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Racing to a Cure
A Cancer Victim Refuses Chemotherapy and Finds Tomorrow's Cures in Today's Scientific Laboratories
Neil Ruzic
University of Illinois Press, 2003
Racing to a Cure is not a cancer memoir. It is a cancer cure memoir. In 1998 Neil Ruzic was diagnosed with mantle-cell lymphoma, the deadliest cancer of the lymph system, whose spread is reaching epidemic levels in the U.S. and Europe. Instead of following recommended courses of chemotherapy and radiation, he took control of his treatment by investigating cures being developed in the nation's cancer-research laboratories.

Although chemotherapy harms the immune system and is increasingly demonstrated to be an ineffective long-term cure for the vast majority of cancers, it remains the standard treatment for most cancer patients. Ruzic, a former scientific magazine publisher and originator of a science center, refused to accept this status quo, and instead plunged into the world of cutting-edge treatments, exploring the frontiers of cancer science with revolutionary results.

Ruzic went on the offensive: visiting scores of laboratories, gathering information, talking to researchers, and effectively becoming his own patient-care advocate. This book presents his findings. A scathing critique of the chemotherapy culture as well as unscientific "alternative" therapies, the book endorses state-of-the-art molecularly based technologies, making it an illuminating and necessary read for anyone interested in cancer research, especially patients and their families and physicians.

Neil Ruzic was expected to die within two years of his initial diagnosis. Five years later he has been declared cancer-free and considers himself cured.

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Radical Health
Unwellness, Care, and Latinx Expressive Culture
Julie Avril Minich
Duke University Press, 2023
In Radical Health Julie Avril Minich examines the potential of Latinx expressive culture to intervene in contemporary health politics, elaborating how Latinx artists have critiqued ideologies of health that frame wellbeing in terms of personal behavior. Within this framework, poor health—obesity, asthma, diabetes, STIs, addiction, and high-risk pregnancies—is attributed to irresponsible lifestyle choices among the racialized poor. Countering this, Latinx writers and visual artists envision health not as individual duty but as communal responsibility. Bringing a disability justice approach to questions of health access and equity, Minich locates a concept of radical health within the work of Latinx artists, including the poetry of Rafael Campo, the music of Hurray for the Riff Raff, the fiction of Angie Cruz, and the performance art of Virginia Grise. Radical health operates as a modality that both challenges the stigma of unhealth and protests the social conditions that give rise to racial health disparities. Elaborating on this modality, Minich claims a critical role for Latinx artists in addressing the structural racism in public health. 
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Realized Religion
Relationship Between Religion & Health
Theodore J. Chamberlain
Templeton Press, 2001

 

Realized Religion includes research that investigates the impact of spirituality in health and healing, faith healing, religion and mental health, religion and life satisfaction, religion and mental disorders, religion and martial satisfaction, the effect of religion on suicide, and the effect of religion on alcohol use and abuse. This book documents over 300 scientific studies published by reputable scientific journals demonstrating that religion has an ameliorating effect on the survival rate of surgical patients, on depression and anxiety, on suicide rates, and on promotion of a healthy lifestyle.

Realized Religion presents useful and helpful information to researchers and scholars who seek to understand the subtle connection between healing and spirituality. It will be an invaluable resource for libraries and others interested in the emerging field of spirituality and healing.

 

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Reinsuring Health
Why More Middle-Class People Are Uninsured and What Government Can Do
Katherine Swartz
Russell Sage Foundation, 2006
America's current system of health insurance, which relies almost exclusively on employer-sponsored coverage, is in danger of collapse, and this problem is not limited to the poor and working class. An increasing number of middle class Americans do not have employer-provided insurance and—due to skyrocketing premiums—cannot afford to purchase coverage for themselves. Reinsuring Health, by economist Katherine Swartz, examines this growing national crisis and outlines a concrete plan to make health insurance accessible and affordable for all Americans. Reinsuring Health documents why the number of uninsured Americans—now 45.5 million people—has grown in the last twenty-five years. Swartz focuses on how labor market changes—such as the decline of domestic manufacturing, decreased unionization, and the growth of non-standard work arrangements—have led U.S. employers to retreat from providing health insurance for their workers. These trends, combined with the increasing costs of medical care, have led to an explosion in health insurance premiums and a decline in coverage, particularly among the middle-class. Since those who seek insurance as individuals are generally most likely to need health care, private insurers charge higher premiums in the individual (non-group) markets than to people who obtain group insurance. This makes individual health insurance less attractive to the young and increasingly unaffordable for middle-class Americans. Similarly, insurers charge higher per person (or per family) premiums to small firms than to large companies, so many small firms do not sponsor coverage for their employees. Reinsuring Health shows how these problems can be overcome if the federal government provides a new reinsurance program which would protect insurance companies that provide small group and individual health insurance against the possibility that their policy-holders will incur very high medical expenses. By assuming some of the risk that people will face extremely costly medical bills, the government will make insurers less hesitant to offer coverage to high-risk individuals, and will help drive down premiums for others. Reinsuring Health demonstrates that this form of government reinsurance has worked in the past, helping to establish smooth running private markets for catastrophe insurance and secondary mortgages. Today, growing numbers of middle class Americans lack health insurance. Protection against the possibility of falling ill or getting hurt and having to pay extraordinary health care bills should not be a luxury available only to the very rich and the very poor. Reinsuring Health proposes a straightforward solution that would bring health insurance back within the reach of the increasing ranks of the uninsured, particularly those who are in the middle class.
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Religion, Families, and Health
Population-Based Research in the United States
Ellison, Christopher G
Rutgers University Press, 2010
Religion is a major social institution in the United States.  While the scientific community has experienced a resurgence in the idea that there are important linkages between religion and family life and religion and health outcomes, this area of study is still in its early stages of development, scattered across multiple disciplines, and of uneven quality.  To date, no book has featured both reviews of the literature and new empirical findings that define this area for the present and set the agenda for the twenty-first century.  Religion, Families, and Health fills this void by bringing together leading social scientists who provide a theoretically rich, methodologically rigorous, and exciting glimpse into a fascinating social institution that continues to be extremely important in the lives of Americans.
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Remaking the Urban Social Contract
Health, Energy, and the Environment
Edited by Michael A. Pagano
University of Illinois Press, 2016
This new volume draws from provocative discussions on the urban social contract among policy makers, researchers, public intellectuals, and citizens at the 2015 UIC Urban Forum. Michael A. Pagano presents papers that emphasize political agreements, disagreements, challenges, and controversies on health, energy, and environmental policies. Authors explore the substantive and philosophical changes in the urban social contract and offer proposals for remaking it in the new century. Topics range from big-picture analyses to specifics covering areas like public services, the smart cities movement, and greening strategies.

Contributors: Alba Alexander, Megan Houston, Dennis R. Judd, Cynthia Klein-Banai, William C. Kling, Howard A. Learner, David A. McDonald, David C. Perry, Emily Stiehl, Anthony Townsend, Natalia Villamizar-Duarte, and Moira Zellner.

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Resemblance and Disgrace
Alexander Pope and the Deformation of Culture
Helen Deutsch
Harvard University Press, 1996
Like the miniatures of which Pope was so fond, the book is at once particular in its focus and wide-ranging in its conceptual scope. While drawing on recent feminist, historicist, and materialist criticism of Pope, as well as current theoretical work on the body, it also attends closely to the local ambiguities of the poet’s texts and cultural milieu, details often lost to critical view. The result is a revitalized—and broadened—reading of Pope, and of our understanding of the processes of authorship. By focusing on the process by which ideas of authority and authenticity took shape at specific moments in Pope’s career, Resemblance and Disgrace calls into question distinctions between theoretical abstractions and material details, between literary originality and critical derivation, following Pope’s own example of rewriting intellectual boundaries as creative opportunities.
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Revolutionary Medicine
Health and the Body in Post-Soviet Cuba
P. Sean Brotherton
Duke University Press, 2012
Revolutionary Medicine is a richly textured examination of the ways that Cuba's public health care system has changed during the past two decades and of the meaning of those changes for ordinary Cubans. Until the Soviet bloc collapsed in 1989, socialist Cuba encouraged citizens to view access to health care as a human right and the state's responsibility to provide it as a moral imperative. Since the loss of Soviet subsidies and the tightening of the U.S. economic embargo, Cuba's government has found it hard to provide the high-quality universal medical care that was so central to the revolutionary socialist project. In Revolutionary Medicine, P. Sean Brotherton deftly integrates theory and history with ethnographic research in Havana, including interviews with family physicians, public health officials, research scientists, and citizens seeking medical care. He describes how the deterioration of health and social welfare programs has led Cubans to seek health care through informal arrangements, as well as state-sponsored programs. Their creative, resourceful pursuit of health and well-being provides insight into how they navigate, adapt to, and pragmatically cope with the rapid social, economic, and political changes in post-Soviet Cuba.
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Rhetoric of Health and Medicine As/Is
Theories and Approaches for the Field
Lisa Melonçon, S. Scott Graham, Jenell Johnson, John A. Lynch, and Cynthia Ryan
The Ohio State University Press, 2020
The rhetoric of health and medicine (RHM) is a growing and vibrant area of inquiry incorporating scholars working across a variety of fields and disciplines. While this makes it a source for rich and innovative scholarship, this emerging field is in need of a guiding text that can bring together the disparate work spread across multiple disciplines and institutional spaces. Rhetoric of Health and Medicine As/Is: Theories and Approaches for the Field answers this call by providing an in-depth and wide-reaching analysis of the state of the rhetoric of health and medicine and offering core concepts and critical theories to ground research moving forward.
 
With a foreword by Judy Segal and in sections that address interdisciplinary perspectives, representations of health and illness in online spaces, and health activism and advocacy, this volume proceeds in a unique format: essays tackle these key topic areas through case studies ranging from food and its relation to public health, to apps that track fertility, to mental health and disability, to racial disparities that exist in public health campaigns about sudden infant death syndrome (SIDS). The essays within each section are then followed by responses from prominent scholars in the rhetoric of health and medicine—including John Lyne, J. Blake Scott, and Lisa Keränen—who take on the central theme and discuss how the theory or concept under study can and should evolve in the next stages of research. Unifying the essays is a consideration of RHM as a theoretical construct guiding research and thinking alongside the conceptual parameters that constitute what RHM is and can be in practice. In asking questions about the role of rhetoric—both as 
analytic and productive framework—in health and medicine, this volume engages with broader theoretical and ethical concerns about our current healthcare system and how healthcare and medical issues circulate in all the social, cultural, economic, and political aspects of our world.
 
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A Right to Health
Medicine, Marginality, and Health Care Reform in Northeastern Brazil
By Jessica Scott Jerome
University of Texas Press, 2015

In 1988, a new health care system, the Sistema Único de Saúde (Unified Health Care System or SUS) was formally established in Brazil. The system was intended, among other goals, to provide universal access to health care services and to redefine health as a citizen’s right and a duty of the state. A Right to Health explores how these goals have unfolded within an urban peripheral community located on the edges of the northeastern city of Fortaleza. Focusing on the decade 1998–2008 and the impact of health care reforms on one low-income neighborhood, Jessica Jerome documents the tensions that arose between the ideals of the reforms and their entanglement with pervasive socioeconomic inequality, neoliberal economic policy, and generational tension with the community.

Using ethnographic and historical research, the book traces the history of political activism in the community, showing that, since the community’s formation in the early 1930s, residents have consistently fought for health care services. In so doing, Jerome develops a multilayered portrait of urban peripheral life and suggests that the notion of health care as a right of each citizen plays a major role not only in the way in which health care is allocated, but, perhaps more importantly, in how health care is understood and experienced.

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The Running Body
A Memoir
Emily Pifer
Autumn House Press, 2022
A memoir of addiction, body image, and healing, through the lens of a long-distance runner.
 
Emily Pifer’s debut memoir, The Running Body, wrestles and reckons with power and agency, language and story, body dysphoria and beauty standards, desire and addiction, loss and healing. Pifer employs multiple modes of storytelling—memoir, meditation, and cultural analysis—interweaving research, argument, and experience as she describes how, during her time as a collegiate distance runner, she began to run more while eating less. Many around her, including her coaches, praised her for these practices. But as she became faster, and as her body began to resemble the bodies that she had seen across start-lines and on the covers of running magazines, her bones began to fracture. Pifer tells her story alongside the stories of her teammates, competitors, and others as they all face trouble regarding their bodies.

Through the lens of long-distance running, Pifer examines the effects of idolization and obsession, revealing the porous boundaries between what counts as success and what is considered failure. While grounded in truth, The Running Body interrogates its relationship to magical thinking, the stories we tell ourselves, and the faultiness of memory. Fractures, figurative and literal, run through the narrative as Pifer explores the ways bodies become entangled in stories.
 
The Running Body was selected by Steve Almond as the winner of the 2021 Autumn House Nonfiction Prize.
 
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