This illustrated collection of annotated newspaper articles and memorials by Dorothea Dix provides a forum for the great mid-nineteenth-century humanitarian and reformer to speak for herself.
Dorothea Lynde Dix (1802–87) was perhaps the most famous and admired woman in America for much of the nineteenth century. Beginning in the early 1840s, she launched a personal crusade to persuade the various states to provide humane care and effective treatment for the mentally ill by funding specialized hospitals for that purpose. The appalling conditions endured by most mentally ill inmates in prisons, jails, and poorhouses led her to take an active interest also in prison reform and in efforts to ameliorate poverty.
In 1846–47 Dix brought her crusade to Illinois. She presented two lengthy memorials to the legislature, the first describing conditions at the state penitentiary at Alton and the second discussing the sufferings of the insane and urging the establishment of a state hospital for their care. She also wrote a series of newspaper articles detailing conditions in the jails and poorhouses of many Illinois communities.
These long-forgotten documents, which appear in unabridged form in this book, contain a wealth of information on the living conditions of some of the most unfortunate inhabitants of Illinois. In his preface, David L. Lightner describes some of the vivid images that emerge from Dorothea Dix's descriptions of social conditions in Illinois a century and a half ago: "A helpless maniac confined throughout the bitter cold of winter to a dark and filthy pit. Prison inmates chained in hallways and cellars because no more men can be squeezed into the dank and airless cells. Aged paupers auctioned off by county officers to whoever will maintain them at the lowest cost."
Lightner provides an introduction to every document, placing each memorial and newspaper article in its proper social and historical context. He also furnishes detailed notes, making these documents readily accessible to readers a century and a half later. In his final chapter, Lightner assesses both the immediate and the continuing impact of Dix's work.
Black Skin, White Coats is a history of psychiatry in Nigeria from the 1950s to the 1980s. Working in the contexts of decolonization and anticolonial nationalism, Nigerian psychiatrists sought to replace racist colonial psychiatric theories about the psychological inferiority of Africans with a universal and egalitarian model focusing on broad psychological similarities across cultural and racial boundaries. Particular emphasis is placed on Dr. T. Adeoye Lambo, the first indigenous Nigerian to earn a specialty degree in psychiatry in the United Kingdom in 1954. Lambo returned to Nigeria to become the medical superintendent of the newly founded Aro Mental Hospital in Abeokuta, Nigeria’s first “modern” mental hospital. At Aro, Lambo began to revolutionize psychiatric research and clinical practice in Nigeria, working to integrate “modern” western medical theory and technologies with “traditional” cultural understandings of mental illness. Lambo’s research focused on deracializing psychiatric thinking and redefining mental illness in terms of a model of universal human similarities that crossed racial and cultural divides.
Black Skin, White Coats is the first work to focus primarily on black Africans as producers of psychiatric knowledge and as definers of mental illness in their own right. By examining the ways that Nigerian psychiatrists worked to integrate their psychiatric training with their indigenous backgrounds and cultural and civic nationalisms, Black Skin, White Coats provides a foil to Frantz Fanon’s widely publicized reactionary articulations of the relationship between colonialism and psychiatry. Black Skin, White Coats is also on the cutting edge of histories of psychiatry that are increasingly drawing connections between local and national developments in late-colonial and postcolonial settings and international scientific networks. Heaton argues that Nigerian psychiatrists were intimately aware of the need to engage in international discourses as part and parcel of the transformation of psychiatry at home.
Each day Burt Wheeler is plagued by the same question. When did it happen? If he could pinpoint the beginning, then he might begin to make peace with himself. He vividly remembers when the doctor diagnosed Kee, his loving wife of over fifty years, with "Alzheimer-type dementia." But, as hard as he tries, it's impossible for him to determine when his wife's dementia started. He remembers her bout with depression, but that, he thinks, was surely due to her breast cancer. There was their dream vacation to Greece when Kee seemed so tired and indifferent. There were the unopened books, when reading had always been such a source of pleasure to her. And, he recalls, the gradual personality changes with friends, and even with family.
Wheeler started writing this book as a form of self-therapy when he found himself thrust into the role of caretaker to his wife--a role for which he felt unprepared. He wrote in memory of the very special woman his wife had been—a wonderful mother, charming and gracious, as well as a deeply respected psychotherapist. She was also his best friend, and he loved her. So, to some degree, this is a love story—a story about two people who have shared life's ups and downs for over fifty years. It's also about commitment.
In Close to Me, but Far Away, Wheeler provides insight into what a caregiver's day is like, as he shares his most intimate thoughts with us. The book provides a window into the author's personal life as he seeks to confront his own ineptitude and the occasional despair he feels as he deals daily with Alzheimer's. He also touches on the question of what keeps him going through times of exhaustion and frustration. Part of his answer lies in holding tenaciously to memories, and part lies in what he believes is a human's extraordinary capacity to continue plodding along simply because he must. Wheeler also believes in rejoicing in the beauty that can be experienced, and he believes in humor, humor achieved only by distancing ourselves from the events that so deeply engage us. And, of course, there is also the indefinable nature of love.
Alzheimer's is a terrifying and horrible disease, as much for loved ones as for the patient. Those who are caregivers or friends of Alzheimer's patients or caregivers will empathize with Burton Wheeler's story. And some might receive comfort from his words or learn from him. Because Alzheimer's is a disease that could affect anyone, Close to Me, but Far Away is a story that should be read by all.
How global health practices can end up reorganizing practices of care for the people and communities they seek to serve
Commodities of Care examines the unanticipated effects of global health interventions, ideas, and practices as they unfold in communities of men who have sex with men (MSM) in China. Targeted for the scaling-up of HIV testing, Elsa L. Fan examines how the impact of this initiative has transformed these men from subjects of care into commodities of care: through the use of performance-based financing tied to HIV testing, MSM have become a source of economic and political capital.
In ethnographic detail, Fan shows how this particular program, ushered in by global health donors, became the prevailing strategy to control the epidemic in China in the late 2000s. Fan examines the implementation of MSM testing and its effects among these men, arguing that the intervention produced new markets of men, driven by the push to meet testing metrics.
Fan shows how men who have sex with men in China came to see themselves as part of a global “MSM” category, adopting new selfhoods and socialities inextricably tied to HIV and to testing. Wider trends in global health programming have shaped national public health responses in China and, this book reveals, have radically altered the ways health, disease, and care are addressed.
Since the 1980s, increasing numbers of hospitals in the United States have formed internal ethics committees to help doctors and other health care professionals deal with complicated ethical questions, especially those regarding the end of a life. But it is only in recent years that German hospitals have followed suit. In Conflicts of Care, Helen Kohlen offers the first comprehensive look at the origin and function of these committees in German hospitals. Using a mix of archival research, participant observation, and interviews, Kohlen explores the debates that surrounded their formation and the functions they have taken on since their creation.
By combining stories of care, the reflections of caregiving practitioners, and interpretations of caregiving within a larger social and theoretical framework, this collection identifies the values and skills involved in quality caregiving at the individual level and affirms their importance for reshaping our public caregiving institutions. Contributors from the fields of medicine, nursing, teaching, ministry, sociology, psychotherapy, theology, and philosophy articulate their values, hopes, commitments, and practices both in theoretical essays and in narratives of caregiving that reveal the complexities of skillful practice.
Developmental Programming for Infants and Young Children: Volume 1 provides detailed instructions for the use of Volume 2: Early Intervention Developmental Profile, including administration and evaluation techniques, scoring and interpretation of results, validity and reliability of findings, and complete item descriptions. To be used with children functioning in the 0-to-36-month developmental age range. Volume 1 includes the scoring sheet (Volume 2).
Developmental Programming for Infants and Young ChildrenIn Five Volumes
Developmental Programming for Infants and Young Children has proven to be an invaluable tool for teachers, therapists, and other professionals who assess and facilitate the development of children functioning primarily in the 0-to-60 month range. The authors address six areas of development: perceptual/fine motor, cognition, language, social/emotional, self-care, and gross motor. Volumes 1, 2, and 3 are designed for use with children functioning in the 0-to-36-month developmental age range, while Volumes 4 and 5 extend assessment and programming guidelines to 5-year (preschool) levels.
Carefully designed and tested by the University of Michigan's Institute for the Study of Mental Retardation and Related Disabilities, all volumes bridge the gap between assessment and program implementation.
Dorothea Dix was the most politically engaged woman of her generation, which was itself a remarkable tapestry of activists. An influential lobbyist as well as a paragon of the doctrine of female benevolence, she vividly illustrated the complexities of the "separate spheres" of politics and femininity. Her greatest legislative initiative, a campaign for federal land grants to endow state mental hospitals, assumed a central role in the public land controversies that intertwined with the slavery issues in Congress following the Mexican War. The passage of this legislation in 1854, and its subsequent veto by President Pierce, touched off the most protracted effort to override a veto that had yet taken place.
An activist who disdained the women's rights and antislavery movements, Dix, an old-line Whig, sought to promote national harmony and became the only New England social reformer to work successfully in the lower South right up to the eve of secession. When war broke out, she sought to achieve as Superintendent of Women Nurses the sort of cultural authority she had seen Florence Nightingale win in the same role during the Crimean War. The disastrous failure of one of the most widely admired heroines in the nation provides a dramatic measure of the transformations of northern values during the war.
Choy conducted extensive interviews with Filipino nurses in New York City and spoke with leading Filipino nurses across the United States. She combines their perspectives with various others—including those of Philippine and American government and health officials—to demonstrate how the desire of Filipino nurses to migrate abroad cannot be reduced to economic logic, but must instead be understood as a fundamentally transnational process. She argues that the origins of Filipino nurse migrations do not lie in the Philippines' independence in 1946 or the relaxation of U.S. immigration rules in 1965, but rather in the creation of an Americanized hospital training system during the period of early-twentieth-century colonial rule. Choy challenges celebratory narratives regarding professional migrants’ mobility by analyzing the scapegoating of Filipino nurses during difficult political times, the absence of professional solidarity between Filipino and American nurses, and the exploitation of foreign-trained nurses through temporary work visas. She shows how the culture of American imperialism persists today, continuing to shape the reception of Filipino nurses in the United States.
In The Ethics of Care, Fiona Robinson demonstrates how the responsibilities of sustaining life are central to the struggle for basic human security. She takes a unique approach, using a feminist lens to challenge gender biases in rights-based, individualist approaches.Robinson's thorough and impassioned consideration of care in both ethical and practical terms provides a starting point for understanding and addressing the material, emotional and psychological conditions that create insecurity for people. The Ethics of Careexamines “care ethics” and “security” at the theoretical level and explores the practical implications of care relations for security in a variety of contexts: women's labor in the global economy, humanitarian intervention and peace building, healthcare, and childcare.
Theoretically-innovative and policy-relevant, this critical analysis demonstrates the need to understand the obstacles and inequalities that obstruct the equitable and adequate delivery of care around the world.
Dr. Harold Koenig opens a window on mental health, providing an unprecedented source of practical information about the relationship between religion and mental health. He examines how Christianity and other world religions deliver mental health services today, and he makes recommendations, based on research, expertise, and experience, for new programs to meet local needs.
Meticulously researched and documented, Faith and Mental Health includes
Presenting a combination of the history and current research of mental health and religion along with a thorough examination of faith-based organizations operating in the field, this book is a one-of-a-kind resource for the healthcare community; its valuable research and insights will benefit medical and religious professionals, and anyone concerned with the future of mental health care.
A detailed exploration of parents’ fight for a safe environment for their kids, interrogating how race, class, and gender shape health advocacy
The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States. At the same time, she shows how this activism also reproduces the culturally dominant politics of personhood and responsibility, based on an idealized version of the American family, centered around white, middle-class, and heteronormative motherhood.
By holding up the threat of food allergens to the white nuclear family to galvanize political and scientific action, Glabau shows, the movement excludes many, including Black women and disabled adults, whose families and health have too often been marginalized from public health and social safety net programs. Further, its strategies are founded on the assumption that market-based solutions will address issues of social exclusion and equal access to healthcare.
Sharing the personal experiences of a wide spectrum of people, including parents, support group leaders, physicians, entrepreneurs, and scientists, Food Allergy Advocacy raises important questions about who controls illness activism. Using critical, intersectional feminism to interrogate how race, class, and gender shape activist priorities and platforms, it shows the way to new, justice-focused models of advocacy.
The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern.
Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in women—especially immigrants and women of color—performing a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers.
This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.
Newcomers to the Southwest usually find that their favorite landscape plants aren't suited to the hot, dry climate. Many authors offer advice on adapting plants to the desert; now Mary Irish tells how gardeners can better adapt themselves to the challenge.
Drawing on her experience with public horticulture in the Phoenix metropolitan area, Irish explores the vexations and delights of desert gardening. She offers practical advice on plants and gardening practices for anyone who lives in the Southwest, from El Paso to Palm Springs, Tucson to Las Vegas.
Irish encourages readers who may be new to the desert—or desert dwellers who may be new to gardening—to stop struggling against heat, aridity, and poor soils and instead learn to use and appreciate the wonderful and well-adapted plants native to the desert. She shares information and anecdotes about trees, shrubs, perennials, agaves, cacti, and other plants that make gardening in the Southwest a unique experience, and provides further information about plants from other desert regions that will easily adapt to the Southwest. In addition to descriptions of plants, Irish also offers tips on planting, watering, pruning, and propagation.
For anyone who has struggled to maintain a patch of green or blanched at their water bill after unproductive irrigation, the answer to an attractive landscape may be as close as the desert around you. And for anyone who has bought a catalog guide to desert plants and not known which to choose, this book can set you on the right path. Mary Irish shows how to take heart in available plants of adaptable beauty in a book to enjoy while waiting for the next planting cycle.
In this seminal collection of articles on health care in the Third World, sociological perspectives are applied to medical issues in revealing ways. Fourteen essays (all but two of which are original to this volume) examine the social production of health, disease, and systems of care throughout the developing world. The volume covers a range of areas—central Africa, Nigeria, Singapore, Taiwan, Indonesia, Nepal, China, United Arab Emirates, Oman, and Mexico—and a broad scope of topics, from emergency care, the AIDS epidemic, and women's health care, to public health programs and national health care policies.
Contributors address the central question of whether health systems in developing areas should emphasize the role of clinical medicine and individual physicians or community and preventive medical resources. The major health problems faced by these societies—inadequate sanitation, infectious disease, high infant-child mortality, and a lack of family planning—indicate the greater need for health educators and public health workers despite many poor nations' desire for Western doctors. Other topics that are examined include the process of seeking medical aid; the relationship between traditional and modern medicines; medical education, hospital care, and communication between doctors and patients in developing countries; and the relevance and application of sociology in Third World settings.
This volume seeks to draw attention to the significance of medical sociology for understanding Third World health problems and to show how examining developing societies may necessitate reframing or modifying some Western sociological notions. In addition, these essays stretch the boundaries of medical sociology to include Third World issues.
WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE
In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care.
What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism—the idea that HIV is an exceptional disease requiring an exceptional response—continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings.
In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?
The editors argue that ideas about humanity find concrete expression in the governing work that operationalizes those ideas to produce order, prosperity, and security. As a site of governance, humanity appears as both an object of care and a source of anxiety. Assertions that humanity is being threatened, whether by environmental catastrophe or political upheaval, provide a justification for the elaboration of new governing techniques. At the same time, humanity itself is identified as a threat (to nature, to nation, to global peace) which governance must contain. These apparently contradictory understandings of the relation of threat to the category of humanity coexist and remain in tension, helping to maintain the dynamic co-production of governance and humanity.
Contributors. Arun Agrawal, Joao Biehl , Didier Fassin, Allen Feldman, Ilana Feldman, Rebecca Hardin, S. Lochann Jain, Liisa Malkki, Adriana Petryna, Miriam Ticktin, Richard Ashby Wilson, Charles Zerner
“I decide that from now on we should listen to him. His lip may be deflated and his left side paralyzed, but he knows. And he has made terrible mistakes. But he knows. He knows. We are lucky that way.”
Lucky That Way, a nuanced, richly engaging memoir, chronicles the joys and tribulations of a daughter who rediscovers her father as he nears the end of his life. Ernie Gerhardt, an artist and teacher, is largely estranged from his five children, but when he suffers a debilitating stroke, his daughter Pamela must fly to Las Vegas to tend to him. When she arrives to find Ernie newly and shockingly fragile, she is hit by an unexpected wave of tenderness.
As she watches over him in intensive care, she recalls turning points in her family history—the early death of her mother and her father’s turn to heavy drinking--and reflects on the idiosyncrasies that make an imperfect and unique family, on what it means to become old, on what happens when parents are no longer the caregivers but the cared-for, and on how a family copes with their responsibility to the elderly.
Written in a crisp, engaging style, the story is less about the drudgery of finding the right mix of medicines, at-home caregivers, and rehabilitation centers and more about the emotional ramifications of caring for the sick under the weight of sometimes flawed attachments.
People make mistakes, grow old, get sick, and pass on from this world. Lucky That Way examines the irritations and comforts of contemporary family bonds. Gerhardt sifts through the complicated, multi-layered relationships for both wry comedy and high drama and records a string of triumphs and mishaps as Ernie and his five adult children struggle to manage his life and find meaning before their time runs out.
The emerging theme of imperfect humans struggling with life's great mysteries will strike a chord of recognition with the tens of thousands of Baby-Boomers and Gen-Xers who are currently facing similar circumstances with their elderly loved ones. Pamela Gerhardt’s heartfelt story about a family coming to terms with their aging father’s illness and imminent death takes readers on an emotional roller coaster that highlights love, loss, humor, and sadness.
To care can feel good, or it can feel bad. It can do good, it can oppress. But what is care? A moral obligation? A burden? A joy? Is it only human? In Matters of Care, María Puig de la Bellacasa presents a powerful challenge to conventional notions of care, exploring its significance as an ethical and political obligation for thinking in the more than human worlds of technoscience and naturecultures.
Matters of Care contests the view that care is something only humans do, and argues for extending to non-humans the consideration of agencies and communities that make the living web of care by considering how care circulates in the natural world. The first of the book’s two parts, “Knowledge Politics,” defines the motivations for expanding the ethico-political meanings of care, focusing on discussions in science and technology that engage with sociotechnical assemblages and objects as lively, politically charged “things.” The second part, “Speculative Ethics in Antiecological Times,” considers everyday ecologies of sustaining and perpetuating life for their potential to transform our entrenched relations to natural worlds as “resources.”
From the ethics and politics of care to experiential research on care to feminist science and technology studies, Matters of Care is a singular contribution to an emerging interdisciplinary debate that expands agency beyond the human to ask how our understandings of care must shift if we broaden the world.
In these essays, a diverse group of ethicists draw insights from both religious and feminist scholarship in order to propose creative new approaches to the ethics of medical care. While traditional ethics emphasizes rules, justice, and fairness, the contributors to this volume embrace an "ethics of care," which regards emotional engagement in the lives of others as basic to discerning what we ought to do on their behalf.
The essays reflect on the three related themes: community, narrative, and emotion. They argue for the need to understand patients and caregivers alike as moral agents who are embedded in multiple communities, who seek to attain or promote healing partly through the medium of storytelling, and who do so by cultivating good emotional habits. A thought-provoking contribution to a field that has long been dominated by an ethics of principle, Medicine and the Ethics of Care will appeal to scholars and students who want to move beyond the constraints of that traditional approach.
How functional medicine leverages systems biology and epigenetic science to treat the microbiome and reverse chronic disease.
Each body is a system within a system—an ecology within the larger context of social, political, economic, cultural, and environmental factors. This is one of the lessons of epigenetics, whereby structural inequalities are literally encoded in our genes. But our ecological embeddedness extends beyond DNA, for each body also teems with trillions of bacteria, yeast, and fungi, all of them imprints of our individual milieus. Nested Ecologies asks what it would mean to take seriously our microbial being, given that our internal ecologies are shaped by inequalities embedded in our physical and social environments.
Further, Rosalynn Vega argues that health practices focused on patients’ unique biology inadvertently reiterate systemic inequities. In particular, functional medicine—which attempts to heal chronic disease by leveraging epigenetic science and treating individual microbiomes—reduces illness to problems of “lifestyle,” principally diet, while neglecting the inability of poor people to access nutrition. Functional medicine thus undermines its own critique of the economics of health care. Drawing on novel digital ethnographies and reflecting on her own experience of chronic illness, Vega challenges us to rethink not only the determinants of well-being but also what it is to be human.
In recent years U.S. public policy has focused on strengthening the nuclear family as a primary strategy for improving the lives of America's youth. It is often assumed that this normative type of family is an independent, self-sufficient unit adequate for raising children. But half of all households in the United States with young children have two employed parents. How do working parents provide care and mobilize the help that they need?
In Not-So-Nuclear Families: Class, Gender, and Networks of Care, Karen V. Hansen investigates the lives of working parents and the informal networks they construct to help care for their children. She chronicles the conflicts, hardships, and triumphs of four families of various social classes. Each must navigate the ideology that mandates that parents, mothers in particular, rear their own children, in the face of an economic reality that requires that parents rely on the help of others. In vivid family stories, parents detail how they and their networks of friends, paid caregivers, and extended kin collectively close the "care gap" for their school-aged children.
Hansen not only debunks the myth that families in the United States are independent, isolated, and self-reliant units, she breaks new theoretical ground by asserting that informal networks of care can potentially provide unique and valuable bonds that nuclear families cannot.
An insight into the struggles of paid domestic workers in Latin America through an exploration of films, texts, and digital media produced since the 1980s in collaboration with them or inspired by their experiences.
Paid domestic work in Latin America is often undervalued, underpaid, and underregulated. Exploring a wave of Latin American cultural texts since the 1980s that draw on the personal experiences of paid domestic work or intimate ties to domestic employees, Paid to Care offers insights into the struggles domestic workers face through an analysis of literary testimonials, documentary and fiction films, and works of digital media.
From domestic workers’ experiences of unionization in the 1980s to calls for their rights to be respected today, the cultural texts analyzed in Paid to Care provide additional insight into public debates about paid domestic work. Rachel Randall examines work made in Brazil, Argentina, Chile, Mexico, Peru, and Uruguay. The most recent of these texts respond to the Covid-19 pandemic, which put many domestic workers’ health and livelihoods at risk. Engaging with the legal histories of domestic work in multiple distinct national contexts, Randall demonstrates how the legacy of colonialism and slavery shapes the profession even today. Focusing on personal or coproduced cultural representations of domestic workers, Paid to Care explores complex ethical issues relating to consent, mediation, and appropriation.
The engaging stories in Parish Nursing provide accessible and enjoyable accounts of real parish nurses, both paid and volunteer, who attend to the needs of their congregations in a variety of ways—from home, hospice, and hospital visits to community outreach. This revised edition gathers their stories of hearing and heeding God’s call, of their faith that they are doing the “right thing,” of their joys, sorrows, and challenges, and of their quiet dedication as they offer their time and talents to meet the needs of others.
By offering inspiration and encouragement, along with a healthy dose of updated practical advice, this collection will make parish nursing theory come to life. These stories will honor practicing parish nurses, will guide the way for anyone contemplating parish nursing as a career, and will challenge church members and leaders to examine the role that their congregations play in health ministry—especially in meeting the long-term care needs of an aging population.
The Patient Self-Determination Act of 1990 required medical facilities to provide patients with written notification of their right to refuse or consent to medical treatment. Using this Act as an important vehicle for improving the health care decisionmaking process, Lawrence P. Ulrich explains the social, legal, and ethical background to the Act by focusing on well-known cases such as those of Karen Quinlan and Nancy Cruzan, and he explores ways in which physicians and other caregivers can help patients face the complex issues in contemporary health care practices.
According to Ulrich, health care facilities often address the letter of the law in a merely perfunctory way, even though the Act integrates all the major ethical issues in health care today. Ulrich argues that well-designed conversations between clinicians and patients or their surrogates will not only assist in preserving patient dignity — which is at the heart of the Act—but will also help institutions to manage the liability issues that the Act may have introduced. He particularly emphasizes developing effective advance directives. Ulrich examines related issues, such as the negative effect of managed care on patient self-determination, and concludes with a seldom-discussed issue: the importance of being a responsible patient.
Showing how the Patient Self-Determination Act can be a linchpin of more meaningful and effective communication between patient and caregiver, this book provides concrete guidance to health care professionals, medical ethicists, and patient-rights advocates.
Drawing on the controversial case of “Ashley X,” a girl with severe developmental disabilities who received interventionist medical treatment to limit her growth and keep her body forever small—a procedure now known as the “Ashley Treatment”—Reconsidering Intellectual Disability explores important questions at the intersection of disability theory, Christian moral theology, and bioethics.
What are the biomedical boundaries of acceptable treatment for those not able to give informed consent? Who gets to decide when a patient cannot communicate their desires and needs? Should we accept the dominance of a form of medicine that identifies those with intellectual impairments as pathological objects in need of the normalizing bodily manipulations of technological medicine?
In a critical exploration of contemporary disability theory, Jason Reimer Greig contends that L'Arche, a federation of faith communities made up of people with and without intellectual disabilities, provides an alternative response to the predominant bioethical worldview that sees disability as a problem to be solved. Reconsidering Intellectual Disability shows how a focus on Christian theological tradition’s moral thinking and practice of friendship with God offers a way to free not only people with intellectual disabilities but all people from the objectifying gaze of modern medicine. L'Arche draws inspiration from Jesus's solidarity with the "least of these" and a commitment to Christian friendship that sees people with profound cognitive disabilities not as anomalous objects of pity but as fellow friends of God. This vital act of social recognition opens the way to understanding the disabled not as objects to be fixed but as teachers whose lives can transform others and open a new way of being human.
A fascinating and unprecedented ethnography of animal sanctuaries in the United States
In the past three decades, animal rights advocates have established everything from elephant sanctuaries in Africa to shelters that rehabilitate animals used in medical testing, to homes for farmed animals, abandoned pets, and entertainment animals that have outlived their “usefulness.” Saving Animals is the first major ethnography to focus on the ethical issues animating the establishment of such places, where animals who have been mistreated or destined for slaughter are allowed to live out their lives simply being animals.
Based on fieldwork at animal rescue facilities across the United States, Elan Abrell asks what “saving,” “caring for,” and “sanctuary” actually mean. He considers sanctuaries as laboratories where caregivers conceive and implement new models of caring for and relating to animals. He explores the ethical decision making around sanctuary efforts to unmake property-based human–animal relations by creating spaces in which humans interact with animals as autonomous subjects. Saving Animals illustrates how caregivers and animals respond by cocreating new human–animal ecologies adapted to the material and social conditions of the Anthropocene.
Bridging anthropology with animal studies and political philosophy, Saving Animals asks us to imagine less harmful modes of existence in a troubled world where both animals and humans seek sanctuary.
A physician with thirty-five years of experience treating people with brain injuries shares the latest research on concussions and best practices for care.
The explosion of attention to sports concussions has many of us thinking about the addled brains of our football and hockey heroes. But concussions happen to everyone, not just elite athletes. Children fall from high chairs, drivers and cyclists get into accidents, and workers encounter unexpected obstacles on the job. Concussions are prevalent, occurring even during everyday activities. In fact, in less time than it takes to read this sentence, three Americans will experience a concussion. The global statistics are no less staggering.
Shaken Brain offers expert advice and urgently needed answers. Elizabeth Sandel, MD, is a board-certified physician who has spent more than three decades treating patients with traumatic brain injuries, training clinicians, and conducting research. Here she explains the scientific evidence for what happens to the brain and body after a concussion. And she shares stories from a diverse group of patients, educating readers on prevention, diagnosis, and treatment. Few people understand that what they do in the aftermath of their injury will make a dramatic difference to their future well-being; patient experiences testify to the best practices for concussion sufferers and their caregivers. Dr. Sandel also shows how to evaluate risks before participating in activities and how to use proven safety strategies to mitigate these risks.
Today concussions aren’t just injuries—they’re big news. And, like anything in the news, they’re the subject of much misinformation. Shaken Brain is the resource patients and their families, friends, and caregivers need to understand how concussions occur, what to expect from healthcare providers, and what the long-term consequences may be.
We all hope that we will be cared for as we age. But the details of that care, for caretaker and recipient alike, raise some of life’s most vexing questions. From the mid-nineteenth to the mid-twentieth century, as an explosive economy and shifting social opportunities drew the young away from home, the elderly used promises of inheritance to keep children at their side. Hendrik Hartog tells the riveting, heartbreaking stories of how families fought over the work of care and its compensation.
Someday All This Will Be Yours narrates the legal and emotional strategies mobilized by older people, and explores the ambivalences of family members as they struggled with expectations of love and duty. Court cases offer an extraordinary glimpse of the mundane, painful, and intimate predicaments of family life. They reveal what it meant to be old without the pensions, Social Security, and nursing homes that now do much of the work of serving the elderly. From demented grandparents to fickle fathers, from litigious sons to grateful daughters, Hartog guides us into a world of disputed promises and broken hearts, and helps us feel the terrible tangle of love and commitments and money.
From one of the bedrocks of the human condition—the tension between the infirmities of the elderly and the longings of the young—emerges a pioneering work of exploration into the darker recesses of family life. Ultimately, Hartog forces us to reflect on what we owe and are owed as members of a family.
“In recent decades, the deficiencies of our system of medical education and medical care have become clearer and more comprehensible to an expanding and highly vocal segment of the public. Many educators share the uneasiness and recognize the need for change.” These words from Dr. John Knowles's Preface define the context of this collection of thought-provoking essays, originally presented in 1966 as a series of lectures sponsored jointly by the Lowell Institute of Boston and Massachusetts General Hospital.
Written by seven men distinguished in the fields of medicine, education, and government, they are addressed to everyone, expert and layman alike, concerned with the quality of medical care in the United States. The ultimate aim of medicine is to enhance the quality of life by the prevention of disease and the comprehensive care of the sick. Technological advances continually provide us with new and better tools, but medicine is plagued by rising costs, inefficient use of facilities and personnel, and critical shortages of manpower. Each author, from his particular point of view, recognizes the need to bring medicine into contact with the social sciences, and presents concrete proposals for government aid and curriculum reform.
At a time when studies suggest the average American woman spends seventeen years caring for children and eighteen years caring for aging parents, Julia T. Wood examines how culture creates and sustains our definitions of caring, determines who cares along gender lines, and assigns the diminished value that caring has in our society.
Wood argues that America’s expanding need for caring is currently being met at an unacceptably high cost to caregivers. It is time, she believes, to examine caregiving roles and the personal, political, and social issues that surround the question of who cares. Caring must be recognized and promoted as an activity that commands the respect and participation of all members of our society—men and women alike.
Only by implementing changes in the basic fabric of American culture, affecting both the structure and the policies of our society and government, can we, Wood concludes, carve out a system of caring that will recognize caring as everyone’s responsibility.
READERS
Browse our collection.
PUBLISHERS
See BiblioVault's publisher services.
STUDENT SERVICES
Files for college accessibility offices.
UChicago Accessibility Resources
home | accessibility | search | about | contact us
BiblioVault ® 2001 - 2024
The University of Chicago Press