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The Clocks That Time Us
Physiology of the Circadian Timing System
Martin C. Moore-Ede, Frank M. Sulzman, and Charles A. Fuller
Harvard University Press, 1982

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The Case of the Female Orgasm
Bias in the Science of Evolution
Elisabeth A. Lloyd
Harvard University Press, 2006

Why women evolved to have orgasms--when most of their primate relatives don't--is a persistent mystery among evolutionary biologists. In pursuing this mystery, Elisabeth Lloyd arrives at another: How could anything as inadequate as the evolutionary explanations of the female orgasm have passed muster as science? A judicious and revealing look at all twenty evolutionary accounts of the trait of human female orgasm, Lloyd's book is at the same time a case study of how certain biases steer science astray.

Over the past fifteen years, the effect of sexist or male-centered approaches to science has been hotly debated. Drawing especially on data from nonhuman primates and human sexology over eighty years, Lloyd shows what damage such bias does in the study of female orgasm. She also exposes a second pernicious form of bias that permeates the literature on female orgasms: a bias toward adaptationism. Here Lloyd's critique comes alive, demonstrating how most of the evolutionary accounts either are in conflict with, or lack, certain types of evidence necessary to make their cases--how they simply assume that female orgasm must exist because it helped females in the past reproduce. As she weighs the evidence, Lloyd takes on nearly everyone who has written on the subject: evolutionists, animal behaviorists, and feminists alike. Her clearly and cogently written book is at once a convincing case study of bias in science and a sweeping summary and analysis of what is known about the evolution of the intriguing trait of female orgasm.

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The Curse
A CULTURAL HISTORY OF MENSTRUATION
Janice Delaney, Mary Jane Lupton, and Emily Toth
University of Illinois Press, 1988
 
"In its hard headed, richly documented concreteness, it is worth a thousand polemics."
-- New York Times, from a review of the first edition
"The Curse deserves a place in every women's studies library collection."
-- Sharon Golub, editor of Lifting the curse of Menstruation
"A stimulating and useful book, both for the scholarly and the general reader."
-- Paula A. Treichler, co-author of A Feminist Dictionary
 
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Cerebrum 2008
Emerging Ideas in Brain Science
Foreword by Carl Zimmer
Dana Press, 2008
New advances are being made in brain science today that will directly affect our lives, from the courtroom to the classroom to the living room. Cerebrum has long been the leading journal in distilling these developments in neuroscience for the general reader, and its articles by leading scientists and scholars are cited in such prominent publications as the Wall Street Journal, Boston Globe, and Washington Post. Now collected here is the second anthology of articles from Cerebrum’s Web edition about the latest developments in brain science.

            The featured articles offer thought-provoking analyses of the human brain and its untapped possibilities, touching on topics as diverse as how discoveries in brain science can help us design better the best nursing facilities for patients with Alzheimer’s disease, the risks and rewards of new drugs based on living cells, why remembering our past is essential to planning the future, and when we can and should use drugs to control our emotional lives. Top scientists and scholars—including acclaimed science writer Carl Zimmer, psychiatrist Paul M. McHugh, neurologist Michael Selzer, and neurobiologist Vivan Teichberg—clearly and concisely explain these and many other exciting developments on the horizon.
 
An engaging and wholly readable compendium, Cerebrum 2008 is essential for all those interested in the cutting edge of brain research and what it holds for the future of humanity.
 
“A real intellectual treat...research findings seen not just in their raw state of discovery but in the far-reaching long term implications they have for health, society, and the future of creativity and innovation.”
—Floyd E. Bloom, MD, former editor of Science
 
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Cerebral Dominance
The Biological Foundations
Norman Geschwind
Harvard University Press, 1984

Although cerebral dominance, the specialization of each side of the brain for different functions, was discovered in the 1860s, almost nothing was known for many years about its biological foundations, the study of which has undergone what can only be described as a revolution in the past decade and a half.

Norman Geschwind and Albert Galaburda, two of the leaders of this new field, have assembled a distinguished group of investigators, each a pioneer in some aspect of the biology of dominance. The authors document human brain asymmetry at gross and microscopic levels in both adults and fetuses, its visualization in life by radiological methods, and its manifestation in brain waves. The evolutionary history of brain asymmetry over more than 300,000 years is shown in fossil skulls of humans and apes. In a dramatic reversal of older beliefs, asymmetry of anatomy, function, and chemistry has been demonstrated in many nonhuman species, and experiments have shown the role of hormones and other prenatal influences in the production of asymmetry. The surprising associations of non-right-handedness with twinning and immune disorders are discussed, as well as the asymmetrical malformation of the cortex in childhood dyslexia.

This volume, combining scholarly authority and the excitement of the birth of a new discipline, will be welcomed by those to whom the implications of dominance are becoming evident—neuroscientists, neurologists, linguists, psychologists, experts in learning disorders, speech pathologists—and by specialists in nearly every branch of biology, medicine, and psychology.

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The Creating Brain
The Neuroscience of Genius
Nancy C. Andreasen
Dana Press, 2005
Michelangelo was raised in a rustic village by a family of modest means. Shakespeare's father was a middle-class businessman. Abraham Lincoln came from a family of itinerant farmers. Yet all these men broke free from their limited circumstances and achieved brilliant careers as creative artists and leaders. How such extraordinary creativity develops in the human brain is the subject of renowned psychiatrist Nancy Andreasen's The Creating Brain.
Andreasen explains here how the brain produces creative breakthroughs in art, literature, and science, revealing that creativity is not the same thing as intelligence. She scrutinizes the complex factors involved in the development of creativity, including the role of patrons and mentors, "non-standard" educations, and the possession of an "omnivorous" vision. A fascinating interview with acclaimed playwright Neil Simon sheds further light on the creative process.The relationship between genius and insanity also plays an important role in Andreasen's examination. Drawing on her studies of writers in the Iowa Writers' Workshop and other scientific evidence, Andreasen asserts that while creativity may sometimes be linked to mental disorders and may be partially due to familial/genetic factors, neither is inevitable nor needed for creativity to flourish.

Scientist's increasing understanding of the brain's plasticity suggests even more possibilities for nurturing the creative drive, and Andreasen looks ahead to exciting implications for child-rearing and education. The Creating Brain presents an inspiring vision for a future where everyone—not just artists or writers—can fulfill their creative capacity.
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A Contagious Cause
The American Hunt for Cancer Viruses and the Rise of Molecular Medicine
Robin Wolfe Scheffler
University of Chicago Press, 2019
Is cancer a contagious disease? In the late nineteenth century this idea, and attending efforts to identify a cancer “germ,” inspired fear and ignited controversy. Yet speculation that cancer might be contagious also contained a kernel of hope that the strategies used against infectious diseases, especially vaccination, might be able to subdue this dread disease. Today, nearly one in six cancers are thought to have an infectious cause, but the path to that understanding was twisting and turbulent.

A Contagious Cause is the first book to trace the century-long hunt for a human cancer virus in America, an effort whose scale exceeded that of the Human Genome Project. The government’s campaign merged the worlds of molecular biology, public health, and military planning in the name of translating laboratory discoveries into useful medical therapies. However, its expansion into biomedical research sparked fierce conflict. Many biologists dismissed the suggestion that research should be planned and the idea of curing cancer by a vaccine or any other means as unrealistic, if not dangerous. Although the American hunt was ultimately fruitless, this effort nonetheless profoundly shaped our understanding of life at its most fundamental levels. A Contagious Cause links laboratory and legislature as has rarely been done before, creating a new chapter in the histories of science and American politics.
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Charles Bell and the Anatomy of Reform
Carin Berkowitz
University of Chicago Press, 2015
Sir Charles Bell (1774–1842) was a medical reformer in a great age of reform—an occasional and reluctant vivisectionist, a theistic popularizer of natural science, a Fellow of the Royal Society, a surgeon, an artist, and a teacher. He was among the last of a generation of medical men who strove to fashion a particularly British science of medicine; who formed their careers, their research, and their publications through the private classrooms of nineteenth-century London; and whose politics were shaped by the exigencies of developing a living through patronage in a time when careers in medical science simply did not exist. A decade after Bell’s death, that world was gone, replaced by professionalism, standardized education, and regular career paths.
           
In Charles Bell and the Anatomy of Reform, Carin Berkowitz takes readers into Bell’s world, helping us understand the life of medicine before the modern separation of classroom, laboratory, and clinic. Through Bell’s story, we witness the age when modern medical science, with its practical universities, set curricula, and medical professionals, was born.
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Chain of Friendship
Selected Letters of Dr. John Fothergill of London, 1735–1780
John Fothergill
Harvard University Press, 1971

Of his friend of many years, Dr. John Fothergill, Benjamin Franklin wrote: "I can hardly conceive that a better man has ever existed." Fothergill's letters provide a fascinating perspective of his time--a totally different view from that given by his contemporaries Horace Walpole and Dr. Johnson.

The "Quaker internationalist" (as his editors aptly call him) was during the middle decades of the eighteenth century one of the half dozen leading physicians of London, a horticulturist of great distinction, an educational reformer, a patron of many philanthropic causes, and a tireless friend of Americans and the cause of American rights. He was exceedingly generous as a patron of scientific undertakings and of young Americans abroad. He founded a famous Quaker school for boys and girls which is still flourishing; he helped found various benevolent and educational institutions in America and he continually subsidized worthy books and gave them to worthy recipients.

All these activities and others are recorded in the some two hundred letters here selected for publication. They throw light on Quaker history on both sides of the Atlantic, on advances in medical science and institutional care of the sick, on discoveries in natural history, and on political developments from the Jacobite Rebellion through the American Revolution. From the beginnings of the rift between colonies and mother country, Fothergill served as a vigorous advocate of conciliatory measures and commonwealth status for America, speaking with equal frankness and impartiality to leaders on both sides until well after hostilities began.

A few weeks before he died (at the end of 1780), he wrote Franklin in France to say that with all Europe leagued against England nothing could be hoped for her from this war, but that the world might hope for the establishment of a tribunal to settle disputes among nations and preclude war as an instrument of policy.

This edition includes a substantial introduction, and the letters have been annotated with great skill and authority. Lyman Butterfield, well known editor of the Adams Papers, says, "I have never encountered annotation on bibliographical, biographical, medical, botanical, and topographical matters that is more unfailingly readable per se. The transatlantic combination of editors was obviously just right. Toward understanding one prominent strand in the cultural history of the 18th century, this book is a uniquely valuable contribution."

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Chinese Medicine and Healing
An Illustrated History
TJ Hinrichs
Harvard University Press, 2013

Chinese Medicine and Healing is a comprehensive introduction to a rich array of Chinese healing practices as they have developed through time and across cultures. Contributions from fifty-eight leading international scholars in such fields as Chinese archaeology, history, anthropology, religion, and medicine make this a collaborative work of uncommon intellectual synergy, and a vital new resource for anyone working in East Asian or world history, in medical history and anthropology, and in biomedicine and complementary healing arts.

This illustrated history explores the emergence and development of a wide range of health interventions, including propitiation of disease-inflicting spirits, divination, vitality-cultivating meditative disciplines, herbal remedies, pulse diagnosis, and acupuncture. The authors investigate processes that contribute to historical change, such as competition between different types of practitioner—shamans, Daoist priests, Buddhist monks, scholar physicians, and even government officials. Accompanying vignettes and illustrations bring to life such diverse arenas of health care as childbirth in the Tang period, Yuan state-established medical schools, fertility control in the Qing, and the search for sexual potency in the People’s Republic.

The two final chapters illustrate Chinese healing modalities across the globe and address the challenges they have posed as alternatives to biomedical standards of training and licensure. The discussion includes such far-reaching examples as Chinese treatments for diphtheria in colonial Australia and malaria in Africa, the invention of ear acupuncture by the French and its worldwide dissemination, and the varying applications of acupuncture from Germany to Argentina and Iraq.

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Chinese Medicine in Contemporary China
Plurality and Synthesis
Volker Scheid
Duke University Press, 2002
As a traditional healing art that has established a contemporary global presence, Chinese medicine defies categories and raises many interesting questions. If Chinese medicine is "traditional," why has it not disappeared with the rest of traditional Chinese society? If, as some claim, it is a science, what does that imply about what we call science? What is the secret of Chinese medicine's remarkable adaptability that has allowed it to prosper for more than 2,000 years? In Chinese Medicine in Contemporary China Volker Scheid presents an ethnography of Chinese medicine that seeks to answer these questions, but his ethnography is informed by some atypical approaches.
Scheid, a medical anthropologist and practitioner of Chinese medicine in practice since 1983, has produced an ethnography that accepts plurality as an intrinsic and nonreducible aspect of medical practice. It has been widely noted that a patient visiting ten different practitioners of Chinese medicine may receive ten different prescriptions for the same complaint, yet many of these various treatments may be effective. In attempting to illuminate the plurality in Chinese medical practice, Scheid redefines-and in some cases abandons-traditional anthropological concepts such as tradition, culture, and practice in favor of approaches from disciplines such as science and technology studies, social psychology, and Chinese philosophy. As a result, his book sheds light not only on Chinese medicine but also on the Western academic traditions used to examine it and presents us with new perspectives from which to deliberate the future of Chinese medicine in a global context.
Chinese Medicine in Contemporary China is the product of two decades of research including numerous interviews and case studies. It will appeal to a western academic audience as well as practitioners of Chinese medicine and other interested medical professionals, including those from western biomedicine.
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Changing the Culture of Academic Medicine
Perspectives of Women Faculty
Linda H. Pololi
Dartmouth College Press, 2010
Over the past twenty-five years, steadily increasing numbers of women have graduated as physicians, in sufficient numbers to be well represented in senior and leadership positions in the nation’s academic medical centers. Yet women’s expected advancement has stalled. Women rarely hold decision-making positions, and female department chairs or deans continue to be exceedingly rare. Why is this the case? Pololi’s study, based on extensive interviews, illuminates medical school culture and shows a sharp disconnect between the values of individual faculty members and the values of academic institutions of medicine. Pololi looks closely at women medical faculty’s experiences as outsiders in medicine, opening a window into medical culture. She argues that placing more women and people of color in leadership positions would provide transformative and more effective leadership to improve health care and would help address current inequities in the health care provided to different racial and cultural groups.
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Care and Cure
An Introduction to Philosophy of Medicine
Jacob Stegenga
University of Chicago Press, 2018
The philosophy of medicine has become a vibrant and complex intellectual landscape, and Care and Cure is the first extended attempt to map it. In pursuing the interdependent aims of caring and curing, medicine relies on concepts, theories, inferences, and policies that are often complicated and controversial. Bringing much-needed clarity to the interplay of these diverse problems, Jacob Stegenga describes the core philosophical controversies underlying medicine in this unrivaled introduction to the field.

The fourteen chapters in Care and Cure present and discuss conceptual, metaphysical, epistemological, and political questions that arise in medicine, buttressed with lively illustrative examples ranging from debates over the true nature of disease to the effectiveness of medical interventions and homeopathy. Poised to be the standard sourcebook for anyone seeking a comprehensive overview of the canonical concepts, current state, and cutting edge of this vital field, this concise introduction will be an indispensable resource for students and scholars of medicine and philosophy.
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Catharsis
On the Art of Medicine
Andrzej Szczeklik
University of Chicago Press, 2005
The ancient Greeks used the term catharsis for the cleansing of both the body by medicine and the soul by art. In this inspiring book, internationally renowned cardiologist Andrzej Szczeklik draws deeply on our humanistic heritage to describe the artistry and the mystery of being a doctor. Moving between examples ancient and contemporary, mythological and scientific, Catharsis explores how medicine and art share common roots and pose common challenges.

The process of diagnosis, for instance, belongs to a world of magic and metaphor; the physician must embrace it like a poem or painting, with particular alertness and keen receptivity. Speculation on ways to slow aging through genetics, meanwhile, draws directly on the dream of immortality that artists and poets have nourished through the ages. And the concept of catharsis itself has made its way from the writings of Aristotle to today's growing interest in the benefits of music to health, especially in newborns. As Szczeklik explores such subjects as the mysteries of the heart rhythm, the secret history of pain relief, the enigmatic logic of epidemics, near-death or out-of-body experiences, and many more, he skillfully weaves together classical literature, the history of medicine, and moving anecdotes from his own clinical experiences. The result is a life-affirming book that will enrich the healing work of patients and doctors alike and make an invaluable contribution to our still-expanding vision of the art of medicine.
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Competence to Consent
Becky Cox White
Georgetown University Press, 1994

Free and informed consent is one of the most widespread and morally important practices of modern health care; competence to consent is its cornerstone. In this book, Becky Cox White provides a concise introduction to the key practical, philosophical, and moral issues involved in competence to consent.

The goals of informed consent, respect for patient autonomy and provision of beneficent care, cannot be met without a competent patient. Thus determining a patient's competence is the critical first step to informed consent. Determining competence depends on defining it, yet surprisingly, no widely accepted definition of competence exists. White identifies nine capacities that patients must exhibit to be competent. She approaches the problem from the task-oriented nature of decision making and focuses on the problems of defining competence within clinical practice. Her proposed definition is based on understanding competence as occurring in a special rather than a general context; as occurring in degrees rather than at a precise threshold; as independent of consequential appeals; and as incorporating affective as well as cognitive capacities.

Combining both an ethical overview and practical guidelines, this book will be of value to health care professionals, bioethicists, and lawyers.

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Conversations on the Edge
Narratives of Ethics and Illness
Richard M. Zaner
Georgetown University Press, 2004

At the edge of mortality there is a place where the seriously ill or dying wait—a place where they may often feel vulnerable or alone. For over forty years, bioethicist cum philosopher Richard Zaner has been at the side of many of those people offering his incalculable gift of listening, and helping to lighten their burdens—not only with his considerable skills, but with his humanity as well.

The narratives Richard Zaner shares in Conversations on the Edge are informed by his depth of knowledge in medicine and bioethics, but are never "clinical." A genuine and caring heart beats underneath his compassionate words. Zaner has written several books in which he tells poignant stories of patients and families he has encountered; there is no question that this is his finest.

In Conversations on the Edge, Zaner reveals an authentic empathy that never borders on the sentimental. Among others, he discusses Tom, a dialysis patient who finally reveals that his inability to work—encouraged by his overprotective mother—is the source of his hostility to treatment; Jim and Sue, young parents who must face the nightmare of letting go of their premature twins, one after the other; Mrs. Oland, whose family refuses to recognize her calm acceptance of her own death; and, in the final chapter, the author's mother, whose slow demise continues to haunt Zaner's professional and personal life.

These stories are filled with pain and joy, loneliness and hope. They are about life and death, about what happens in hospital rooms—and that place at the edge—when we confront mortality. It is the rarest of glimpses into the world of patients, their families, healers, and those who struggle, like Zaner, to understand.

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Contemporary Catholic Health Care Ethics
David F. Kelly
Georgetown University Press, 2004

As David Kelly writes, "Catholic moral theology has not been completely constant over the centuries; it has learned and developed." In Contemporary Catholic Health Care Ethics he demonstrates how Catholic health care ethics can—and should—evolve similarly in response to the lightning speed of modern medical advances. Kelly draws on and analyzes the Catholic tradition of medical ethics—but he does not shy away from criticizing it as well, giving health care professionals, hospital ethics committees, and students a fresh treatment of Catholic health care ethics emphasizing theology, methodology, and application.

First discussing the Catholic understanding of the human person, Kelly proposes a Catholic Christian approach to the meaning of human life as it applies specifically to health care. He includes a brief history of the relationship between religion and medicine, and makes strong claims about how theology ought and ought not to be applied in health care ethics. Drawing from the terminology and approaches used by secular bioethics, he suggests how a Catholic perspective on health care can utilize certain secular moral-philosophical positions, even as they apply to the issues of birth control, and end-of life concerns. As practitioners, patients, and families face the difficult decision to continue or stop treatment for dying patients, Kelly compassionately, but practically, explores their concerns in light of American law and ethics. Finally, he provides measured insight on pain management, hospital ethics committees, stem cell research, genetic engineering, and allocation of health care resources.

Contemporary Catholic Health Care Ethics is informed, challenging, articulate, and bold—bringing to the extremely important field of Catholic health care ethics a much-needed and welcome voice, unafraid to speak to the most difficult issues of the 21st century.

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Contemporary Catholic Health Care Ethics
Second Edition
David F. Kelly, Gerard Magill, and Henk ten Have
Georgetown University Press, 2015

Contemporary Catholic Health Care Ethics, Second Edition, integrates theology, methodology, and practical application into a detailed and practical examination of the bioethical issues that confront students, scholars, and practitioners. Noted bioethicists Gerard Magill, Henk ten Have, and David F. Kelly contribute diverse backgrounds and experience that inform the richness of new material covered in this second edition.

The book is organized into three sections: theology (basic issues underlying Catholic thought), methodology (how Catholic theology approaches moral issues, including birth control), and applications to current issues. New chapters discuss controversial end-of-life issues such as forgoing treatment, killing versus allowing patients to die, ways to handle decisions for incompetent patients, advance directives, and physician-assisted suicide. Unlike anthologies, the coherent text offers a consistent method in order to provide students, scholars, and practitioners with an understanding of ethical dilemmas as well as concrete examples to assist in the difficult decisions they must make on an everyday basis.

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Can a Health Care Market Be Moral?
A Catholic Vision
Mary J. McDonough
Georgetown University Press, 2007

Since the 1970s health care costs in the United States have doubled, insurance premiums have far outpaced inflation, and the numbers of the uninsured and underinsured are increasing at an alarming rate. At the same time the public expects better health care and access to the latest treatment technologies. Governments, desperate to contain ballooning costs, often see a market-based approach to health care as the solution; critics of market systems argue that government regulation is necessary to secure accessible care for all.

The Catholic Church generally questions the market's ability to satisfy the many human needs intrinsic to any care delivery system yet, although the Church views health care as a basic human right, it has yet to offer strategies for how such a right can be guaranteed. Mary J. McDonough, a former Legal Aid lawyer for medical cases, understands the advantages and disadvantages of market-based care and offers insight and solutions in Can a Health Care Market Be Moral?

Drawing on Catholic social teachings from St. Augustine to Pope John Paul II, McDonough reviews health system successes and failures from around the world and assesses market approaches to health care as proposed by leading economists such as Milton Friedman, Regina Herzlinger, Mark Pauly, and Alain Enthoven. Balancing aspects of these proposals with Daniel Callahan's value-dimension approach, McDonough offers a Catholic vision of health care in the United States that allows for some market mechanisms while promoting justice and concern for the least advantaged.

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The Christian Virtues in Medical Practice
Edmund D. Pellegrino and David C. Thomasma
Georgetown University Press, 1996

Christian health care professionals in our secular and pluralistic society often face uncertainty about the place religious faith holds in today's medical practice. Through an examination of a virtue-based ethics, this book proposes a theological view of medical ethics that helps the Christian physician reconcile faith, reason, and professional duty.

Edmund D. Pellegrino and David C. Thomasma trace the history of virtue in moral thought, and they examine current debate about a virtue ethic's place in contemporary bioethics. Their proposal balances theological ethics, based on the virtues of faith, hope, and charity, with contemporary medical ethics, based on the principles of beneficence, justice, and autonomy. The result is a theory of clinical ethics that centers on the virtue of charity and is manifest in practical moral decisions.

Using Christian bioethical principles, the authors address today's divisive issues in medicine. For health care providers and all those involved in the fields of ethics and religion, this volume shows how faith and reason can combine to create the best possible healing relationship between health care professional and patient.

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Care of the Dying Patient
Edited by David A. Fleming & John C. Hagan III
University of Missouri Press, 2010
Although the need for improved care for dying patients is widely recognized and frequently discussed, few books address the needs of the physicians, nurses, social workers, therapists, hospice team members, and pastoral counselors involved in care. Care of the Dying Patient contains material not found in other sources, offering advice and solutions to anyone—professional caregiver or family member—confronted with incurable illness and death. Its authors have lectured and published extensively on care of the dying patient and here review a wide range of topics to show that relief of physical suffering is not the only concern in providing care.

This collection encompasses diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, the needs of caregivers, and special concerns regarding the elderly. In its pages, readers will find out how to:
  • effectively utilize palliative-care services and activate timely referral to hospice,
  • arrange for care that takes into account patients’ cultural beliefs, and
  • respond to spiritual and psychological distress, including the loss of hope that often overshadows physical suffering.
The authors especially emphasize palliative care and hospice, since some physicians fear that such referrals may be viewed by patients and families as abandonment. They also address ethical and legal risks in pain management and warn that fear of overprescribing pain medication may inadvertently lead to ineffective pain relief and even place the treating team at risk of liability for undertreatment of pain.

While physicians have the ability to treat disease, they also help to determine the time and place of death, and they must recognize that end-of-life choices are made more complex than ever before by advances in medicine and at the same time increasingly important. Care of the Dying Patient addresses some of the challenges frequently confronted in terminal care and points the way toward a more compassionate way of death.
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The Chief Concern of Medicine
The Integration of the Medical Humanities and Narrative Knowledge into Medical Practices
Ronald Schleifer and Jerry B. Vannatta
University of Michigan Press, 2013

Unlike any existing studies of the medical humanities, The Chief Concern of Medicinebrings to the examination of medical practices a thorough---and clearly articulated---exposition of the nature of narrative. The book builds on the work of linguistics, semiotics, narratology, and discourse theory and examines numerous literary works and narrative "vignettes" of medical problems, situations, and encounters. Throughout, the book presents usable expositions of the ways storytelling organizes itself to allow physicians and other healthcare workers (and even patients themselves) to be more attentive to and self-conscious about the information---the "narrative knowledge"---of the patient's story.

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Continuing Medical Education
Looking Back, Planning Ahead
Edited by Dennis K. Wentz
Dartmouth College Press, 2011
Continuing medical education (CME) is a mainstay for ongoing learning by practicing physicians. Often considered the third and final phase of medical education, CME differs significantly from earlier phases of training. Unlike medical school and residency/fellowship, CME requires physicians to respond voluntarily to their educational needs; there is no specified curriculum, and practice settings are all different. The essays in this volume tell the history and evolution of CME in the United States and Canada, but also look toward future issues and developments. Contributors from a diverse array of institutions explore CME’s emergence from undergraduate medical education and its separate growth and development, key events and breakthroughs, lessons learned, conflicts, and predictions about the future in their area of expertise. Addressing critical issues, such as industry support for CME, the volume offers a vital tool for continuing medical education professionals, physicians, administrators, and all health care practitioners interested in the future of continuous education and quality patient care.
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Conjuring the State
Public Health Encounters in Highland Ecuador, 1908-1945
A. Kim Clark
University of Pittsburgh Press, 2023
Winner, Best Book Prize, LASA Ecuadorian Studies Section
The First English-Language Book on the History of Public Health in Ecuador during the Early and Mid-Twentieth Century 


The Ecuadorian Public Health Service was founded in 1908 in response to the arrival of bubonic plague to the country. A. Kim Clark uses this as a point of departure to explore questions of social history and public health by tracing how the service extended the reach of its broader programs across the national landscape and into domestic spaces. Delving into health conditions in the country—especially in the highlands—and efforts to combat disease, she shows how citizens’ encounters with public health officials helped make abstract ideas of state government tangible. By using public health as a window to understand social relations in a country deeply divided by region, class, and ethnicity, Conjuring the State examines the cultural, social, and political effects of the everyday practices of public health officials. 
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Conversionary Sites
Transforming Medical Aid and Global Christianity from Madagascar to Minnesota
Britt Halvorson
University of Chicago Press, 2018
Drawing on more than two years of participant observation in the American Midwest and in Madagascar among Lutheran clinicians, volunteer laborers, healers, evangelists, and former missionaries, Conversionary Sites investigates the role of religion in the globalization of medicine. Based on immersive research of a transnational Christian medical aid program, Britt Halvorson tells the story of a thirty-year-old initiative that aimed to professionalize and modernize colonial-era evangelism. Creatively blending perspectives on humanitarianism, global medicine, and the anthropology of Christianity, she argues that the cultural spaces created by these programs operate as multistranded “conversionary sites,” where questions of global inequality, transnational religious fellowship, and postcolonial cultural and economic forces are negotiated.
 
A nuanced critique of the ambivalent relationships among religion, capitalism, and humanitarian aid, Conversionary Sites draws important connections between religion and science, capitalism and charity, and the US and the Global South.
 
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Chronic Condition
Why Health Reform Fails
Sherry Glied
Harvard University Press, 1997

Chronic Condition provides a compelling analysis of the causes of the current health care crisis and of the shortcomings of reform proposals. It also offers an ingenious new framework for reform that, while minimizing government interference, would provide a means for financing care for the less affluent.

Sherry Glied shows that rising health care spending is consistent with a rising standard of living. Since we can, as a nation, afford more health care, reform must address not the overall level of health care costs but the distribution of health care spending.

Prior reform proposals, Glied argues, have failed to account for the tension between the clearly manifested desire for improving the quality of health care and the equally widespread interest in assuring that the less fortunate share in these improvements. After careful analysis of the ill-fated Clinton plan, Glied proposes a new solution that would make the willingness to pay for innovation the means of financing health care improvements for the less affluent. While rejecting the idea that the distribution of health care should be perfectly equal, Glied's proposal would enable all Americans to benefit from the dynamics of the free market.

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Cries of Crisis
Rethinking the Health Care Debate
Robert B. Hackey
University of Nevada Press, 2015
Since the late 1960s, health care in the United States has been described as a system in crisis. No matter their position, those seeking to improve the system have relied on the rhetoric of crisis to build support for their preferred remedies, to the point where the language and imagery of a health care crisis are now deeply embedded in contemporary politics and popular culture.

In Cries of Crisis, Robert B. Hackey analyzes media coverage, political speeches, films, and television shows to demonstrate the role that language and symbolism have played in framing the health care debate, shaping policy making, and influencing public perceptions of problems in the health care system. He demonstrates that the idea of crisis now means so many different things to so many different groups that it has ceased to have any shared meaning at all. He argues that the ceaseless talk of “crisis,” without a commonly accepted definition of that term, has actually impeded efforts to diagnose and treat the chronic problems plaguing the American health care system. Instead, he contends, reformers must embrace a new rhetorical strategy that links proposals to improve the system with deeply held American values like equality and fairness.
[more]

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The Colonial Politics of Global Health
France and the United Nations in Postwar Africa
Jessica Lynne Pearson
Harvard University Press, 2018

In The Colonial Politics of Global Health, Jessica Lynne Pearson explores the collision between imperial and international visions of health and development in French Africa as decolonization movements gained strength.

After World War II, French officials viewed health improvements as a way to forge a more equitable union between France and its overseas territories. Through new hospitals, better medicines, and improved public health, French subjects could reimagine themselves as French citizens. The politics of health also proved vital to the United Nations, however, and conflicts arose when French officials perceived international development programs sponsored by the UN as a threat to their colonial authority. French diplomats also feared that anticolonial delegations to the United Nations would use shortcomings in health, education, and social development to expose the broader structures of colonial inequality. In the face of mounting criticism, they did what they could to keep UN agencies and international health personnel out of Africa, limiting the access Africans had to global health programs. French personnel marginalized their African colleagues as they mapped out the continent’s sanitary future and negotiated the new rights and responsibilities of French citizenship. The health disparities that resulted offered compelling evidence that the imperial system of governance should come to an end.

Pearson’s work links health and medicine to postwar debates over sovereignty, empire, and human rights in the developing world. The consequences of putting politics above public health continue to play out in constraints placed on international health organizations half a century later.

[more]

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Cultivating Health
Los Angeles Women and Public Health Reform
Koslow, Jennifer
Rutgers University Press, 2009
At the dawn of the Progressive Era, when America was experiencing an industrial boom, many working families often ate contaminated food, lived in decaying urban tenements, and had little access to medical care. In a city that demanded change, Los Angeles women, rather than city officials, championed the call to action.

Cultivating Health, an interdisciplinary chronicle, details women's impact on remaking health policy, despite the absence of government support. Combining primary source and municipal archival research with comfortable prose, Jennifer Lisa Koslow explores community nursing, housing reform, milk sanitation, childbirth, and the campaign against venereal disease in late nineteenth and early twentieth century Los Angeles. She demonstrates how women implemented health care reform and civic programs while laying the groundwork for a successful transition of responsibility back to government.

Koslow highlights women's home health care and urban policy-changing accomplishments and pays tribute to what would become the model for similar service-based systems in other American centers.

[more]

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Critical Issues in Healthcare Policy and Politics in the Gulf Cooperation Council States
Ravinder Mamtani
Georgetown University Press

This is the first book to examine challenges in the healthcare sector in the six Gulf Cooperation Council (GCC) countries (Saudi Arabia, Oman, the United Arab Emirates, Qatar, Kuwait, and Bahrain). These countries experienced remarkably swift transformations from small fishing and pearling communities at the beginning of the twentieth century to wealthy petro-states today. Their healthcare systems, however, are only now beginning to catch up.

Rapid changes to the population and lifestyles of the GCC states have completely changed—and challenged—the region’s health profile and infrastructure. While major successes in combatting infectious diseases and improving standards of primary healthcare are reflected in key health indicators, new trends have developed; increasingly “lifestyle” or “wealthy country” diseases, such as diabetes, heart disease, and cancer, have replaced the old maladies. To meet these emerging healthcare needs, GCC states require highly trained and skilled healthcare workers, an environment that supports local training, state-of-the-art diagnostic laboratories and hospitals, research production and dissemination, and knowledge acquisition. They face shortages in most if not all of these areas. This book provides a comprehensive study of the rapidly changing health profile of the region, the existing conditions of healthcare systems, and the challenges posed to healthcare management across the six states of the GCC.

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Communities of Health Care Justice
Galarneau, Charlene
Rutgers University Press, 2016
The factions debating health care reform in the United States have gravitated toward one of two positions: that just health care is an individual responsibility or that it must be regarded as a national concern. Both arguments overlook a third possibility: that justice in health care is multilayered and requires the participation of multiple and diverse communities. 
 
Communities of Health Care Justice makes a powerful ethical argument for treating communities as critical moral actors that play key roles in defining and upholding just health policy. Drawing together the key community dimensions of health care, and demonstrating their neglect in most prominent theories of health care justice, Charlene Galarneau postulates the ethical norms of community justice. In the process, she proposes that while the subnational communities of health care justice are defined by shared place, including those bound by culture, religion, gender, and race that together they define justice. 
 
As she constructs her innovative theorization of health care justice, Galarneau also reveals its firm grounding in the work of real-world health policy and community advocates. Communities of Health Care Justice not only strives to imagine a new framework of just health care, but also to show how elements of this framework exist in current health policy, and to outline the systemic, conceptual, and structural changes required to put these justice norms into fuller practice.
 
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Competition in the Health Care Sector
Ten Years Later
Warren Greenberg, ed.
Duke University Press, 1988
“Competition. Deregulation. Free market forces. The debate over competition in health care that raged in the 1970s brought with it a new economic jargon, a vocabulary of concepts and issues unheard of in hospitals a decade earlier.
“Competition in health care has developed to a greater degree than most economists predicted ten years ago. That is the conclusion of Warren Greenberg in his introduction to Competition in the Health Care Sector: Ten Years Later, a retrospective of a 1977 Federal Trade Commission conference, which produced the landmark treatise Competition in the Health Care Sector: Past, Present, and Future. Seven of the ten original papers are reexamined; a chapter on the nursing home industry has been added.
“As with the original volume, Greenberg predicts that the retrospective will become a critical element in the health care economic literature.”—Hospitals
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Containing Health Care Costs in Japan
Naoki Ikegami and John Creighton Campbell, Editors
University of Michigan Press, 1996

The Japanese health care system provides universal coverage to a healthy but aging population. Its costs are among the lowest in the world and have remained nearly constant as a share of the economy for more than a decade. Americans concerned about runaway medical spending need to know about the successes that Japan has experienced and the problems the country has encountered in its effort to control costs while maintaining quality of care.

Offered here is an analysis of the key issues of cost-containment by specialists followed by reactions from some of America's best-known experts on health care delivery and finance. Topics include the macro-and microeconomics of health care, technology and costs, institutions and costs, attitudinal and behavioral aspects, and the politics of health care.

This collection provides an authoritative study of successful cost-containment in the Japanese health care system---a chronicle of success that is neither a statistical illusion nor a result of sociocultural factors. Detailed here is information on the key mechanism of cost constraint: a fee schedule that covers virtually all medical services and rewards inexpensive services while making expensive services unprofitable. This system has resulted in the provision of quality health care to the entire population at roughly half the cost of American health care. Is it a single-payer system? Would the United States have to introduce a dramatically altered health care structure to benefit from the Japanese experience? No. Japan relies mainly on fee-for-service medicine financed by multiple insurers---a system familiar to Americans and one from which many lessons may be learned.

Based on conferences held in Washington, D.C., and Izu, Japan, this volume collects original chapters on the overall cost structure, how the negotiated mandatory fee schedule works, specific mechanisms for cost control, the politics of health care financing, and the impact of cost cutting on quality, among other topics. These pathbreaking studies will be a significant resource for policymakers and scholars interested in comparative health care systems as well as those interested in health care reform in the United States.

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The Challenge of Regulating Managed Care
John E. Billi and Gail B. Agrawal, Editors
University of Michigan Press, 2001
Representatives of industry, government, caregivers, and consumers join scholars and policy analysts in comparing market forces to regulation as potential means for righting what is wrong with managed care. The contributors that John E. Billi and Gail B. Agrawal have gathered here quickly move the healthcare debate beyond the classroom, think tank, and statehouse to the boardroom and examining room.
Some argue strongly that the solution is to be found in the democratic process and government intervention, while others maintain that only market forces in a competitive environment can respond quickly to the needs of consumers and purchasers alike. The contributors' diverse opinions about the oversight of managed care reflect an enduring divide, one that will affect how society ultimately resolves questions about the inevitable tradeoffs among health-care quality, cost, and access in an environment of limited resources.
The Challenge of Regulating Managed Care will appeal to policymakers, those in the medical field, and all readers interested in the American experience with managed care.
John E. Billi is Associate Professor of Internal Medicine and Medical Education; Associate Dean for Clinical Affairs, University of Michigan Medical School; and Associate Vice President for Medical Affairs, University of Michigan.
Gail B. Agrawal is Associate Professor of Law, University of North Carolina, Chapel Hill.
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Community-Engaged Research for Resilience and Health, Volume 4
Edited by Kelli E. Canada and Clark M. Peters
University of Cincinnati Press, 2022
Promoting resilience in underserved populations.

The fourth volume in the Interdisciplinary Community-Engaged Research for Health series departs from the traditional view of resilience driven by individuals and reconstructs it to hinge on the community of context. Editors Kelli E. Canada and Clark Peters identified six scholar-practitioner teams who worked to promote resilience in communities across the nation facing health crises and other structural barriers to health, such as low socioeconomic positions, structural racism, and discrimination. This research is part of a two-pronged approach to public health, intending to increase resilience and communities’ internal support while simultaneously reducing barriers to health care access.

The efforts featured in Community-Engaged Research for Resilience and Health highlight community-based solutions, points of strength, and sources of resilience to help communities that are struggling to survive and thrive in the face of adversity. Whether these communities are facing opioid addiction or other substance abuse issues, domestic violence, armed conflict, trauma, or cultural discrimination, the editors and contributors in this volume share examples of Community-Based Participatory Research (CBPR) practices where through a collaborative partnership, the community actively participates in every aspect of the alongside the interdisciplinary research team. What transpires demonstrates how researchers and communities come together to turn adversity into improved health through resilience-focused programs and interventions.
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The Cultivation of Whiteness
Science, Health, and Racial Destiny in Australia
Warwick Anderson
Duke University Press, 2006
The Cultivation of Whiteness is an award-winning history of scientific ideas about race and place in Australia from the time of the first European settlement through World War II. Chronicling the extensive use of biological theories and practices in the construction and “protection” of whiteness, Warwick Anderson describes how a displaced “Britishness” (or whiteness) was defined by scientists and doctors in relation to a harsh, strange environment and in opposition to other races. He also provides the first account of extensive scientific experimentation in the 1920s and 1930s on poor whites in tropical Australia and on Aboriginal people in the central deserts.

“[Anderson] writes with passion, wit, and panache, and the principal virtues of The Cultivation of Whiteness are the old-fashioned ones of thoroughness, accuracy, and impeccable documentation. . . . [His] sensitive study is a model of how contentious historical issues can be confronted.”—W. F. Bynum, Times Literary Supplement

“One of the virtues of The Cultivation of Whiteness is that it brings together aspects of Australian life and history that are now more often separated—race and environment, blood and soil, medicine and geography, tropical science and urban health, biological thought and national policy, Aboriginality and immigration, the body and the mind. The result is a rich and subtle history of ideas that is both intellectual and organic, and that vividly evokes past states of mind and their lingering, haunting power.”—Tom Griffiths, Sydney Morning Herald

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The Cult of Health and Beauty in Germany
A Social History, 1890-1930
Michael Hau
University of Chicago Press, 2003
From the 1890s to the 1930s, a growing number of Germans began to scrutinize and discipline their bodies in a utopian search for perfect health and beauty. Some became vegetarians, nudists, or bodybuilders, while others turned to alternative medicine or eugenics. In The Cult of Health and Beauty in Germany, Michael Hau demonstrates why so many men and women were drawn to these life reform movements and examines their tremendous impact on German society and medicine.

Hau argues that the obsession with personal health and fitness was often rooted in anxieties over professional and economic success, as well as fears that modern industrialized civilization was causing Germany and its people to degenerate. He also examines how different social groups gave different meanings to the same hygienic practices and aesthetic ideals. What results is a penetrating look at class formation in pre-Nazi Germany that will interest historians of Europe and medicine and scholars of culture and gender.
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Catastrophic Diseases
Who Decides What?
Jay Katz
Russell Sage Foundation, 1975
People do not choose to suffer from catastrophic illnesses, but considerable human choice is involved in the ways in which the participants in the process treat and conduct research on these diseases. Catastrophic Diseases draws a powerful and humane portrait of the patients who suffer from these illnesses as well as of the physician-investigators who treat them, and describes the major pressures, conflicts, and decisions which confront all of them. By integrating a discussion of "facts" and "values," the authors highlight the forces which affect new developments in medicine—such as kidney and heart transplants—and the controversial issues they generate. Katz and Capron explore these issues through the use of dual conceptual perspectives. Their study first examines and evaluates the authority which should be vested in each of the chief participants in the catastrophic disease process—the physician-investigator, the patient-subject and his relatives, the professionals, and the state. Challenging questions are raised concerning medical education, informed consent, and professional responsibility. The authors next explore how the roles and capacities of the participants vary not only according to the basic issues they face but also according to the point in decision-making at which these issues arise. The process of investigating and treating catastrophic diseases, the authors believe, can thus usefully be divided into three decision-making stages—the formulation of policy, the administration of research and therapy, and the review of the decisions and their consequences. In conclusion, Katz and Capron demonstrate the need for a variety of individuals and groups with diverse values to be involved in decision-making in a manner which will not unnecessarily impede the scientific investigation of these diseases.
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Communicative Biocapitalism
The Voice of the Patient in Digital Health and the Health Humanities
Olivia Banner
University of Michigan Press, 2017
The Precision Medicine Initiative, Apple’s HealthKit, the FitBit—the booming digital health industry asserts that digital networks, tools, and the scientific endeavors they support will usher in a new era of medicine centered around “the voice of the patient.” But whose “voices” do such tools actually solicit? And through what perspective will those voices be heard? Digital health tools are marketed as neutral devices made to help users take responsibility for their health. Yet digital technologies are not neutral; they are developed from an existing set of assumptions about their potential users and contexts for use, and they reflect dominant ideologies of health, dis/ability, gender, and race. Using patient-networking websites, the Quantified Self, and online breast cancer narratives,  Communicative Biocapitalism examines the cultural, technological, economic, and rhetorical logics that shape the “voice of the patient” in digital health to identify how cultural understandings and social locations of race, gender, and disability shape whose voices are elicited and how they are interpreted.
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Creating Culture through Health Leadership
Edited by Lina Svedin
University of Cincinnati Press, 2020
The challenges to health, wellness, and health equity in the United States are massive. No matter what side of the discussion health care leaders are on, insufficient mental health care, adverse childhood experiences, substance use disorders, high infant mortality rate, and declining life expectancy for women are issues that leadership can rally around. The second volume in the Interdisciplinary Community-Engaged Research for Health series explores hands-on approaches that leaders can take in their community. Creating Culture through Health Leadership focuses on the practitioner’s view of community engagement and how health care leaders can build a culture of health through community-grown solutions. Volume editor Lina Svedin invites contributors from the Robert Wood Johnson Foundation’s Culture of Health Leaders program to share transformative leadership skills that advance health and equity for all. Svedin’s contributors span the fields of business, technology, architecture, education, urban farming, and the arts, and represent subject matter experts, mentors, and coaches in the private, public, nonprofit, and social sectors. The volume is a collection of innovative, engaging case studies that illuminate how health care administrators and managers can collaborate to lead change within their organization, in their regional system, and throughout the nation.
 
 
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Community Organizing and Community Building for Health and Welfare
Edited by Meredith Minkler
Rutgers University Press, 2012

The third edition of Community Organizing and Community Building for Health and Welfare provides new and more established ways to approach community building and organizing, from collaborating with communities on assessment and issue selection to using the power of coalition building, media advocacy, and social media to enhance the effectiveness of such work.

With a strong emphasis on cultural relevance and humility, this collection offers a wealth of case studies in areas ranging from childhood obesity to immigrant worker rights to health care reform. A "tool kit" of appendixes includes guidelines for assessing coalition effectiveness, exercises for critical reflection on our own power and privilege, and training tools such as "policy bingo." From former organizer and now President Barack Obama to academics and professionals in the fields of public health, social work, urban planning, and community psychology, the book offers a comprehensive vision and on-the-ground examples of the many ways community building and organizing can help us address some of the most intractable health and social problems of our times.

Dr. Minkler's course syllabus: Although Dr. Minkler has changed the order of some chapters in the syllabus to accommodate guest speakers and help students prep for the midterm assignment she uses, she arranged the actual book layout in a way that should flow quite naturally if instructors wish to use it in the order in which chapters appear.
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front cover of Community Organizing and Community Building for Health and Social Equity, 4th edition
Community Organizing and Community Building for Health and Social Equity, 4th edition
Meredith Minkler and Patricia Wakimoto
Rutgers University Press, 2022
The fourth edition of Community Organizing and Community Building for Health and Social Equity provides both classic and recent contributions to the field, with a special accent on how these approaches can contribute to health and social equity. The 23 chapters offer conceptual frameworks, skill- building and case studies in areas like coalition building, organizing by and with women of color, community assessment, and the power of the arts, the Internet, social media, and policy and media advocacy in such work. The use of participatory evaluation and strategies and tips on fundraising for community organizing also are presented, as are the ethical challenges that can arise in this work, and helpful tools for anticipating and addressing them. Also included are study questions for use in the classroom. 
 
Many of the book’s contributors are leaders in their academic fields, from public health and social work, to community psychology and urban and regional planning, and to social and political science. One author was the 44th president of the United States, himself a former community organizer in Chicago, who reflects on his earlier vocation and its importance. Other contributors are inspiring community leaders whose work on-the-ground and in partnership with us “outsiders” highlights both the power of collaboration, and the cultural humility and other skills required to do it well. 

Throughout this book, and particularly in the case studies and examples shared, the role of context is critical, and never far from view. Included here most recently are the horrific and continuing toll of the COVID-19 pandemic, and a long overdue, yet still greatly circumscribed, “national reckoning with systemic racism,” in the aftermath of the brutal police killing of yet another unarmed Black person, and then another and another, seemingly without  end. In many chapters, the authors highlight different facets of the Black Lives Matter movement that  took on new life across the country and the world in response to these atrocities.  In other chapters, the existential threat of climate change and grave threats to democracy also are underscored.

View the Table of Contents and introductory text for the supplementary instructor resources. (https://d3tto5i5w9ogdd.cloudfront.net/wp-content/uploads/2022/02/04143046/9781978832176_optimized_sampler.pdf)

Supplementary instructor resources are available on request: https://www.rutgersuniversitypress.org/communityorganizing
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Cultural Sutures
Medicine and Media
Lester D. Friedman, ed.
Duke University Press, 2004
Medicine and the media exist in a unique symbiosis. Increasingly, health-care consumers turn to media sources—from news reports to Web sites to tv shows—for information about diseases, treatments, pharmacology, and important health issues. And just as the media scour the medical terrain for news stories and plot lines, those in the health-care industry use the media to publicize legitimate stories and advance particular agendas. The essays in Cultural Sutures delineate this deeply collaborative process by scrutinizing a broad range of interconnections between medicine and the media in print journalism, advertisements, fiction films, television shows, documentaries, and computer technology.

In this volume, scholars of cinema studies, philosophy, English, sociology, health-care education, women’s studies, bioethics, and other fields demonstrate how the world of medicine engages and permeates the media that surround us. Whether examining the press coverage of the Jack Kevorkian–euthanasia controversy; pondering questions about accessibility, accountability, and professionalism raised by such films as Awakenings, The Doctor, and Lorenzo’s Oil; analyzing the depiction of doctors, patients, and medicine on E.R. and Chicago Hope; or considering the ways in which digital technologies have redefined the medical body, these essays are consistently illuminating and provocative.

Contributors. Arthur Caplan, Tod Chambers, Stephanie Clark-Brown, Marc R. Cohen, Kelly A. Cole, Lucy Fischer, Lester D. Friedman, Joy V. Fuqua, Sander L. Gilman, Norbert Goldfield, Joel Howell, Therese Jones, Timothy Lenoir, Gregory Makoul, Marilyn Chandler McEntyre, Faith McLellan, Jonathan M. Metzl, Christie Milliken, Martin F. Norden, Kirsten Ostherr, Limor Peer, Audrey Shafer, Joseph Turow, Greg VandeKieft, Otto F. Wahl

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Comrades in Health
U.S. Health Internationalists, Abroad and at Home
Edited by Anne-Emanuelle Birn and Theodore M. Brown
Rutgers University Press
Since the early twentieth century, politically engaged and socially committed U.S. health professionals have worked in solidarity with progressive movements around the world. Often with roots in social medicine, political activism, and international socialism, these doctors, nurses, and other health workers became comrades who joined forces with people struggling for social justice, equity, and the right to health.

Anne-Emanuelle Birn and Theodore M. Brown bring together a group of professionals and activists whose lives have been dedicated to health internationalism. By presenting a combination of historical accounts and first-hand reflections, this collection of essays aims to draw attention to the longstanding international activities of the American health left and the lessons they brought home. The involvement of these progressive U.S. health professionals is presented against the background of foreign and domestic policy, social movements, and global politics.
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Community Health Centers
A Movement and the People Who Made It Happen
Lefkowitz, Bonnie
Rutgers University Press, 2007
The aftermath of Hurricane Katrina has placed a national spotlight on the shameful state of healthcare for America's poor. In the face of this highly publicized disaster, public health experts are more concerned than ever about persistent disparities that result from income and race.

This book tells the story of one groundbreaking approach to medicine that attacks the problem by focusing on the wellness of whole neighborhoods. Since their creation during the 1960s, community health centers have served the needs of the poor in the tenements of New York, the colonias of Texas, the working class neighborhoods of Boston, and the dirt farms of the South. As products of the civil rights movement, the early centers provided not only primary and preventive care, but also social and environmental services, economic development, and empowerment.

Bonnie Lefkowitz-herself a veteran of community health administration-explores the program's unlikely transformation from a small and beleaguered demonstration effort to a network of close to a thousand modern health care organizations serving nearly 15 million people. In a series of personal accounts and interviews with national leaders and dozens of health care workers, patients, and activists in five communities across the United States, she shows how health centers have endured despite cynicism and inertia, the vagaries of politics, and ongoing discrimination.

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Community Health Equity
A Chicago Reader
Edited by Fernando De Maio, Raj C. Shah, MD, John Mazzeo, and David A. Ansell, MD
University of Chicago Press, 2019
Perhaps more than any other American city, Chicago has been a center for the study of both urban history and economic inequity. Community Health Equity assembles a century of research to show the range of effects that Chicago’s structural socioeconomic inequalities have had on patients and medical facilities alike. The work collected here makes clear that when a city is sharply divided by power, wealth, and race, the citizens who most need high-quality health care and social services have the greatest difficulty accessing them. Achieving good health is not simply a matter of making the right choices as an individual, the research demonstrates: it’s the product of large-scale political and economic forces. Understanding these forces, and what we can do to correct them, should be critical not only to doctors but to sociologists and students of the urban environment—and no city offers more inspiring examples for action to overcome social injustice in health than Chicago.
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Cleansing the City
Sanitary Geographies in Victorian London
Michelle Allen
Ohio University Press, 2008
Cleansing the City: Sanitary Geographies in Victorian London explores not only the challenges faced by reformers as they strove to clean up an increasingly filthy city but the resistance to their efforts. Beginning in the 1830s, reform-minded citizens, under the banner of sanitary improvement, plunged into London’s dark and dirty spaces and returned with the material they needed to promote public health legislation and magnificent projects of sanitary engineering. Sanitary reform, however, was not always met with unqualified enthusiasm. While some improvements, such as slum clearances, the development of sewerage, and the embankment of the Thames, may have made London a cleaner place to live, these projects also destroyed and reshaped the built environment, and in doing so, altered the meanings and experiences of the city.

From the novels of Charles Dickens and George Gissing to anonymous magazine articles and pamphlets, resistance to reform found expression in the nostalgic appreciation of a threatened urban landscape and anxiety about domestic autonomy in an era of networked sanitary services. Cleansing the City emphasizes the disruptions and disorientation occasioned by purification—a process we are generally inclined to see as positive. By recovering these sometimes oppositional, sometimes ambivalent responses, Michelle Allen elevates a significant undercurrent of Victorian thought into the mainstream and thus provides insight into the contested nature of sanitary modernization.
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Care without Pathology
How Trans- Health Activists Are Changing Medicine
Christoph Hanssmann
University of Minnesota Press, 2023

Examining trans- healthcare as a key site through which struggles for health and justice take shape

 

Over the past two decades, medical and therapeutic approaches to transgender patients have changed radically, from treating a supposed pathology to offering gender-affirming care. Based on ethnographic fieldwork in New York City and Buenos Aires, Care without Pathology moves across the Americas to show how trans- health activists have taken on the project of depathologization.

 

In New York, Christoph Hanssmann examines activist attempts to overturn bans on using public health dollars to fund trans- health care. In Argentina, he traces how trans- activists marshaled medical statistics and personal biographies to reveal state violence directed against trans- people and travestis. Hanssmann also demonstrates the importance of understanding transphobia in the broader context of gendered racism, ableism, and antipoverty, arguing for the rise of a thoroughly coalition-based mass mobilization.

 

Care without Pathology highlights the distributive arguments activists made to access state funding for health care, combating state arguments that funding trans- health care is too specialized, too expensive, and too controversial. Hanssmann situates trans- health as a crucible within which sweeping changes are taking place—with potentially far-reaching effects on the economic and racial barriers to accessing care.

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Chemical Alert!
A Community Action Handbook
Edited by Marvin S. Legator and Sabrina F. Strawn
University of Texas Press, 1993

In the 1978 Love Canal toxic waste crisis, concerned citizens "did a far better job of evaluating the health of the community than did the professionals of the New York Health Department," asserts Marvin Legator. In Chemical Alert! A Community Action Handbook, he and coeditor Sabrina Strawn offer a step-by-step guide that can be used by any lay person or citizens' group to determine whether a health risk exists in their area.

Writing for the general reader with no scientific expertise, environmental, medical, and legal professionals instruct communities on the organizational and investigative techniques that will produce a valid, scientific case study. With these tools, citizens living near petrochemical plants or waste disposal areas—or who may have simply noticed a high incidence of certain health problems in their community—can determine for themselves whether a problem really exists and seek remediation. Given the reality that government agencies often lack the resources—or the will—to detect health hazards before they affect a community, an informed citizenry should be its own best environmental watchdog.

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Cities for Life
How Communities Can Recover from Trauma and Rebuild for Health
Jason Corburn
Island Press, 2021
Environmental Design Research Association (EDRA) Place Book Award Winner (2022)

What if cities around the world actively worked to promote the health and healing of all of their residents? Cities contribute to the traumas that cause unhealthy stress, with segregated neighborhoods, insecure housing, few playgrounds, environmental pollution, and unsafe streets, particularly for the poor and residents who are Black, Indigenous, and People of Color.

Some cities around the world are already helping their communities heal by investing more in peacemaking and parks than in policing; focusing on community decision-making instead of data surveillance; changing regulations to permit more libraries than liquor stores; and building more affordable housing than highways. These cities are declaring racism a public health and climate change crisis, and taking the lead in generating equitable outcomes.                

In Cities for Life, public health expert Jason Corburn shares lessons from three of these cities: Richmond, California; Medellín, Colombia; and Nairobi, Kenya. Corburn draws from his work with citizens, activists, and decision-makers in these cities over a ten-year period, as individuals and communities worked to heal from trauma—from gun violence, housing and food insecurity, and poverty. Corburn shows how any community can rebuild their social institutions, practices, and policies to be more focused on healing and health. This means not only centering those most traumatized in decision-making, Corburn explains, but confronting historically discriminatory, exclusionary, and racist urban institutions, and promoting healing-focused practices, place-making, and public policies.
  
Cities for Life is essential reading for urban planning, design, healthcare, and public health professionals as they work to reverse entrenched institutional practices through new policies, rules, norms, and laws that address their damage and promote health and healing.
 
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Commodities of Care
The Business of HIV Testing in China
Elsa L. Fan
University of Minnesota Press, 2021

How global health practices can end up reorganizing practices of care for the people and communities they seek to serve 

Commodities of Care examines the unanticipated effects of global health interventions, ideas, and practices as they unfold in communities of men who have sex with men (MSM) in China. Targeted for the scaling-up of HIV testing, Elsa L. Fan examines how the impact of this initiative has transformed these men from subjects of care into commodities of care: through the use of performance-based financing tied to HIV testing, MSM have become a source of economic and political capital. 

In ethnographic detail, Fan shows how this particular program, ushered in by global health donors, became the prevailing strategy to control the epidemic in China in the late 2000s. Fan examines the implementation of MSM testing and its effects among these men, arguing that the intervention produced new markets of men, driven by the push to meet testing metrics. 

Fan shows how men who have sex with men in China came to see themselves as part of a global “MSM” category, adopting new selfhoods and socialities inextricably tied to HIV and to testing. Wider trends in global health programming have shaped national public health responses in China and, this book reveals, have radically altered the ways health, disease, and care are addressed. 

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The COVID-19 Intelligence Failure
Why Warning Was Not Enough
Georgetown University Press, 2023

An in-depth analysis of why COVID-19 warnings failed and how to avert the next disaster

Epidemiologists and national security agencies warned for years about the potential for a deadly pandemic, but in the end global surveillance and warning systems were not enough to avert the COVID-19 disaster. In The COVID-19 Intelligence Failure, Erik J. Dahl demonstrates that understanding how intelligence warnings work—and how they fail—shows why the years of predictions were not enough.

In the first in-depth analysis of the topic, Dahl examines the roles that both traditional intelligence services and medical intelligence and surveillance systems play in providing advance warning against public health threats—and how these systems must be improved for the future. For intelligence to effectively mitigate threats, specific, tactical-level warnings must be collected and shared in real time with receptive decision makers who will take appropriate action. Dahl shows how a combination of late and insufficient warnings about COVID-19, the Trump administration’s political aversion to scientific advice, and decentralized public health systems all exacerbated the pandemic in the United States. Dahl’s analysis draws parallels to other warning failures that preceded major catastrophes from Pearl Harbor to 9/11, placing current events in context.

The COVID-19 Intelligence Failure is a wake-up call for the United States and the international community to improve their national security, medical, and public health intelligence systems and capabilities.

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COVID-19 and Public Health
Global Responses to the Pandemic
Caroline Kingori
Ohio University Press, 2024
This book contributes to the discourse on public health and COVID-19 prevention in three ways. First, by examining COVID-19’s impact on underserved and resource-limited communities, it addresses a continuing challenge in public health to ensure equitable access to adequate health care services. Contextually relevant initiatives must recognize and overcome injustices, stigma, racism, and discrimination in order to support the public health system. Second, the book argues that despite policies in high-income countries that led to the development and authorization of life-saving vaccines, attempts to curtail further transmission globally are futile without a concerted effort to ensure equal distribution of those vaccines. Third, it assesses the environmental impact of medical waste generated by COVID-19 as an emerging issue, one that cannot be glossed over with short-term solutions. Strategies to address medical waste like sanitizers, masks, gloves, and other products must be included in national policy to protect the populace and first responders. Utilizing a retrospective lens and examining lessons learned at the end of each chapter, COVID-19 and Public Health discusses global health success with other pandemics, risk communication, community engagement, interplay of policy and politics, environmental health influence, and public health practice implications. The book is suitable as an introductory text in public health or other related courses, such as environmental health, health policy, global health, health disparities, cross-cultural issues, community engagement, or health behavior. Contributors: Vashti Adams, Obasanjo Afolabi Bolarinwa, Adanna Agbo, Kobi V. Ajayi, Adaeze Aroh, Ugonwa Aroh, Timnit Berhane, Emma Biegacki, Claire Chaumont, Jaih Craddock, Marquitta Dorsey, Ghanem Elhersh, Kristen Garcia, Whitney Garney, Jessica Gokee LaRose, Jeffrey Glenn, F. Todd Gray, Rudene Haynes, Robert Heimer, Tamsim Hoque, Iman Ikram, Laeeq Khan, Kujang Laki, Rachel Ludeke, Devin Madden, Tyra Montour, Kenneth Morford, Michele Morrone, Maghboeba Mosavel, Carolyn Nganga-Good, Jerry Okal, Aggrey Willis Otieno, Sonya Panjwani, Elizabeth Prom-Wormley, Tremayne Robertson, Katie Schenk, Grace Sikapokoo, Vanessa Sheppard, Arnethea L. Sutton, Maria Thomson, Katherine Y. Tossas, Nita Vangeepuram, Pablo Villalobos Dintrans, Elizabeth Wachira, Robert A Winn, Rafeek Yusuf, Zenab Yusuf
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COVID and Gender in the Middle East
Edited by Rita Stephan
University of Texas Press, 2023

As the coronavirus ravages the globe, its aftermaths have brought gender inequalities to the forefront of many conversations. Countries in the Middle East and North Africa have been slow to prepare for, adapt to, and mitigate the COVID-19 health crisis and its impacts on governance, economics, security, and rights. Women’s physical well-being, social safety nets, and economic participation have been disproportionately affected, and with widespread shutdowns and capricious social welfare programs, women are exiting the workplace and the classroom, carrying the caregiving burden.

With feminist foregrounding, Rita Stephan's collection COVID and Gender in the Middle East gathers an impressive group of local scholars, activists, and policy experts. The book examines a range of national and localized responses to gender-specific issues around COVID’s health impact and the economic fallout and resulting social vulnerabilities, including the magnified marginalization of Syrian refugees; the inequitable treatment of migrant workers in Bahrain; and the inadequate implementation of gender-based violence legislation in Morocco. An essential global resource, this book is the first to provide empirical evidence of COVID’s gendered effects.

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Coronavirus Politics
The Comparative Politics and Policy of COVID-19
Scott L. Greer, Elizabeth J. King, Elize Massard da Fonseca, André Peralta-Santos, Editors
University of Michigan Press, 2021
COVID-19 is the most significant global crisis of any of our lifetimes. The numbers have been stupefying, whether of infection and mortality, the scale of public health measures, or the economic consequences of shutdown. Coronavirus Politics identifies key threads in the global comparative discussion that continue to shed light on COVID-19 and shape debates about what it means for scholarship in health and comparative politics. Editors Scott L. Greer, Elizabeth J. King, Elize Massard da Fonseca, and André Peralta-Santos bring together over 30 authors versed in politics and the health issues in order to understand the health policy decisions, the public health interventions, the social policy decisions, their interactions, and the reasons. The book’s coverage is global, with a wide range of key and exemplary countries, and contains a mixture of comparative, thematic, and templated country studies. All go beyond reporting and monitoring to develop explanations that draw on the authors' expertise while engaging in structured conversations across the book.
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A COVID Charter, A Better World
Toby Miller
Rutgers University Press, 2021
With unprecedented speed, scientists have raced to develop vaccines to bring the COVID-19 pandemic under control and restore a sense of normalcy to our lives. Despite the havoc and disruption the pandemic has caused, it’s exposed exactly why we should not return to life as we once knew it. Our current profit-driven healthcare systems have exacerbated global inequality and endangered public health, and we must take this opportunity to construct a new social order that understands public health as a basic human right.  
 
A COVID Charter, A Better World outlines the steps needed to reform public policies and fix the structural vulnerabilities that the current pandemic has made so painfully clear. Leading scholar Toby Miller argues that we must resist neoliberalism’s tendency to view health in terms of individual choices and market-driven solutions, because that fails to preserve human rights. He addresses the imbalance of geopolitical power to explain how we arrived at this point and shows that the pandemic is more than just a virus—it’s a social disease. By examining how the U.S., Britain, Mexico, and Colombia have responded to the COVID-19 crisis, Miller investigates corporate, scientific, and governmental decision-making and the effects those decisions have had on disadvantaged local communities. Drawing from human rights charters ratified by various international organizations, he then proposes a COVID charter, calling for a new world that places human lives above corporate profits.
[more]

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Consumed In The City
Observing Tuberculosis At Century'S End
Paul Draus
Temple University Press, 2004
As a public health field worker assigned to control tuberculosis in New York and Chicago in the 1990s, Paul Draus encountered the horrible effects of tuberculosis resurgence in urban areas, and the intersections of disease, blight, and poverty. Consumed in the City grows out of his experiences and offers a persuasive case for thinking about—and treating—tuberculosis as an inseparable component of the scourges of poverty, homelessness, AIDS, and drug abuse. It is impossible, Draus argues, to treat and eliminate tuberculosis without also treating the social ills that underlie the new epidemic. Paul Draus begins by describing his own on-the-job training as a field worker, then places the resurgence of tuberculosis into historical and sociological perspective. He vividly describes his experiences in hospital rooms, clinics, jails, housing projects, urban streets, and other social settings where tuberculosis is often encountered and treated. Using case studies, he demonstrates how social problems affect the success or failure of actual treatment. Finally, Draus suggests how a reformed public health agenda could help institute the changes required to defeat a deadly new epidemic. At once a personal account and a concrete plan for rethinking the role of public health, Consumed in the City marks a significant intervention in the way we think about the entangled crises of urban dislocation, poverty, and disease.
[more]

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Chicago's War on Syphilis, 1937-40
The Times, the "Trib," and the Clap Doctor
Suzanne Poirier
University of Illinois Press, 1995
  "An eye for colorful vignettes and anecdotes. On target! She recognizes
        the importance of her subject." -- Thomas N. Bonner, author of To
        the Ends of the Earth: Women's Search for Education in Medicine
      Those struggling to deal with the AIDS epidemic might learn valuable
        lessons from the earlier struggle of the U.S. to deal with syphilis. Here,
        Suzanne Poirier tells the story of the Chicago Syphilis Control Program
        launched in 1937 by the Chicago Board of Health and the U.S. Public Health
        Service and severely limited from the start because of the refusal of
        government, the press, and the public to confront directly the issues
        underlying the problem.
      Poirier's narrative is memorable for its vivid scenes, colorful characters
        that include Chicago's "clap doctor," Dr. Ben Reitman, and its
        account of the heated debate that surrounded the effort. In an epilogue,
        the author discusses similarities between current efforts against AIDS
        and the handling and politics of the syphilis problem in the late 1930s.
 
[more]

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Cancer Screening in the Developing World
Case Studies and Strategies from the Field
Edited by Madelon L. Finkel
Dartmouth College Press, 2018
Worldwide, cancer is responsible for one in eight deaths—more than AIDS, tuberculosis, and malaria combined. This global burden starkly illustrates the inequality between the developed and the developing world. While the majority of people living in developed countries receive timely treatment, those living in developing countries are not as fortunate and their survival rates are much lower—not only due to delays in diagnosis, but also to a lack of personnel, a paucity of treatment facilities, and the unavailability of many medications. Routine screening—a mainstay in the developed world—could greatly increase the likelihood of identifying individuals with early stage cancers and thus reduce the number of people who present with advanced disease. This book represents a critical addition to the literature of global health studies. Focusing on cervical, breast, and oral cancers, these case studies highlight innovative strategies in cancer screening in a diverse array of developing countries. The authors discuss common issues and share how obstacles—medical, economic, legal, social, and psychological—were addressed or overcome in specific settings. Each chapter offers an empirical discussion of the nature and scope of a screening program, the methodology used, and its findings, along with a candid discussion of challenges and limitations and suggestions for future efforts.
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Care at a Distance
On the Closeness of Technology
Jeannette Pols
Amsterdam University Press, 2012
Often the switch to telecare—technology used to help caretakers provide treatment to their patients off-site—is portrayed as either a nightmare scenario or a much needed panacea for all our healthcare woes. This widely researched study probes what happens when technologies are used to provide healthcare at a distance. Drawing on ethnographic studies of both patients and nurses involved in telecare, Jeannette Pols demonstrates  that instead of resulting in less intensive care for patients, there is instead a staggering rise in the frequency of contact between nursing staff and their patients. Care at a Distance takes the theoretical framework of telecare and provides hard data about these innovative care practices, while producing an accurate portrayal of the pros and cons of telecare.
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Contagious
Cultures, Carriers, and the Outbreak Narrative
Priscilla Wald
Duke University Press, 2008
How should we understand the fear and fascination elicited by the accounts of communicable disease outbreaks that proliferated, following the emergence of HIV, in scientific publications and the mainstream media? The repetition of particular characters, images, and story lines—of Patients Zero and superspreaders, hot zones and tenacious microbes—produced a formulaic narrative as they circulated through the media and were amplified in popular fiction and film. The “outbreak narrative” begins with the identification of an emerging infection, follows it through the global networks of contact and contagion, and ends with the epidemiological work that contains it. Priscilla Wald argues that we need to understand the appeal and persistence of the outbreak narrative because the stories we tell about disease emergence have consequences. As they disseminate information, they affect survival rates and contagion routes. They upset economies. They promote or mitigate the stigmatizing of individuals, groups, locales, behaviors, and lifestyles.

Wald traces how changing ideas about disease emergence and social interaction coalesced in the outbreak narrative. She returns to the early years of microbiology—to the identification of microbes and “Typhoid Mary,” the first known healthy human carrier of typhoid in the United States—to highlight the intertwined production of sociological theories of group formation (“social contagion”) and medical theories of bacteriological infection at the turn of the twentieth century. Following the evolution of these ideas, Wald shows how they were affected by—or reflected in—the advent of virology, Cold War ideas about “alien” infiltration, science-fiction stories of brainwashing and body snatchers, and the HIV/AIDS pandemic. Contagious is a cautionary tale about how the stories we tell circumscribe our thinking about global health and human interactions as the world imagines—or refuses to imagine—the next Great Plague.

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City Of Plagues
Disease, Poverty, And Deviance In San Francisco
Susan Craddock
University of Minnesota Press, 2004

An eye-opening discussion of the ways disease shapes urban society

Disease may not discriminate, but it helps those who do. In this fascinating book, Susan Craddock examines the role of disease and health policy in the construction of race, gender, and class, and in urban development in nineteenth- and twentieth-century San Francisco. An absorbing look at the role of disease and health policy in the construction of race, gender, and class in urban development during nineteenth- and twentieth-century San Francisco. Susan Craddock considers tuberculosis, plague, smallpox, and syphilis as diseases whose devastations were derived in part from their use as political tools and disciplinary mechanisms

[more]

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The Costs of Poor Health Habits
Willard Manning, Emmett Keeler, Joseph P. Newhouse, Elizabeth Sloss, and Jeffrey Wasserman
Harvard University Press, 1991

Poor health habits (drinking, smoking, lack of exercise) obviously take their toll on individuals and their families. The costs to society are less obvious but certainly more far-reaching. This investigation is the first to quantify the financial burden these detrimental habits place on American taxpayers. Willard Manning and his colleagues measure the direct costs of poor health habits (fire damage, motor vehicle accidents, legal fees), as well as collectively financed costs (medical care, employee sick leave, group health and life insurance, nursing home care, retirement pensions, liability insurance). Consider two co-workers covered by their employer's health plan: both pay the same premium, yet if one drinks heavily, the other--through their mutual insurance program--involuntarily funds the resulting health problems.

After laying out their conceptual framework, methods, and analytical approach, the authors describe precisely how and to what extent drinking, smoking, and lack of exercise are currently subsidized, and make recommendations for reducing or reallocating the expense. They present, for example, a persuasive case for raising excise taxes on alcohol. The authors correlate their data to make costs comparable, to avoid double counting, and to determine the exact costs of each of these poor health habits and some of their findings are quite surprising.

This unique study will be indispensable to public health policy specialists and researchers, as well as to health economists.

[more]

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Collective Biologies
Healing Social Ills through Sexual Health Research in Mexico
Emily A. Wentzell
Duke University Press, 2021
In Collective Biologies, Emily A. Wentzell uses sexual health research participation as a case study for investigating the use of individual health behaviors to aid groups facing crisis and change. Wentzell analyzes couples' experiences of a longitudinal study of HPV occurrence in men in Cuernavaca, Mexico. She observes how their experiences reflected Mexican cultural understandings of group belonging through categories like family and race. For instance, partners drew on collective rather than individualistic understandings of biology to hope that men's performance of “modern” masculinities, marriage, and healthcare via HPV research would aid groups ranging from church congregations to the Mexican populace. Thus, Wentzell challenges the common regulatory view of medical research participation as an individual pursuit. Instead, she demonstrates that medical research is a daily life arena that people might use for fixing embodied societal problems. By identifying forms of group interconnectedness as “collective biologies,” Wentzell investigates how people can use their own actions to enhance collective health and well-being in ways that neoliberal emphasis on individuality obscures.
[more]

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Clifford W. Beers
Advocate for the Insane
Norman Dain
University of Pittsburgh Press, 1980
Norman Dain offers a compelling biography of Clifford W. Beers, whose lifelong battle against his own mental illness inspired him to become a champion for mental health. Beers' autobiography, A Mind That Found Itself, created a public outcry in 1908, as it chronicled Beers' experiences during his three-year confinement in an asylum. Despite his disability, Beers went on to found the National Committee for Mental Hygiene (now the National Association for Mental Health), the American Foundation for Mental Hygiene, and the International Committee for Mental Hygiene.
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Climate Justice and Public Health
Realities, Responses, and Reimaginings for a Better Future
Edited by Rajini Srikanth and Linda Thompson
University of Massachusetts Press, 2024

When climate disasters like hurricanes, heatwaves, and tsunamis strike, they reveal the inequities of our social, political, and economic structures. They also lay bare the negative impacts of these structures on the health and safety of all people, and particularly socioeconomically vulnerable groups. With original contributions from scholars from a wide range of diverse fields—­including environmental studies, public health, legal studies, urban planning, literary studies, and nursing—­Climate Justice and Public Health examines this nexus of climate change, which has become impossible to ignore in the twenty-­first century.

Expanding the climate and health equity discussions to populations all over the globe, the contributors in this volume address an impressive and broad range of topics that include Indigenous health and cultural practices, mental and emotional health, senior health, and impacts on African American communities. Collectively, they present radical new ways of confronting these issues and propose holistic solutions.

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Climbing the Ladder, Chasing the Dream
The History of Homer G. Phillips Hospital
Candace O’Connor
University of Missouri Press, 2022
Nothing about Homer G. Phillips Hospital came easily. Built to serve St. Louis’s rapidly expanding African-American population, the grand new hospital opened its doors in 1937, toward the end of the Great Depression.  “Homer G.,” as many called it, joined a burgeoning group of black hospitals amid a national period of institutional segregation and strong racial prejudice nationwide.

When the beautiful, up-to-date hospital opened, it attracted more black residents than any other such program in the United States. Patients also flocked to the hospital, as did nursing students who found there excellent training, ready employment, and a boost into the middle class. For decades, the hospital thrived; by the 1950s, three-quarters of African-American babies in St. Louis were born at Homer G.

But the 1960s and 1970s brought less need for all-black hospitals, as faculty, residents, and patients were increasingly welcome in the many newly integrated institutions. Ever-tightening city budgets meant less money for the hospital, and in 1979, despite protests from the African-American community, HGPH closed. Years later, the venerated, long-vacant building came to life again as the Homer G. Phillips Senior Living Community.

Candace O’Connor draws upon contemporary newspaper articles, institutional records, and dozens of interviews with former staff members to create the first, full history of the Homer G. Phillips Hospital. She also brings new facts and insights into the life and mysterious murder (still an unsolved case) of the hospital’s namesake, a pioneering Black attorney and civil rights activist who led the effort to build the sorely needed medical facility in the Ville neighborhood.
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The Changing Hospital Industry
Comparing Not-for-Profit and For-Profit Institutions
Edited by David M. Cutler
University of Chicago Press, 1999
In recent years, the hospital industry has been undergoing massive change and reorganization with technological innovations and the spread of managed care. As a result, the total number of hospitals countrywide has been declining, and a growing number of not-for-profit hospitals have converted to for-profit status. These changes raise two fundamental questions: What determines a hospital's choice of for-profit or not-for-profit organizational form? And how does that form affect patients and society?

This timely volume provides a factual basis for discussing for-profit versus not-for-profit ownership of hospitals and gives a first look at the evidence about new and important issues in the hospital industry. The Changing Hospital Industry: Comparing Not-for-Profit and For-Profit Institutions will have significant implications for public-policy reforms in this vital industry and will be of great interest to scholars in the fields of health economics, public finance, hospital organization, and management; and to health services researchers.
[more]

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Challenging Operations
Medical Reform and Resistance in Surgery
Katherine C. Kellogg
University of Chicago Press, 2011

In 2003, in the face of errors and accidents caused by medical and surgical trainees, the American Council of Graduate Medical Education mandated a reduction in resident work hours to eighty per week. Over the course of two and a half years spent observing residents and staff surgeons trying to implement this new regulation, Katherine C. Kellogg discovered that resistance to it was both strong and successful—in fact, two of the three hospitals she studied failed to make the change. Challenging Operations takes up the apparent paradox of medical professionals resisting reforms designed to help them and their patients. Through vivid anecdotes, interviews, and incisive observation and analysis, Kellogg shows the complex ways that institutional reforms spark resistance when they challenge long-standing beliefs, roles, and systems of authority.

At a time when numerous policies have been enacted to address the nation’s soaring medical costs, uneven access to care, and shortage of primary-care physicians, Challenging Operations sheds new light on the difficulty of implementing reforms and offers concrete recommendations for effectively meeting that challenge.

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The City and the Hospital
The Paradox of Medically Overserved Communities
Daniel Skinner, Jonathan R. Wynn, and Berkeley Franz
University of Chicago Press, 2023
A surprising look at how hospitals affect and are affected by their surrounding communities.
 
An enduring paradox of urban public health is that many communities around hospitals are economically distressed and, counterintuitively, medically underserved. In The City and the Hospital two sociologists, Jonathan R. Wynn and Berkeley Franz, and a political scientist, Daniel Skinner, track the multiple causes of this problem and offer policy solutions.
 
Focusing on three urban hospitals—Connecticut’s Hartford Hospital, the flagship of the Hartford Healthcare system; the Cleveland Clinic, which coordinates with other providers for routine care while its main campus provides specialty care; and the University of Colorado Hospital, a rare example of an urban institution that relocated to a new community—the authors analyze the complicated relationship between a hospital and its neighborhoods. On the one hand, hospitals anchor the communities that surround them, often staying in a neighborhood for decades. Hospitals also craft strategies to engage with the surrounding community, many of those focused on buying locally and hiring staff from their surrounding area. On the other hand, hospitals will often only provide care to the neighboring community through emergency departments, reserving advanced medical care and long-term treatment for those who can pay a premium for it. In addition, the authors show, hospitals frequently buy neighborhood real estate and advocate for development programs that drive gentrification and displacement.
 
To understand how urban healthcare institutions work with their communities, the authors address power, history, race, and urbanity as much as the workings of the medical industry. These varied initiatives and effects mean that understanding urban hospitals requires seeing them in a new light—not only as medical centers but as complicated urban forces.
 
[more]

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Continuing Care in a Community Hospital
Harold N. Willard and Stanislav V. Kasl
Harvard University Press, 1972
In this report on one of the first continuing care departments in the country, Dr. Harold Willard describes how he set up and directed a program in Thayer Hospital, Waterville, Maine, to provide the personnel and services necessary for improved care of patients with chronic illnesses. The community hospital, he maintains, must be the center for developing methods for health maintenance and care of the chronically ill. Two chapters by Dr. Stanislav Kasl provide a theoretical background for continuing care and discuss the importance of information from the behavioral sciences in the development and operation of continuing care programs.
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City Hospitals
The Undercare of the Underprivileged
Harry F. Dowling
Harvard University Press, 1982

Maligned by the public and manipulated by politicians, today's city hospitals often cannot keep pace with the rising costs of medical technology. But while the urban landscape decays around them and city officials debate their continued existence, these institutions provide primary care for many of the nation's poor, and technically advanced care for some. They also serve as training grounds for many health professionals. How city hospitals have progressed so far, only to face such an uncertain future, is the subject of this clearly written and meticulously researched history.

Drawing on his personal experience as a physician and administrator, Harry F. Dowling shows that many problems facing city hospitals in the 1980s can be traced to their bleak beginnings as adjuncts to the poorhouse. Occasionally they provided satisfactory custodial care for the indigent sick, along with medical treatment comparable to the best private hospitals; more often their wards were scantily staffed with incompetent, careless attendants and characterized by filth, overcrowding, and epidemics that turned hospitals into death houses. Dr. Dowling describes how the gradual affiliation of city hospitals with medical schools, as well as the professionalization of nursing and administration, brought about the transition from almshouse to modern medical center. But by the 1960s deteriorating buildings and dwindling budgets again raised questions about the city hospital's role in today's medical establishment.

This book discusses a number of issues that will have a direct bearing on the future viability of these hospitals. Of particular significance will be their willingness to respond creatively to the needs of the surrounding community through emphasis on preventive medicine, family services, and care of the chronically ill.

[more]

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Caring by the Hour
Women, Work, and Organizing at Duke Medical Center
Karen Brodkin Sacks
University of Illinois Press, 1988
Karen Sacks offers the first detailed account of the hospital industry's nonprofessional support staff---their roles in day-to-day health care delivery, and why they fought so tenaciously throughout the 1970s to unionize. This case study of the relationships between work life and unionization in Duke medical Center highlights women's activism in general and black women's leadership in particular.
 
In addition to an analysis of the dynamics of women's activism, Caring by the Hour provides a comparative study of Duke Medical Center's treatment of both black and white female workers. Sacks links patterns of racial segregation in clerical jobs to the relationship between race, working conditions, and unequal opportunities for black and white women, and to their differing work cultures and patterns of public militance. She also discusses recent changes in service, clerical, and professional work and their effects on white and black women, placing them in the context of national changes in health funding and policies.
[more]

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A Chancellor's Tale
Transforming Academic Medicine
Ralph Snyderman, MD
Duke University Press, 2016
During his fifteen years as chancellor, Dr. Ralph Snyderman helped create new paradigms for academic medicine while guiding the Duke University Medical Center through periods of great challenge and transformation. Under his leadership, the medical center became internationally known for its innovations in medicine, including the creation of the Duke University Health System—which became a model for integrated health care delivery—and the development of personalized health care based on a rational and compassionate model of care. In A Chancellor's Tale Snyderman reflects on his role in developing and instituting these changes.
 
Beginning his faculty career at Duke in 1972, Snyderman made major contributions to inflammation research while leading the Division of Rheumatology and Immunology. When he became chancellor in 1989, he learned that Duke’s medical center required bold new capabilities to survive the advent of managed care and HMOs. The need to change spurred creativity, but it also generated strong resistance. 
 
Among his many achievements, Snyderman led ambitious institutional growth in research and clinical care, broadened clinical research and collaborations between academics and industry, and spurred the fields of integrative and personalized medicine. Snyderman describes how he immersed himself in all aspects of Duke’s medical enterprise as evidenced by his exercise in "following the sheet" from the patient's room to the laundry facilities and back, which allowed him to meet staff throughout the hospital. Upon discovering that temperatures in the laundry facilities were over 110 degrees he had air conditioning installed. He also implemented programs to help employees gain needed skills to advance. Snyderman discusses the necessity for strategic planning, fund-raising, and media relations and the relationship between the medical center and Duke University. He concludes with advice for current and future academic medical center administrators.
 
The fascinating story of Snyderman's career shines a bright light on the importance of leadership, organization, planning, and innovation in a medical and academic environment while highlighting the systemic changes in academic medicine and American health care over the last half century. A Chancellor's Tale will be required reading for those interested in academic medicine, health care, administrative and leadership positions, and the history of Duke University.
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Covenant of Care
Newark Beth Israel and the Jewish Hospital in America
Kraut, Alan M
Rutgers University Press, 2006
Winner of the 2008 Author's Award from the New Jersey Studies Academic Alliance

Where were you born? Were you born at the Beth? Many thousands of Americans-Jewish and non-Jewish-were born at a hospital bearing the Star of David and named Beth Israel, Mount Sinai, or Montefiore. In the United States, health care has been bound closely to the religious impulse. Newark Beth Israel Hospital is a distinguished modern medical institution in New Jersey whose history opens a window on American health care, the immigrant experience, and urban life. Alan M. and Deborah A. Kraut tell the story of this important institution, illuminating the broader history of voluntary nonprofit hospitals created under religious auspices initially to serve poor immigrant communities. Like so many Jewish hospitals in the early half of the twentieth century, "the Beth" cared not only for its own community's poor and underprivileged, a responsibility grounded in the Jewish traditions of tzedakah ("justice") and tikkun olam ("to heal the world"), but for all Newarkers.

Since it first opened its doors in 1902, the Beth has been an engine of social change. Jewish women activists and immigrant physicians founded an institution with a nonsectarian admissions policy and a welcome mat for physicians and nurses seeking opportunity denied them by anti-Semitism elsewhere. Research, too, flourished at the Beth. Here dedicated medical detectives did path-breaking research on the Rh blood factor and pacemaker development. When economic shortfalls and the Great Depression threatened the Beth's existence, philanthropic contributions from prominent Newark Jews such as Louis Bamberger and Felix Fuld, the efforts of women volunteers, and, later, income from well-insured patients saved the institution that had become the pride of the Jewish community.

The Krauts tell the Beth Israel story against the backdrop of twentieth-century medical progress, Newark's tumultuous history, and the broader social and demographic changes altering the landscape of American cities. Today, the United States, in the midst of another great wave of immigration, once again faces the question of how to provide newcomers with culturally sensitive and economically accessible medical care. Covenant of Care will inform and inspire all those working to meet these demands, offering a compelling look at the creative ways that voluntary hospitals navigated similar challenges throughout the twentieth century.

 
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Crime, Punishment, and Mental Illness
Law and the Behavioral Sciences in Conflict
Erickson, Patricia
Rutgers University Press, 2008
Hundreds of thousands of the inmates who populate the nation's jails and prison systems today are identified as mentally ill. Many experts point to the deinstitutionalization of mental hospitals in the 1960s, which led to more patients living on their own, as the reason for this high rate of incarceration. But this explanation does not justify why our society has chosen to treat these people with punitive measures.

In Crime, Punishment, and Mental Illness, Patricia E. Erickson and Steven K. Erickson explore how societal beliefs about free will and moral responsibility have shaped current policies and they identify the differences among the goals, ethos, and actions of the legal and health care systems. Drawing on high-profile cases, the authors provide a critical analysis of topics, including legal standards for competency, insanity versus mental illness, sex offenders, psychologically disturbed juveniles, the injury and death rates of mentally ill prisoners due to the inappropriate use of force, the high level of suicide, and the release of mentally ill individuals from jails and prisons who have received little or no treatment.
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Chemical Consequences
Environmental Mutagens, Scientist Activism, and the Rise of Genetic Toxicology
Frickel, Scott
Rutgers University Press, 2004

Hereis the first historical and sociological account of the formation of an interdisciplinary science known as genetic toxicology, and of the scientists’ social movement that created it.

After research geneticists discovered that synthetic chemicals were capable of changing the genetic structure of living organisms, scientists began to explore how these chemicals affected gene structure and function.  In the late 1960s, a small group of biologists became concerned that chemical mutagens represented a serious and possibly global environmental threat.

Genetic toxicology is nurtured as much by public culture as by professional practices, reflecting the interplay of genetics research and environmental politics. Drawing on a wealth of resources, Scott Frickel examines the creation of this field through the lens of social movement theory. He reveals how a committed group of scientist-activists transformed chemical mutagens into environmental problems, mobilized existing research networks, recruited scientists and politicians, secured financial resources, and developed new ways of acquiring knowledge. The result is a book that vividly illustrates how science and activism were interwoven to create a discipline that remains a defining feature of environmental health science.

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Chasing Molecules
Poisonous Products, Human Health, and the Promise of Green Chemistry
Elizabeth Grossman
Island Press, 2011
Each day, headlines warn that baby bottles are leaching dangerous chemicals, nonstick pans are causing infertility, and plastic containers are making us fat. What if green chemistry could change all that? What if rather than toxics, our economy ran on harmless, environmentally-friendly materials?
 
Elizabeth Grossman, an acclaimed journalist who brought national attention to the contaminants hidden in computers and other high tech electronics, now tackles the hazards of ordinary consumer products. She shows that for the sake of convenience, efficiency, and short-term safety, we have created synthetic chemicals that fundamentally change, at a molecular level, the way our bodies work. The consequences range from diabetes to cancer, reproductive and neurological disorders.
 
Yet it’s hard to imagine life without the creature comforts current materials provide—and Grossman argues we do not have to. A scientific revolution is introducing products that are “benign by design,” developing manufacturing processes that consider health impacts at every stage, and is creating new compounds that mimic rather than disrupt natural systems. Through interviews with leading researchers, Grossman gives us a first look at this radical transformation.
 
Green chemistry is just getting underway, but it offers hope that we can indeed create products that benefit health, the environment, and industry.
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Chronic Pain and the Family
A New Guide
Julie K. Silver M.D.
Harvard University Press, 2004

Chronic pain is the leading cause of disability in the United States, affecting as many as 48 million people in this country alone. It can demoralize and depress both patient and family, especially when there is no effective pain control and no hope for relief. Improperly managed, chronic pain can lead to substance abuse (usually painkillers) and to acute psychological and emotional distress. Pain begets stress and stress begets pain in a wretched downward spiral.

Silver reviews the causes and characteristics of chronic pain and explores its impact on individual family relationships and on the extended family, covering such issues as employment, parenting, childbearing and inheritance, and emotional health. Silver treats aspects of chronic pain not covered in a typical office visit: how men and women differ in their experience of chronic pain, the effect of chronic pain on a toddler's behavior or an older child's performance in school, the risks of dependence on and addiction to pain medications, and practical ways for relatives beyond the immediate family circle to offer help and support to the person in pain.

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Contingent Figure
Chronic Pain and Queer Embodiment
Michael D. Snediker
University of Minnesota Press, 2021

A masterful synthesis of literary readings and poetic reflections, making profound contributions to our understanding of chronic pain

At the intersection of queer theory and disability studies, acclaimed theorist Michael D. Snediker locates something unexpected: chronic pain. Starting from this paradigm-shifting insight, Snediker elaborates a bracing examination of the phenomenological peculiarity of disability, articulating a complex idiom of figuration as the lived substance of pain’s quotidian. This lexicon helps us differently inhabit both the theoretical and phenomenal dimensions of chronic pain and suffering by illuminating where these modes are least distinguishable. 

Suffused with fastidious close readings, and girded by a remarkably complex understanding of phenomenal experience, Contingent Figure resides in the overlap between literary theory and lyric experiment. Snediker grounds his exploration of disability and chronic pain in dazzling close readings of Herman Melville, Emily Dickinson, Henry James, and many others. Its juxtaposition of these readings with candid autobiographical accounts makes Contingent Figure an exemplary instance of literary theory as a practice of lyric attention.

Thoroughly rigorous and anything but predictable, this stirring inquiry leaves the reader with a rich critical vocabulary indebted to the likes of Maurice Blanchot, Gilles Deleuze, D. O. Winnicott, and Eve Kosofsky Sedgwick. A master class in close reading’s inseparability from the urgency of lived experience, this book is essential for students and scholars of disability studies, queer theory, formalism, aesthetics, and the radical challenge of Emersonian poetics across the long American nineteenth century.

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The Code of Codes
Scientific and Social Issues in the Human Genome Project
Daniel Kevles
Harvard University Press, 1992

The human genome is the key to what makes us human. Composed of the many different genes found in our cells, it defines our possibilities and limitations as members of the species. The ultimate goal of the pioneering project outlined in this book is to map our genome in detail—an achievement that will revolutionize our understanding of human development and the expression of both our normal traits and our abnormal characteristics, such as disease. The Code of Codes is a collective exploration of the substance and possible consequences of this project in relation to ethics, law, and society as well as to science, technology, and medicine.

The many debates on the Human Genome Project are prompted in part by its extraordinary cost, which has raised questions about whether it represents the invasion of biology by the kind of Big Science symbolized by high-energy accelerators. While addressing these matters, this book recognizes that far more than money is at stake. Its intent is not to advance naive paeans for the project but to stimulate thought about the serious issues—scientific, social, and ethical—that it provokes. The Code of Codes comprises incisive essays by stellar figures in a variety of fields, including James D. Watson and Walter Gilbert and the social analysts of science Dorothy Nelkin and Evelyn Fox Keller. An authoritative review of the scientific underpinnings of the project is provided by Horace Freeland Judson, author of the bestselling Eighth Day of Creation.

The book’s broad and balanced coverage and the expertise of its contributors make The Code of Codes the most comprehensive and compelling exploration available on this history-making project.

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CT Suite
The Work of Diagnosis in the Age of Noninvasive Cutting
Barry F. Saunders
Duke University Press, 2008
In CT Suite the doctor and anthropologist Barry F. Saunders provides an ethnographic account of how a particular diagnostic technology, the computed tomographic (CT) scanner, shapes social relations and intellectual activities in and beyond the CT suite, the unit within the diagnostic radiology department of a large teaching hospital where CT images are made and interpreted. Focusing on how expertise is performed and how CT images are made into diagnostic evidence, he concentrates not on the function of CT images for patients but on the function of the images for medical professionals going about their routines. Yet Saunders offers more than insider ethnography. He links diagnostic work to practices and conventions from outside medicine and from earlier historical moments. In dialogue with science and technology studies, he makes a significant contribution to scholarship on the visual cultures of medicine.

Saunders’s analyses are informed by strands of cultural history and theory including art historical critiques of realist representation, Walter Benjamin’s concerns about violence in “mechanical reproduction,” and tropes of detective fiction such as intrigue, the case, and the culprit. Saunders analyzes the diagnostic “gaze” of medical personnel reading images at the viewbox, the two-dimensional images or slices of the human body rendered by the scanner, methods of archiving images, and the use of scans as pedagogical tools in clinical conferences. Bringing cloistered diagnostic practices into public view, he reveals the customs and the social and professional hierarchies that are formulated and negotiated around the weighty presence of the CT scanner. At the same time, by returning throughout to the nineteenth-century ideas of detection and scientific authority that inform contemporary medical diagnosis, Saunders highlights the specters of the past in what appears to be a preeminently modern machine.

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China and the Cholera Pandemic
Restructuring Society under Mao
Xiaoping Fang
University of Pittsburgh Press, 2021
Winner, 2022 Outstanding Academic Title, CHOICE Awards

Mao Zedong’s Great Leap Forward campaign organized millions of Chinese peasants into communes in a misguided attempt to rapidly collectivize agriculture with disastrous effects. Catastrophic famine lingered as the global cholera pandemic of the early 1960s spread rampantly through the infected waters of southeastern coastal China. Confronted with a political crisis and the seventh global cholera pandemic in recorded history, the communist government committed to social restructuring in order to affirm its legitimacy and prevent transmission of the disease. Focusing on the Wenzhou Prefecture in Zhejiang Province, the area most seriously stricken by cholera at the time, Xiaoping Fang demonstrates how China’s pandemic was far more than a health incident; it became a significant social and political influence during a dramatic transition for the People’s Republic.

China and the Cholera Pandemic reveals how disease control and prevention, executed through the government’s large-scale, clandestine anticholera campaign, were integral components of its restructuring initiatives, aimed at restoring social order. The subsequent rise of an emergency disciplinary health state furthered these aims through quarantine and isolation, which profoundly impacted the social epidemiology of the region, dividing Chinese society and reinforcing hierarchies according to place, gender, and socioeconomic status.
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The Cholera Years
The United States in 1832, 1849, and 1866
Charles E. Rosenberg
University of Chicago Press, 1987
Cholera was the classic epidemic disease of the nineteenth century, as the plague had been for the fourteenth. Its defeat was a reflection not only of progress in medical knowledge but of enduring changes in American social thought. Rosenberg has focused his study on New York City, the most highly developed center of this new society. Carefully documented, full of descriptive detail, yet written with an urgent sense of the drama of the epidemic years, this narrative is as absorbing for general audiences as it is for the medical historian. In a new Afterword, Rosenberg discusses changes in historical method and concerns since the original publication of The Cholera Years.

"A major work of interpretation of medical and social thought . . . this volume is also to be commended for its skillful, absorbing presentation of the background and the effects of this dread disease."—I.B. Cohen, New York Times

"The Cholera Years is a masterful analysis of the moral and social interest attached to epidemic disease, providing generally applicable insights into how the connections between social change, changes in knowledge and changes in technical practice may be conceived."—Steven Shapin, Times Literary Supplement

"In a way that is all too rarely done, Rosenberg has skillfully interwoven medical, social, and intellectual history to show how medicine and society interacted and changed during the 19th century. The history of medicine here takes its rightful place in the tapestry of human history."—John B. Blake, Science
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Cancer on Trial
Oncology as a New Style of Practice
Peter Keating and Alberto Cambrosio
University of Chicago Press, 2011
Until the early 1960s, cancer treatment consisted primarily of surgery and radiation therapy. Most practitioners then viewed the treatment of terminally ill cancer patients with heroic courses of chemotherapy as highly questionable. The randomized clinical trials that today sustain modern oncology were relatively rare and prompted stiff opposition from physicians, who were loath to assign patients randomly to competing treatments. Yet today these trials form the basis of medical oncology. How did such a spectacular change occur? How did medical oncology pivot from a nonentity and, in some regards, a reviled practice to the central position it now occupies in modern medicine?
           
In Cancer on Trial Peter Keating and Alberto Cambrosio explore how practitioners established a new style of practice, at the center of which lies the cancer clinical trial. Far from mere testing devices, these trials have become full-fledged experiments that have redefined the practices of clinicians, statisticians, and biologists. Keating and Cambrosio investigate these trials and how they have changed since the 1960s, all the while demonstrating their significant impact on the progression of oncology. A novel look at the institution of clinical cancer research and therapy, this book will be warmly welcomed by historians, sociologists, and anthropologists of science and medicine, as well as clinicians and researchers in the cancer field.
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Cancer Entangled
Anticipation, Acceleration, and the Danish State
Rikke Sand Andersen
Rutgers University Press, 2023
Cancer Entangled explores the shifts that took place in Denmark around the millennium, when health promoters set out to minimize delays in cancer diagnoses in hope of improving cancer survival. The authors suggest a temporal reframing of cancer control that emphasizes the importance of focusing on how people – potential patients as well as health care professionals – experience and anticipate cancer before a diagnosis or a prediction has been made. This argument compellingly challenges and augments anthropological work on cancer control that has privileged attention to the productive role of science and technology and to life with cancer or cancer risk. By offering rich ethnographic insights into the introduction of the first cancer vaccine, cancer signs and symptoms, public discourses on delays, social class and care seeking, cancer suspicion in the clinic, as well as the work on fast-track referral – the book convincingly situates cancer control in an ethical registrar involving attention to acceleration and time, showing how cancer waiting times become an index of the "state of the nation".
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A Cancer Companion
An Oncologist's Advice on Diagnosis, Treatment, and Recovery
Ranjana Srivastava
University of Chicago Press, 2015
Cancer. It’s the diagnosis no one wants to hear. Unfortunately though, these days most of us have known or will know someone who receives it. But what’s next? With the diagnosis comes not only fear and uncertainty, but numerous questions, and a lot of unsolicited advice. With A Cancer Companion, esteemed oncologist Ranjana Srivastava is here to help, bringing both experience and honesty to guide cancer patients and their families through this labyrinth of questions and treatments.

With candor and compassion, Srivastava provides an approachable and authoritative reference. She begins with the big questions, like what cancer actually is, and she moves on to offer very practical advice on how to find an oncologist, what to expect during and after treatments, and how to manage pain, diet, and exercise. She discusses in detail the different therapies for cancers and why some cancers are inoperable, and she skillfully addresses the emotional toll of the disease. She speaks clearly and directly to cancer patients, caretakers, and their loved ones, offering straightforward information and insight, something that many oncologists can’t always convey in the office.
 
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Complex Sorrow
Reflections on Cancer and an Abbreviated Life
Marianne Paget
Temple University Press, 1993
"The author's multiple voices--scholar, sociologist, victim--provide an academic, yet personal, professional, yet poignant, story....Readers face...the 'contradictory meanings' that an especially articulate woman brings to the final chapter of her life." --Women and Health In 1988, Marianne Paget published the Unity of Mistakes: A Phenomenological Interpretation of Medical Work (Temple) in which she argued that error is an intrinsic feature in medicine--an experimental and uncertain activity. Her subsequent research focused on medical negligence and on miscommunication and silence a as cause and product of error in medicine. While pursuing her research on negligence, she found out that she was an example of it. Chronic back pain that had been misdiagnosed as muscle spasms turned out to be a symptom of a rare and fatal cancer that claimed Paget's life in December 1989. This collection of her personal and professional writings on the phenomenon of error in medicine chronicles a young scholar's courageous struggle to make sense of a tragic coincidence. Discovering that she was living the charges and painful topic that she had studied so deeply, Paget write poignantly and analytically until the last week of her life about this uncanny parallel. "It is very tricky to come to terms with the reality of death without becoming trapped in that reality," wrote "Tracy" Paget to her friends. In this book, she describes "the odd way my life began to mirror my work"; her search for "life rites" when face with tasks involving wills, last rites, and farewells; and her indomitable and forthright attempt to remain intensely alive in the face of death. A Complex Sorrow, her final project, comprises essays, letters, and a journal recording her last year. Ever critical of the distanced and dispassionate stance taken in much social analysis, Paget had experimented with performance as a form for enlivening social science research. The script for her play, "The Work of Talk," about communication problems between a physician and his cancer patient, is also included. Her compelling life-text speaks to those living with illness and those who care for and about them, as the investigation and representation of lived experience. Excerpt Excerpt available at www.temple.edu/tempress "Strangely, my knowledge of error has helped me deal with the errors in my care. Had I not known about the prevalence of error in medicine I would not have been able to process what has happened to me without bitterness. But I had thought these matters through already, and more than once. I now live out the complex sorrow I have before described." --Marianne A. Paget Reviews "Paget's book is stunning. It's a tribute to the invulnerable human spirit. The woman burned like a flame; obviously she died well, because she lived well; she was loved because she was loving. The book is tremendously sad, but it isn't depressing; somehow, one is left with a sense of human possibility." --Joan Cassell, author of Expected Miracles: Surgeons at Work
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Contested Medicine
Cancer Research and the Military
Gerald Kutcher
University of Chicago Press, 2009

In the 1960s University of Cincinnati radiologist Eugene Saenger infamously conducted human experiments on patients with advanced cancer to examine how total body radiation could treat the disease. But, under contract with the Department of Defense, Saenger also used those same patients as proxies for soldiers to answer questions about combat effectiveness on a nuclear battlefield.
 

Using the Saenger case as a means to reconsider cold war medical trials, Contested Medicine examines the inherent tensions at the heart of clinical studies of the time. Emphasizing the deeply intertwined and mutually supportive relationship between cancer therapy with radiation and military medicine, Gerald Kutcher explores post–World War II cancer trials, the efforts of the government to manage clinical ethics, and the important role of military investigations in the development of an effective treatment for childhood leukemia. Whereas most histories of human experimentation judge research such as Saenger’s against idealized practices, Contested Medicine eschews such an approach and considers why Saenger’s peers and later critics had so much difficulty reaching an unambiguous ethical assessment. Kutcher’s engaging investigation offers an approach to clinical ethics and research imperatives that lays bare many of the conflicts and tensions of the postwar period.

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Crafting Science
A Sociohistory of the Quest for the Genetics of Cancer
Joan H. Fujimura
Harvard University Press, 1996

During the late 1970s and 1980s, "cancer" underwent a remarkable transformation. In one short decade, what had long been a set of heterogeneous diseases marked by uncontrolled cell growth became a disease of our genes. How this happened and what it means is the story Joan Fujimura tells in a rare inside look at the way science works and knowledge is created. A dramatic study of a new species of scientific revolution, this book combines a detailed ethnography of scientific thought, an in-depth account of science practiced and produced, a history of one branch of science as it entered the limelight, and a view of the impact of new genetic technologies on science and society.

The scientific enterprise that Fujimura unfolds for us is proto-oncogene cancer research--the study of those segments of DNA now thought to make normal cells cancerous. Within this framework, she describes the processes of knowledge construction as a social enterprise, an endless series of negotiations in which theories, material technologies, and practices are co-constructed, incorporated, and refashioned. Along the way, Fujimura addresses long-standing questions in the history and philosophy of science, culture theory, and sociology of science: How do scientists create "good" problems, experiments, and solutions? What are the cultural, institutional, and material technologies that have to be in place for new truths and new practices to succeed?

Portraying the development of knowledge as a multidimensional process conducted through multiple cultures, institutions, actors, objects, and practices, this book disrupts divisions among sociology, history, anthropology, and the philosophy of science, technology, and medicine.

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Cancer Stem Cells
Philosophy and Therapies
Lucie Laplane
Harvard University Press, 2016

An innovative theory proposes a new therapeutic strategy to break the stalemate in the war on cancer. It is called cancer stem cell (CSC) theory, and Lucie Laplane offers a comprehensive analysis, based on an original interdisciplinary approach that combines biology, biomedical history, and philosophy.

Rather than treat cancer by aggressively trying to eliminate all cancerous cells—with harmful side effects for patients—CSC theory suggests the possibility of targeting the CSCs, a small fraction of cells that lie at the root of cancers. CSCs are cancer cells that also have the defining properties of stem cells—the abilities to self-renew and to differentiate. According to this theory, only CSCs and no other cancer cells can induce tumor formation.

To date, researchers have not agreed on the defining feature of CSCs—their stemness. Drawing from a philosophical perspective, Laplane shows that there are four possible ways to understand this property: stemness can be categorical (an intrinsic property of stem cells), dispositional (an intrinsic property whose expression depends on external stimuli), relational (an extrinsic property determined by a cell’s relationship with the microenvironment), or systemic (an extrinsic property controlled at the system level). Our ability to cure cancers may well depend upon determining how these definitions apply to different types of cancers.

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The Cure
A Story of Cancer and Politics from the Annals of the Cold War
Nikolai Krementsov
University of Chicago Press, 2002
Did America try to steal Soviet "cancer secrets"? And how could a cancer cure turn into a "biological atomic bomb"? Nikolai Krementsov's compelling tale of cancer and politics is the story of a husband-and-wife team who developed a promising anticancer treatment in Stalin's Russia, only to see their discovery entangled in Cold War rivalries, ideological conflict, and scientific turf wars.

In 1946, Nina Kliueva and Grigorii Roskin announced the discovery of a preparation able to "dissolve" tumors in mice. Preliminary clinical trials suggested that KR, named after its developers, might work in humans as well. Media hype surrounding KR prompted the U.S. ambassador to the Soviet Union to seek U.S.-Soviet cooperation in perfecting the possible cure. But the escalating Cold War gave this American interest a double edge. Though it helped Kliueva and Roskin solicit impressive research support from the Soviet leadership, including Stalin, it also thrust the couple into the center of an ideological confrontation between the superpowers. Accused of divulging "state secrets" to America, the couple were put on a show trial, and their "antipatriotic sins" were condemned in Soviet stage and film productions.

Parlaying their notoriety into increased funding, Kliueva and Roskin continued their research, but envious colleagues discredited their work and took over their institute. For years, work on KR languished and ceased entirely with the deaths of Kliueva and Roskin. But recently, the Russian press reported that work on KR has begun again, reopening this illuminating story of the intersection among Cold War politics, personal ideals, and biomedical research.
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Cancer in the United States
Abraham M. Lilienfeld, Morton L. Levin, and Irving I. Kessler
Harvard University Press, 1972

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Cancer Activism
Gender, Media, and Public Policy
Karen M. Kedrowski and Marilyn Stine Sarow
University of Illinois Press, 2010
The first comparison of the breast cancer and the prostate cancer movements

Cancer Activism explores the interplay between advocacy, the media, and public perception through an analysis of breast cancer and prostate cancer activist groups over a nearly twenty-year period. Despite both diseases having nearly identical mortality and morbidity rates, Karen M. Kedrowski and Marilyn Stine Sarow present evidence from more than 4,200 news articles to show that the different groups have had markedly different impacts. They trace the rise of each movement from its beginning and explore how discussions about the diseases appeared on media, public, and government agendas. In an important exception to the feminist tenet that women as a group hold less power than men, Kedrowski and Sarow demonstrate that the breast cancer movement is not only larger and better organized than the prostate cancer movement, it is also far more successful at shaping media coverage, public opinion, and government policy.

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Clinical Trials in Ovarian Cancer
Walsh, Christine S
Rutgers University Press, 2017
When a patient is diagnosed with a gynecological malignancy, she and her doctors must make urgent, high-risk decisions about her course of treatment. In selecting an appropriate plan of care, physicians must weigh the patient’s individual needs, the tumor’s specific characteristics, and the treatment’s potential side effects. Because there is no one-size-fits-all treatment solution, a plethora of clinical trials have been performed on ovarian cancer patients, but clinicians may struggle to keep up with this ever-growing body of research.   
 
Collecting and synthesizing research findings from a wide array of medical journal articles and book chapters, Clinical Trials in Ovarian Cancer provides physicians with an invaluable resource. Gynecologic oncologist Christine S. Walsh systematically outlines each of the seminal Phase III trials that have shaped the treatment of ovarian cancers, detailing the rationale for the trial, the patient population studied, treatment delivery methods, efficacy, toxicity, and trial conclusions. She provides a clear overview of established treatments, as well as still-controversial experimental approaches. 
 
The first book to organize this cutting-edge research into an easy-to-use reference, Clinical Trials in Ovarian Cancer should help medical personnel at all levels provide their patients with the highest standard of care. 
 
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The Cancer Within
Reproduction, Cultural Transformation, and Health Care in Romania
Cristina A. Pop
Rutgers University Press, 2022
The Cancer Within examines cervical cancer in Romania as a point of entry into an anthropological reflection on contemporary health care. Cervical cancer prevention reveals the inner workings of emerging post-communist medicine, which aligns the state and the market, public and private health care providers, policy makers, and ordinary women. Fashioned by patriarchal relations, lived religion, and the historical trauma of pronatalism, Romanian women’s responses to reproductive medicine and cervical cancer prevention are complicated by neoliberal reforms to medical care. Cervical cancer prevention – and especially the HPV vaccination – provided Romanians a legitimate instance to express their conflicting views of post-communist medicine. What sets Romania apart is that pronatalism, patriarchy, lived religion, medical reforms, and moral contestation of preventive medicine bring into line systemic contingencies that expose the historical, social, and cultural trajectories of cervical cancer.
 
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The Clinical Diary of Sándor Ferenczi
Sándor Ferenczi
Harvard University Press, 1988
In the half-century since his death, the Hungarian analyst Sándor Ferenczi has amassed an influential following within the psychoanalytic community. During his lifetime Ferenczi, a respected associate and intimate of Freud, unleashed widely disputed ideas that influenced greatly the evolution of modern psychoanalytic technique and practice. In a sequence of short, condensed entries, Sándor Ferenczi’s Diary records self-critical reflections on conventional theory—as well as criticisms of Ferenczi’s own experiments with technique—and his obstinate struggle to divest himself and psychoanalysis of professional hypocrisy. From these pages emerges a hitherto unheard voice, speaking to his heirs with startling candor and forceful originality—a voice that still resonates in the continuing debates over the nature of the relationship in psychoanalytic practice.
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Cerebrum 2010
Emerging Ideas in Brain Science
Foreword by Benjamin S. Carson, M.D.
Dana Press, 2010
Cerebrum 2010 offers a feast for readers keen to know what the world’s leading thinkers see as the newest ideas and implications arising from discoveries about the brain. Drawn from Cerebrum’s highly regarded Web edition, this fourth annual collection brings together the foremost experts in brain science. Jay Giedd, Michael Posner, Mariale Hardiman, David Kupfer and Paul McHugh present their research—and their take—on such cutting-edge topics as the development of the teen brain, how arts education affects intelligence, the limitations of brain imaging, and how to bring more certainty and flexibility to diagnosis in the next edition of the psychiatric bible, the Diagnostic and Statistical Manual of Mental Disorders (DSM-V).
Benjamin S. Carson Sr., director of pediatric neurosurgery at Johns Hopkins Children’s Center and a professor of neurological surgery, oncology, plastic surgery and pediatrics at the Johns Hopkins Medical Institutions, provides an insightful perspective on the impact of neuroscience on his career, the well-being of patients, and the understanding of how the mind works. Cerebrum 2010 presents candid, intriguing debates that capture the harmony as well as the discord in the complex and evolving relationship between neuroscience and society.
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A Cursing Brain?
The Histories of Tourette Syndrome
Howard I. Kushner
Harvard University Press, 1999

Over a century and a half ago, a French physician reported the bizarre behavior of a young aristocratic woman who would suddenly, without warning, erupt in a startling fit of obscene shouts and curses. The image of the afflicted Marquise de Dampierre echoes through the decades as the emblematic example of an illness that today represents one of the fastest-growing diagnoses in North America. Tourette syndrome is a set of behaviors, including recurrent ticcing and involuntary shouting (sometimes cursing) as well as obsessive-compulsive actions. The fascinating history of this syndrome reveals how cultural and medical assumptions have determined and radically altered its characterization and treatment from the early nineteenth century to the present.

A Cursing Brain? traces the problematic classification of Tourette syndrome through three distinct but overlapping stories: that of the claims of medical knowledge, that of patients' experiences, and that of cultural expectations and assumptions. Earlier researchers asserted that the bizarre ticcing and impromptu vocalizations were psychological--resulting from sustained bad habits or lack of self-control. Today, patients exhibiting these behaviors are seen as suffering from a neurological disease and generally are treated with drug therapy. Although current clinical research indicates that Tourette's is an organic disorder, this pioneering history of the syndrome reminds us to be skeptical of medical orthodoxies so that we may stay open to fresh understandings and more effective interventions.

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A Clinician's Guide to Progressive Supranuclear Palsy
Golbe, Lawrence I
Rutgers University Press, 2019
This brief, clinically-focused volume is informed by Lawrence I. Golbe’s three decades of research and tertiary clinical care in progressive supranuclear palsy, a complex disorder with rapidly changing diagnostic and therapeutic approaches. It is an ideal source for the general neurologist seeking a refresher and the primary care provider, neurological nurse, or physical, occupational or speech therapist who must address their patients’ specialized needs.
 
A Clinician’s Guide to Progressive Supranuclear Palsy emphasizes early diagnostic signs, medication options, non-pharmacologic management and palliative care. It offers a quick overview of the complications of PSP most likely to prompt an ER visit; a widening spectrum of PSP variants; and ample description of the genetics, epidemiology, natural history, pathology, molecular biology and neurochemistry of PSP. The PSP Rating Scale used in the book is a convenient tool for clinicians in routine practice and the leading PSP clinical measure world-wide. Golbe provides a practical and useful guidebook to help all clinicians learn and battle this complex disorder.
 
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