How illness on social media reveals the struggle for care and access against ableism and stigma
Illness Politics and Hashtag Activism explores illness and disability in action on social media, analyzing several popular hashtags as examples of how illness figures in recent U.S. politics. Lisa Diedrich shows how illness- and disability-oriented hashtags serve as portals into how and why illness and disability are sites of political struggle and how illness politics is informed by, intersects with, and sometimes stands in for sexual, racial, and class politics. She argues that illness politics is central—and profoundly important—to both mainstream and radical politics, and she investigates the dynamic intersection of media and health and health-activist practices to show the ways their confluence affects our perception and understanding of illness.
Creative expression inspired by disease has been criticized as a celebration of victimhood, unmediated personal experience, or just simply bad art. Despite debate, however, memoirs written about illness—particularly AIDS or cancer—have proliferated since the late twentieth century and occupy a highly influential place on the cultural landscape today.
In Treatments, Lisa Diedrich considers illness narratives, demonstrating that these texts not only recount and interpret symptoms but also describe illness as an event that reflects wider cultural contexts, including race, gender, class, and sexuality. Diedrich begins this theoretically rigorous analysis by offering examples of midcentury memoirs of tuberculosis. She then looks at Susan Sontag’s Illness As Metaphor, Audre Lorde’s The Cancer Journals, and Eve Kosofsky Sedgwick’s “White Glasses,” showing how these breast cancer survivors draw on feminist health practices of the 1970s and also anticipate the figure that would appear in the wake of the AIDS crisis in the 1980s—the “politicized patient.” She further reveals how narratives written by doctors Abraham Verghese and Rafael Campo about treating people with AIDS can disrupt the doctor–patient hierarchy, and she explores practices of witnessing that emerge in writing by Paul Monette and John Bayley.
Through these records of intensely personal yet universal experience, Diedrich demonstrates how language both captures and fails to capture these “scenes of loss” and how illness narratives affect the literary, medical, and cultural contexts from which they arise. Finally, by examining the ways in which the sick speak and are spoken for, she argues for an ethics of failure—the revaluation of loss as creating new possibilities for how we live and die.
Lisa Diedrich is assistant professor of women’s studies at Stony Brook University.
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