Cloth $39.95xx CUSAISBN 0-8166-3025-9 Paper $16.95x CUSA000 pages 0 x 0 MarchMedia Studies/Social TheoryPolicing DesirePornography, AIDS and the MediaThird EditionSimon WatneyAn updated edition of this essential work. Since its initial publication, Policing Desire has proved to be an unparalleled analysis of “the cacophony of voices which sounds through every institution of our society on the subject of AIDS.” For the third edition Simon Watney has provided a new preface, a compelling new concluding essay, and a directory for AIDS information that includes electronic resources.“A far-reaching analysis of images of AIDS and homosexuality in the media. . . . In Policing Desire, Simon Watney called the media on its own game, and the media actually changed its coverage of AIDS and queer issues.” Voice Literary Supplement“Simon Watney’s Policing Desire is essential reading for anyone who wants to press the question of how the media represents AIDS . . . it will stand as a great work of criticism written from the trenches.” New York Native“A landmark work in AIDS analysis because of the combination of emotional urgency and analytical insight that it manifests.” American Book ReviewSimon Watney is the director of the Red Hot AIDS Charitable Trust, which distributes funds internationally for HIV/AIDS prevention and education. Watney lives in London, England.Preaching Prevention examines the controversial U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) initiative to “abstain and be faithful” as a primary prevention strategy in Africa. This ethnography of the born-again Christians who led the new anti-AIDS push in Uganda provides insight into both what it means for foreign governments to “export” approaches to care and treatment and the ways communities respond to and repurpose such projects. By examining born-again Christians’ support of Uganda’s controversial 2009 Anti-Homosexuality Bill, the book’s final chapter explores the enduring tensions surrounding the message of personal accountability heralded by U.S. policy makers.
Preaching Prevention is the first to examine the cultural reception of PEPFAR in Africa. Lydia Boyd asks, What are the consequences when individual responsibility and autonomy are valorized in public health initiatives and those values are at odds with the existing cultural context? Her book investigates the cultures of the U.S. and Ugandan evangelical communities and how the flow of U.S.-directed monies influenced Ugandan discourses about sexuality and personal agency. It is a pioneering examination of a global health policy whose legacies are still unfolding.
Challenging the entrenched media politics of who gets to speak, how, and to whom, Hallas offers a bold reconsideration of the intersubjective relations that connect filmmakers, subjects, and viewers. He explains how queer testimony reframes AIDS witnesses and their speech through its striking combination of direct address and aesthetic experimentation. In addition, Hallas engages recent historical changes and media transformations that have not only displaced queer AIDS media from activism to the archive, but also created new witnessing dynamics through the logics of the database and the remix. Reframing Bodies provides new insight into the work of Gregg Bordowitz, John Greyson, Derek Jarman, Matthias Müller, and Marlon Riggs, and offers critical consideration of important but often overlooked filmmakers, including Jim Hubbard, Jack Lewis, and Stuart Marshall.
Risky Rhetoric: AIDS and the Cultural Practices of HIV Testing is the first book-length study of the rhetoric inherent in and surrounding HIV testing. In addition to providing a history of HIV testing in the United States from 1985 to the present, J. Blake Scott explains how faulty arguments about testing’s power and effects have promoted unresponsive and even dangerous testing practices for so-called healthy subjects as well as those deemed risky.A new afterword to the paperback edition discusses changes in testing technology, treatments, and public health responses in the last ten years. The ultimate goal of Risky Rhetoric is to offer strategies to policy makers, HIV educators and test counselors, and other rhetors for developing more responsive and egalitarian testing-related rhetorics and practices.
Starting at the beginning of the twentieth century, Albuquerque examines the way the Modernist movement both fueled and inhibited the use of gay imagery in Brazilian drama. This elegant and fluid study ultimately becomes an examination of a whole Latin society, and the ways in which Latin theatre has absorbed and reflected the culture's own changing sensibilities, that will intrigue anyone interested in Latin American culture, literature, or theater.
Winner, 2008 Elizabeth A. Steinberg Prize
Delves deep into the archives that keep the history and work of AIDS activism alive
Serving as a vital supplement to the existing scholarship on AIDS activism of the 1980s and 1990s, ViralCultures is the first book to critically examine the archives that have helped preserve and create the legacy of those radical activities. Marika Cifor charts the efforts activists, archivists, and curators have made to document the work of AIDS activism in the United States and the infrastructure developed to maintain it, safeguarding the material for future generations to remember these social movements and to revitalize the epidemic’s past in order to remake the present and future of AIDS.
Drawing on large institutional archives such as the New York Public Library, as well as those developed by small, community-based organizations, this work of archival ethnography details how contemporary activists, artists, and curators use these records to build on the cultural legacy of AIDS activism to challenge the conditions of injustice that continue to undergird current AIDS crises. Cifor analyzes the various power structures through which these archives are mediated, demonstrating how ideology shapes the nature of archival material and how it is accessed and used. Positioning vital nostalgia as both a critical faculty and a generative practice, this book explores the act of saving this activist past and reanimating it in the digital age.
While many books, popular films, and major exhibitions have contributed to a necessary awareness of HIV and AIDS activism, Viral Cultures provides a crucial missing link by highlighting the powerful role of archives in making those cultural moments possible.
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