A SCHOLARLY BOOK REPOSITORY
A volume in the American Literatures Initiative
What is the direct impact that disability studies has on the lives of disabled people today? The editors and contributors to this essential anthology, Barriers and Belonging, provide thirty-seven personal narratives thatexplore what it means to be disabled and why the field of disability studies matters.
The editors frame the volume by introducing foundational themes of disability studies. They provide a context of how institutions—including the family, schools, government, and disability peer organizations—shape and transform ideas about disability. They explore how disability informs personal identity, interpersonal and community relationships, and political commitments. In addition, there are heartfelt reflections on living with mobility disabilities, blindness, deafness, pain, autism, psychological disabilities, and other issues. Other essays articulate activist and pride orientations toward disability, demonstrating the importance of reframing traditional narratives of sorrow and medicalization.
The critical, self-reflective essays in Barriers and Belonging provide unique insights into the range and complexity of disability experience.
The book provides a provocative range of topics and perspectives: the absence of physical "otherness" in Ancient Greece, the depiction of the female invalid in Victorian literature, the production of tragic innocence in British and American telethons, the reconstruction of Civil War amputees, and disability as the aesthetic basis for definitions of expendable life within the modern eugenics movement. With this new, secure anchoring in the humanities, disability studies now emerges as a significant strain in contemporary theories of identity and social marginality.
Moving beyond the oversimplication that disabled people are marginalized and made invisible by able-ist assumptions and practices, the contributors demonstrate that representation is founded upon the perpetual exhibition of human anomalies. In this sense, all art can be said to migrate toward the "freakish" and the "grotesque." Such a project paradoxically makes disability the exception and the rule of the desire to represent that which has been traditionally out-of-bounds in polite discourse.
The Body and Physical Difference has relevance across a wide range of academic specialties such as cultural studies, the sociology of medicine, history, literature and medicine, the allied health professions, rehabilitation, aesthetics, philosophical discourses of the body, literary and film studies, and narrative theory.
David T. Mitchell is Assistant Professor of English, Northern Michigan University. Sharon L. Snyder teaches film and literature at Northern Michigan University.
Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.
The ten stories in Deaf Identities in the Making reveal deaf people who would like a stronger link to the Deaf world. Each story sheds different light on the overriding, empowering master narrative that has become an integral feature of the deaf community. Like success stories from other minorities, the Deaf life story reinforces the collective empowerment process in a Deaf social milieu. Because of these revelations, Breivik’s findings easily reverberate globally in conjunction to the striking similarities of deaf lives around the world, particularly those connected with the experiences of being translocal signers who have struggled for identity in an overwhelmingly hearing context.
Passing—an act usually associated with disguising race—also relates to disability. Whether a person classified as mentally ill struggles to suppress aberrant behavior to appear "normal" or a person falsely claims a disability to gain some advantage, passing is a pervasive and much discussed phenomenon. Nevertheless, Disability and Passing is the first anthology to examine this issue.
The editors and contributors to this volume explore the intersections of disability, race, gender, and sexuality as these various aspects of identity influence each other and make identity fluid. They argue that the line between disability and normality is blurred, discussing disability as an individual identity and as a social category. And they discuss the role of stigma in decisions about whether or not to pass.
Focusing on the United States from the nineteenth century to the present, the essays in Disability and Passing speak to the complexity of individual decisions about passing and open the conversation for broader discussion.
Contributors include: Dea Boster, Allison Carey, Peta Cox, Kristen Harmon, David Linton, Michael Rembis, and the editors.
The editors and contributors provide a careful analysis of the intersection of disability, the environment, and colonialism to understand issues such as eco-ableism, environmental degradation, homogenized approaches to environmentalism, and climate change. They also look at the body as a site of colonial oppression and environmental exploitation.
Contributors: Holly Caldwell, Matthew J. C. Cella, John Gulledge, Memona Hossain, Nancy J. Hirschmann, Iain Hutchison, Andrew B. Jenks, Suha Kudsieh, Gordon M. Sayre, Jessica A. Schwartz, Anna Stenning, Aubrey Tang, Alice Wexler, and the editor.
"Disability Theory is just the book we've been waiting for. Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."
---Michael Bérubé, Pennsylvania State University
"Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."
---Michael Davidson, University of California, San Diego
"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."
---Helen Deutsch, University of California, Los Angeles
Intelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.
Tobin Siebers is V. L. Parrington Collegiate Professor, Professor of English Language and Literature, and Professor of Art and Design at the University of Michigan.
A volume in the series Corporealities: Discourses of Disability
Illustration: Pattern by Riva Lehrer, acrylic on panel, 18" X 24", 1995
Each chapter explores a different facet of the war and masculinity in depth. Joanna Bourke discovers that those who were dismembered and disabled by the war were not viewed as passive or weak, like their civilian counterparts, but were the focus of much government and public sentiment. Those suffering from disease were viewed differently, often finding themselves accused of malingering.
Joanna Bourke argues convincingly that military experiences led to a greater sharing of gender identities between men of different classes and ages. Dismembering the Male concludes that ultimately, attempts to reconstruct a new type of masculinity failed as the threat of another war, and with it the sacrifice of a new generation of men, intensified.
In an era when human lives are increasingly measured and weighed in relation to the medical and scientific, notions of what is “normal” have changed drastically. While it is no longer useful to think of a person’s particular race, gender, sexual orientation, or choice as “normal,” the concept continues to haunt us in other ways. In The End of Normal, Lennard J. Davis explores changing perceptions of body and mind in social, cultural, and political life as the twenty-first century unfolds. The book’s provocative essays mine the worlds of advertising, film, literature, and the visual arts as they consider issues of disability, depression, physician-assisted suicide, medical diagnosis, transgender, and other identities.
Using contemporary discussions of biopower and biopolitics, Davis focuses on social and cultural production—particularly on issues around the different body and mind. The End of Normal seeks an analysis that works comfortably in the intersection between science, medicine, technology, and culture, and will appeal to those interested in cultural studies, bodily practices, disability, science and medical studies, feminist materialism, psychiatry, and psychology.
Foucault and the Government of Disability is the first book-length investigation of the relevance and importance of the ideas of Michel Foucault to the field of disability studies-and vice versa. Over the last thirty years, politicized conceptions of disability have precipitated significant social change, including the landmark Americans with Disabilities Act in 1990, the redesign of urban landscapes, the appearance of closed-captioning on televisions, and the growing recognition that disabled people constitute a marginalized and disenfranchised constituency.
The provocative essays in this volume respond to Foucault's call to question what is regarded as natural, inevitable, ethical, and liberating, while they challenge established understandings of Foucault's analyses and offer fresh approaches to his work. The book's roster of distinguished international contributors represents a broad range of disciplines and perspectives, making this a timely and necessary addition to the burgeoning field of disability studies.
“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.”
—Foucault Studies
“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability."
—Essays in Philosophy
“A beautiful exploration of how Foucault’s analytics of power and genealogies of discursive knowledges can open up new avenues for thinking critically about phenomena that many of us take to be inevitable and thus new ways of resisting and possibly at times redirecting the forces that shape our lives. Every scholar, every person with an interest in Foucault or in political theory generally, needs to read this book.”
—Ladelle McWhorter, University of Richmond
Disability and gender, terms that have previously seemed so clear-cut, are becoming increasingly complex in light of new politics and scholarship. These words now suggest complicated sets of practices and ways of being.
Contributors to this innovative collection explore the intersection of gender and disability in the arts, consumer culture, healing, the personal and private realms, and the appearance of disability in the public sphere—both in public fantasies and in public activism. Beginning as separate enterprises that followed activist and scholarly paths, gender and disability studies have reached a point where they can move beyond their boundaries for a common landscape to inspire new areas of inquiry. Whether from a perspective in the humanities, social sciences, sciences, or arts, the shared subject matter of gender and disability studies—the body, social and cultural hierarchy, identity, discrimination and inequality, representation, and political activism—insistently calls for deeper conversation. This volume provides fresh findings not only about the discrimination practiced against women and people with disabilities, but also about the productive parallelism between these two categories.
Brueggemann’s assault upon this long-standing rhetorical conceit is both erudite and personal; she writes both as a scholar and as a hard-of-hearing woman. In this broadly based study, she presents a profound analysis and understanding of this rhetorical tradition’s descendent disciplines (e.g., audiology, speech/language pathology) that continue to limit deaf people. Next to this even-handed scholarship, she juxtaposes a volatile emotional counterpoint achieved through interviews with Deaf individuals who have faced rhetorically constructed restrictions, and interludes of her own poetry and memoirs.
The energized structure of Lend Me Your Ear galvanizes new thought on the rhetoric surrounding Deaf people by posing basic questions from a rhetorical context: How is deafness constructed as a disability, pathology, or culture through the institutions of literacy education and science/technology, and how do these constructions fit with those of deaf people themselves? The rhetoric of deafness as pathology is associated with the conventional medical and scientific establishments, and literacy education fosters deafness as disability, both dependent upon the premise that speech drives communication. This kinetic study demands consideration of deafness in terms of the rhetoric of Deaf culture, American Sign Language (ASL), and the political activism of Deaf people. Brueggemann argues strenuously and successfully for a reevaluation of the speech model of rhetoric in light of the singular qualities of ASL poetry, a genre that adds the dimension of space and is not disembodied. Ironically, without a word being spoken or printed, ASL poetry returns to the fading, prized oral tradition of poets such as Homer. The speech imperative in traditional rhetoric also fails to present rhetorical forms for listening, or a rhetoric of silence. These and other break-out concepts introduced in Lend Me Your Ear that will stimulate scholars and students of rhetoric, language, and Deaf studies to return to this intriguing work again and again.
The collection covers a broad range of subjects and concerns that lie at the intersection of disability and the arts, including fetal alcohol syndrome, education, and identity; representations of disability in the visual arts and the complicated position of the disabled spectator; the impact of cancer on the patient and the caregiver; the similarities between beauty pageants and freak shows; Alzheimer's disease; prosthetic devices; the mechanized disabled body; disability and performance; and profiles of Helen Keller and Annie Sullivan, Christopher Reeve, Franklin Roosevelt, and sado-masochistic performance artist Bob Flanagan.
Points of Contact: Disability, Art, and Culture was originally published as a special double issue of the well regarded literary magazine, the Michigan Quarterly Review. Now available in a single, convenient paperback volume, its broad range of perspectives on disability and its entertaining and engaging selections will appeal to general readers, scholars, and students alike.
Susan Crutchfield is lecturer in English, University of Michigan. Marcy Epstein teaches literature at The Roeper School and women's studies at Henry Ford Community College.
To call into question why certain bodies invite the label “problem” more frequently than other bodies, the contributors draw on scholarship from feminist, race, queer, cultural studies, disability, and film studies arenas. In Chivers and Markotic’s introduction, they draw on disability theory and a range of cinematic examples to explain the term “problem body” in relation to its projection. In explorations of film noir, illness narratives, classical Hollywood film, and French film, the essays reveal the “problem body” as a multiplication of lived circumstances constructed both physically and socially.
Richard III will always be central to English disability history as both man and myth—a disabled medieval king made into a monster by his nation’s most important artist.
In Richard III’s Bodies from Medieval England to Modernity, Jeffrey Wilson tracks disability over 500 years, from Richard’s own manuscripts, early Tudor propaganda, and x-rays of sixteenth-century paintings through Shakespeare’s soliloquies, into Samuel Johnson’s editorial notes, the first play produced by an African American Theater company, Freudian psychoanalysis, and the rise of disability theater. For Wilson, the changing meanings of disability created through shifting perspectives in Shakespeare’s plays prefigure a series of modern attempts to understand Richard’s body in different disciplinary contexts—from history and philosophy to sociology and medicine.
While theorizing a role for Shakespeare in the field of disability history, Wilson reveals how Richard III has become an index for some of modernity’s central concerns—the tension between appearance and reality, the conflict between individual will and external forces of nature and culture, the possibility of upward social mobility, and social interaction between self and other, including questions of discrimination, prejudice, hatred, oppression, power, and justice.
What happens when cochlear implants, heralded as the first successful bionic technologies, make their way around the globe and are provided by both states and growing private markets? As Sensory Futures follows these implants from development to domestication and their unequal distribution in India, Michele Ilana Friedner explores biotechnical intervention in the realm of disability and its implications for state politics in the Global South.
A signing and speaking deaf bilateral cochlear implant user, Friedner weaves personal reflections into this fine-grained ethnography of everyday negotiations, activist aspirations, and the space of the family. She places sensory anthropology in conversation with disability studies to analyze how normative sensoria are cultivated and the pursuit of listening and speaking capability is enacted. She argues that the conditions of potentiality that have emerged through cochlear implantation have, in fact, resulted in ever narrower understandings of future life possibilities. Rejecting sensory hierarchies that privilege audition, Friedner calls for multisensory, multimodal, and multipersonal ways of relating to the world.
Sensory Futures explores deaf people’s desires to create habitable worlds and grapple with what their futures might look like, in India and beyond, amid a surge in both biotechnical interventions and disability rights activism. With implications for a broad range of disability experiences, this sensitive, in-depth research focuses on the specific experiences of deaf people, both children and adults, and the structural, political, and social possibilities offered by both biotechnological and social “cures.”
Contributors. Chris Bell, Michael Davidson, Lennard J. Davis, Michel Desjardins, Lezlie Frye, Rachael Groner, Kristen Harmon, Michelle Jarman, Alison Kafer, Riva Lehrer, Nicole Markotić, Robert McRuer, Anna Mollow, Rachel O’Connell, Russell Shuttleworth, David Serlin, Tobin Siebers, Abby L. Wilkerson
Engaging interdisciplinary conversations from the rhetoric of health and medicine, disability studies, narrative medicine, and sociology, Kessler takes an innovative look at how stigma functions on individual, interpersonal, and societal levels. In doing so, Kessler reveals how stories and lived experiences have much to teach us not only about how stigma functions but also about how it can be dismantled.
Developing a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human
Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling, Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood.
Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic—texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life.
Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as “quality of life” to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts.
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